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any sucess with oral hyalouronic acid capsules?

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  • any sucess with oral hyalouronic acid capsules?

    Its the active ingredient in cystitat instills. Also I believe its in cystoprotek. Im thinking about buying the pills.
    Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

    I have moderate-severe IC

    Currently stopped taking all medications due to pregnancy

  • #2
    That sounds like a logical idea

    I haven't tried oral hyuralonic acid. I don't post very often any more... I'm essentially in a good remission except for PFD. I do take D3 10,000 U/day and that seemed to help along w/PT pretty much right away. The alternative people are recommending 10,000 u of D. Alopaths still recommend 5,000 U. Not a doctor... just stating what helped me.

    Also, magnesium oil in a spray form, epsom salts baths--magnesium sulfate are helpful w/muscle function. Dr. Moldwin advocates epsom salts baths twice a day.

    J

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    • #3
      i never heard of them kind of pills where do you get them?
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      • #4
        Originally posted by needsrelief
        Its the active ingredient in cystitat instills. Also I believe its in cystoprotek. Im thinking about buying the pills.
        It is in cystoprotek (hylauronic sodium) though its only 20mg. Is it worth taking more?
        I've been taking cystoprotek for a year and am really not any different sorry to say. I am planning on cutting back to 2 a day for a month and then stopping it altogether. It seems like the elmiron is starting to work.
        Cindi


        Gelnique for frequency/urgency - works great
        Macrobid after sex
        Prilosec, continuous birth control pills
        synthroid .088mg, mucinex-d, restasis

        Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

        Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

        IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
        AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
        AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
        Great treatment flowchart on page 19 of the pdf

        Comment


        • #5
          I started taking the elmiron the same day as you did. That day I had a major flare and was up in the middle of the night urinating. Uh! I really wanted it to work.. I was so disappointed.. I decided to try the cystoprotek and only after 4 days I already feel the difference. I hope that the elmiron works for you.. I would cut back on the cystoprotek and see if it makes any difference in your symptoms. If you get worse then maybe the cystoprotek did work with minimal results..Good luck...
          _____________________________________________

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          • #6
            LindaMay

            you can get hyaluronic acid from your vitamin or health shops. they come in a pill form.
            Diagnosed with IC October 2009- through bladder biopsy (no glomerations or hunners ulcers found, just irritation)

            I have moderate-severe IC

            Currently stopped taking all medications due to pregnancy

            Comment


            • #7
              Originally posted by tracieg
              I started taking the elmiron the same day as you did. That day I had a major flare and was up in the middle of the night urinating. Uh! I really wanted it to work.. I was so disappointed..
              Are you sure it was the elmiron? Did you try it again to make sure? because if not you'd be missing out on a hopefully potential "cure", well lessening of symptoms. Maybe it was the capsule? I read to empty it in an oz or two of water and toss the capsule.

              The cystoprotek has good things in it for my joints and stuff so I'm not against continuing to take it, it just hasn't done anything for my IC, if anything the last 6 months have been worse symptom wise then previous years. On a side note, I think the DH aloe does help with inflammation so I will keep taking that for now. If someday I have NO symptoms then maybe I'll cut back on them both. That would be a happy day.

              I'm feeling hopeful for the elmiron to do its thing and coat my bladder! At the same time I'm taking calcium with every meal to keep my urine ph up so that my bladder can hopefully heal. There was a really good post about that recently that I'm trying. I'll start a new thread under alternative therapies for that.
              Cindi


              Gelnique for frequency/urgency - works great
              Macrobid after sex
              Prilosec, continuous birth control pills
              synthroid .088mg, mucinex-d, restasis

              Supplements: Desert Harvest Aloe vera, Cysta-q, prelief, magnesium and calcium, Vit D, flaxseed oil

              Diag Mild IC Jan 11 but have had symptoms for 25 years. Also have GERD, TMJ, IBS-C, chronic dry eye syndrome, hashimotos thyroiditis, non-allergic rhinitis.

              IC Diet Link: http://www.ic-network.com/diet/2009icdietlist.pdf
              AUA 2011 Guidelines to diagnosing and treating IC overview- http://www.ic-network.com/forum/showthread.php?p=571592
              AUA 2011 Guidelines to diagnosing and treating IC PDF: http://www.auanet.org/content/guidel...ent_ic-bps.pdf
              Great treatment flowchart on page 19 of the pdf

              Comment

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