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I don't use it but when I have smoked it on occasion my pain dissapears. This is why I don't use it....I like it too much!
TMJ Dysfunction 2009
Vulvodynia and/or PFD 2010
IC, based on symptoms alone 2010.
PCOS March 2012
8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!
Currently using: IC Diet...pain meds as needed Medications / treatment tried and discounted:
Fluconazole 150mg 1 per week for 6 months (yeast)
Endep 25mg - 4months
Lyrica 75mg - 2 months - FLARE
Oxytrol patch - I think this caused retention.
Countless creams, lotions and potions.
Cystoprotek - no change in symptoms
PT - for 1 year
Various herbs and supplements
Hahaha! That was such a better response that what I was expecting!!!! Thank you! I noticed in your tried and discounted section you wrote down PT and it helped for painful intercourse, what is that? I suffer very badly from this and have stopped it all together (at great pain to my boyfriend!)
I know several people who use it now for bladder pain. Where I am it is legal with a medical marijuana card. There have been studies done with Indica that show some promise for helping bladder pain. It's great for the insomnia that accompanies this condition and doesn't usually cause nausea or constipation like regular pain meds can.
Hi Stephi, PT = Physical Therapy or Physio. I did months and months with a specialist here in Australia. In the UK (where I am from) its physio. You need to see a womans health physio that specialises in High Tone Pelvic Floor Dysfunction. This has been a huge help to us. If nothing else it allows me to relax the muscles prior to sex. I have learned to control muscles I didn't even know I had.
If you go to www.vulvodyniasupportforum.com there is a women on there by the name of sarah001 she is very knowlagable in all things pf related she is from the UK. I would pay priviate for this though, NHS docs don't get it. I got vulvodynia and PFD and IC in Australia though so don't have personal experience with NHS for these pain syndromes.
Hot baths help prior to sex to relax eveything also.
Vaginal Valium is on my list if painful sex is ever a problem again....you could look into it.
I have heaps move advice that has helped me if your interested PM me.
Haha yeah the weed, my friend Josh occasionaly give me some if I am in a bad way. Last resort though....
Originally posted by StephiUK
Hahaha! That was such a better response that what I was expecting!!!! Thank you! I noticed in your tried and discounted section you wrote down PT and it helped for painful intercourse, what is that? I suffer very badly from this and have stopped it all together (at great pain to my boyfriend!)
Stephi
TMJ Dysfunction 2009
Vulvodynia and/or PFD 2010
IC, based on symptoms alone 2010.
PCOS March 2012
8 month remission following the birth of my beautiful daughter Imogen Rose 25/12/12....currently flaring and hoping to get remission back, life without IC was amazing!
Currently using: IC Diet...pain meds as needed Medications / treatment tried and discounted:
Fluconazole 150mg 1 per week for 6 months (yeast)
Endep 25mg - 4months
Lyrica 75mg - 2 months - FLARE
Oxytrol patch - I think this caused retention.
Countless creams, lotions and potions.
Cystoprotek - no change in symptoms
PT - for 1 year
Various herbs and supplements
Not going to lie, I used to smoke a lot when I was younger. During that time I had NO problems due to muscle spasms and being unable to "unclench" my pelvic muscles.
Unfortunately it is not available for medical prescriptions where I live, or else I would be using it. It worked better than the Sanctura/Wellbutrin combo that I am now using.
Medications and Supplements:
BladderQ
Pyridium
D-Mannose powder
Cranmax
Lifestyle:
Lacto-ovo-vegetarian and IC diet
Meditation
Positive mental attitude!
I will openly say that I use marijuana to deal with the chronic pain I experience. For myself, pot has never aggravated my pain, but instead has let me enjoy life A LOT more. I used to smoke it only recreationally for years, but once my IC pain started, I became desperate for relief.
Using marijuana has had the following benefits for me: reduced nausea, gets me to eat when I don't think I can (but really need to), gets me up and doing regular activities (like chores!), offers me distraction during a flare, makes sex a lot less painful and way more enjoyable, reduces stress...
PM if you want anymore info about my experience. I am 100% in favour for the legalization of marijuana (for both medicinal and recreation use).
Me: Canadian. 31.
IC symptoms: Cramping, burning, frequency. Pain!
Pain management: Ibuprofen. AZO. Marijuana. Prelief. The IC Diet.
I do not, under any circumstances, encourage the use of illegal substances. There are some states where this drug is legal. If you live in an area where it is not legal, please consider this: If someone is dishonest enough to break the law by selling illegal drugs, what possible assurance can you have that he/she is providing what you are told you are purchasing.
I will be closing this thread and ask that the subject not be reopened.
Donna
Stay safe
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I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined fool
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