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ever since i found a video of a former ic patient on youtube i have been feeling better about my healing path/getting better from ic. i had my first acupuncture treatment 2 days ago and have been experiencing significant pain relief.. just wanted to share this with you all and i hope it continues,its 60 bux per treatment but well worth the relief.i am also taking some herbs and i will let u know how that goes.i have had the most energy/pain relief in months. i am happy to find a natural treatment.
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Newly IC diagnosed as of February 2011.
Medications I'm on that seem to work:
Zoloft- one once a day
Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)
Failed Meds:
Elmiron-after 4 months,digestive side effects got to be too much
tramadol-allergic
DMSO treatments(5-6)
probiotics
THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
AROMATHERAPY-candles,incense
Village Naturals Aches and Pains Peppermint Bath Salts
Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion
ACUPUNCTURE/HERBS
Significant pain relief so far.
MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
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***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***
Add me on facebook Angela Hasic
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Lord, make me an instrument of your peace;
where there is hatred, let me sow love;
when there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
and where there is sadness, joy.
Grant that I may not so much seek
to be consoled as to console;
to be understood, as to understand,
to be loved as to love;
for it is in giving that we receive,
it is in pardoning that we are pardoned,
and it is in dying [to ourselves] that we are born to eternal life.
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Alternative therapies
Accupuncture is one of the alternative therapies that is being studied-- I forget where or what study-- and I think it was more than one.
I say try anything reasonable. Ya never know... you just might be the one to get better! -
They helped me a lot too. My doc has his own prescription for pain relief of Chinese herbs grown in California. It took my pain right away.Comment
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is this traditional chinese herbal medicine? I am just curious, is it working for you?
Peace
Blue
Comment
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I was very interested in trying acupuncture for my IC but in reading further, it seems like people with pain have the most success. I wish I knew whether or not it works for frequency and urgency, which is mostly what I have. Anyone out there who's had acupuncture work for IC symptoms other than pain?Diagnosed with IC in April 2011. Medications and IC treatments did not help, diagnosed with PFD in September of 2013. Still searching for answers as to why I have never-ending frequency/urgency issues.
Current medications/treatments:
Pelvic physical therapy, valium suppositories, b and o suppositories, acupuncture, probiotics, magnesium, epsom salt baths
Previous medications/treatments:
Elmiron, Hydroxizine, Elavil, VESIcare, Series of rescue instillations using Elmiron, water, lidocaine, & sodium bicarb and self-cathing with instills as needed, D-mannose, Glucosamine, Hyophen (generic Prosed), Colostrum, IC diet, PTNS, chiropractic treatments, Desert Harvest Aloe Vera, CystoProtekComment
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I works great for me and keeps me from having those awful instillations for the most part. But, my main symptoms are pain and burning. I think it's worth a try just to find out!! The main thing is get someone who knows what they are doing. My doctor recommended the one I go to- I think that makes a world of difference.treatment:
-I follow the IC diet to the letter
-acupuncture and chinese herbs
-Prelief
-UTA
-instillations as needed
-beginning yoga and specialized yoga for breathing and relaxation
-Wellbutrin
-Klonopin
main symptoms: pain and burningComment
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TCM works for me.Newly IC diagnosed as of February 2011.
Medications I'm on that seem to work:
Zoloft- one once a day
Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)
Failed Meds:
Elmiron-after 4 months,digestive side effects got to be too much
tramadol-allergic
DMSO treatments(5-6)
probiotics
THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
AROMATHERAPY-candles,incense
Village Naturals Aches and Pains Peppermint Bath Salts
Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion
ACUPUNCTURE/HERBS
Significant pain relief so far.
MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***
Add me on facebook Angela Hasic
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
Lord, make me an instrument of your peace;
where there is hatred, let me sow love;
when there is injury, pardon;
where there is doubt, faith;
where there is despair, hope;
where there is darkness, light;
and where there is sadness, joy.
Grant that I may not so much seek
to be consoled as to console;
to be understood, as to understand,
to be loved as to love;
for it is in giving that we receive,
it is in pardoning that we are pardoned,
and it is in dying [to ourselves] that we are born to eternal life.
Comment
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Acupuncture and herbs have always worked for me to bring me out of flare ups and to maintain feeling pretty good. However right now I am in a 5 week long flare from hell the likes of which i have never experienced before. IT was triggered by sex I believe but has been compounded by stress and anxiety that is making it worse. It seemed to calm for a couple weeks and then got worse again. Acupuncture does not seem to be helping at all and even feels worse after sometimes. I don't know what to do. Does anyone have certain points that their acupuncturist uses specifically for IC. I always got relief from ones right around the bladder area but now they make me feel better during treamtment but worse after. So he is avoiding those. Any suggestions or thoughts? My symptoms are diff than usual. I feel worse now after peeing and having spasms and cramping and sometimes just burning bladder and urethera after. I hate going to the bathroom now.Comment
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Loraleena, have you been checked to be sure you don't have an infection working?
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
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My worst flares are brought on by stress and for those, if it is really severe stress, I sometimes have to get an instillation. Other than that, I can get through them with some UTA and my acupuncture routine. Stress is my very worst trigger by far.treatment:
-I follow the IC diet to the letter
-acupuncture and chinese herbs
-Prelief
-UTA
-instillations as needed
-beginning yoga and specialized yoga for breathing and relaxation
-Wellbutrin
-Klonopin
main symptoms: pain and burningComment
Comment