Thank you for visiting the ICN Support Forum. We are so happy that you found us! The ICN Support Forum is home to 50,000 patients who have participated in our 24/7 support system. However, to protect the privacy of our members, members of the public can not read posts unless you have registered first.
It's easy to register! Just click the "sign up" button in the upper right corner of the page. Make sure you use a correct email address because we'll send you an email to confirm that you are a real person!! We also screen all new applicants to verify that they aren't bots or spammers! If you have any problems, please feel free to send a quick email to: [email protected]!
Has anyone tried 15 min oxygen/ozone insufflations for IC? I have also been diagnosed with Lyme and there are reports both with sauna too are helpful at erradiating the spirochete, which has also been linked sometimes to IC symptoms. I just tried onem with out sideeffects. ANyone else ventured this area?
An alternative newsletter I get from Nevada - the doc claimed he cured IC with ozone gas instillation (probably only one patient) so a naturopath near me who uses ozone gas (which was very diluted to not cause burning) gave me some and I did it 3 times and it just hurt so I knew I was barking up the wrong tree. It was one of those I'll be a total guinia pig moments where I thought I would mess myself up even more or get cured. I am lucky no more damage seemed to be done. I would not breath that stuff as it is toxic I think. I've heard of being used vaginally or rectally and I think it very alternative. You better trust whomever is recommending this stuff.
I got IC in 1970! I was not diagnosed until 1991. I've tried many drugs and therapies but I tend to only resort to drugs when in a flare because when I am not in a flare (from being good on diet), I suffer only from small bladder volume (like about 7 ozs.) and peeing will relieve the discomfort. When I am feeling relatively normal, I say to myself I am glad I am not on a drug. When I am in a flare, I say, why am I not on a drug! I've recently have been trying to solve my connective issue problems in general. I look to diet and herbs mostly unless it gets really bad. I still think there is great hope for each individual finding a path to healing and there are many.
My mom called a doctor in her area that does this to IC patients. I spoke with him and he said that he's had a lot of success in treating IC patients this way. I haven't tried it. Sorry it didn't work for you PurpleV
MP
Diagnosed with IC since 2008. What I'm doing:1. Reduce Stress (Sleep...10:30 bedtime MAX 2. Diet: Free of Grains, gluten, soy, dairy, eggs, some nightshades, and I avoid foods on IC list when possible, although IC-list foods don't bother me as much as these other things do. 3. What do I eat? At first the garbanzo bean pattie was my staple (http://tinyurl.com/bddoas4, look for my post). Now I'm on the Auto Immune Profile diet/AIP (Google 'Paleo mom AIP' for more info). 4. IC THESIS: IC is for me and many of us, a systemic issue. I'm looking into Hormone probs, Food intolerances, Leaky Gut, Candida, and oxalate issues. 5. Chronicle of my journey: Read about my ongoing learning here: http://www.weallseeic.blogspot.com I kiss my family every day. Stay positive everyone. I know we can beat this! IMPORTANT UPDATE ABOUT MY USER NAME: I had to redo my registration/username because I messed something up on my original registration (Something to do with my signature? HTML codes? Blah blah blah. Donna and I tried to figure it out, but alas, we decided the best thing I should do is just get a new userid. My new user ID isminharopaola+
I read about this recently where the ozone is injected into the bladder. It's part of a four part treatment to "cure" IC, along with candida removal, balancing estrogen with bio-available progesterone, and then more ozone injections in the perineum area. My naturopath said ozone instillations are beyond her capabilities, but I imagine the other parts could be helpful. The site did say the instillations were painless, but who knows. It wasn't claiming 100% success either. I can't remember the URL, but you could try googling "IC cure". I found it on pinterest.
Chipotle,
That's exactly what this doctor said. He said that he'd inject it into the bladder...the ozone-air. Again, this doctor claimed good success, but who knows. ???
I'm always leery of any 'cure' that is floating around. I'm sure we all are .
Diagnosed with IC since 2008. What I'm doing:1. Reduce Stress (Sleep...10:30 bedtime MAX 2. Diet: Free of Grains, gluten, soy, dairy, eggs, some nightshades, and I avoid foods on IC list when possible, although IC-list foods don't bother me as much as these other things do. 3. What do I eat? At first the garbanzo bean pattie was my staple (http://tinyurl.com/bddoas4, look for my post). Now I'm on the Auto Immune Profile diet/AIP (Google 'Paleo mom AIP' for more info). 4. IC THESIS: IC is for me and many of us, a systemic issue. I'm looking into Hormone probs, Food intolerances, Leaky Gut, Candida, and oxalate issues. 5. Chronicle of my journey: Read about my ongoing learning here: http://www.weallseeic.blogspot.com I kiss my family every day. Stay positive everyone. I know we can beat this! IMPORTANT UPDATE ABOUT MY USER NAME: I had to redo my registration/username because I messed something up on my original registration (Something to do with my signature? HTML codes? Blah blah blah. Donna and I tried to figure it out, but alas, we decided the best thing I should do is just get a new userid. My new user ID isminharopaola+
Comment