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  • Who qualifies for Antibiotic therapy ?

    I am very interested in antiiotic therapy because I feel so great after one round of cipro. Well, not great, but certainly better all around. When I asked my uro about Dr. F. and broth cultures, he said he had never heard of it in his life and he wasn't interested (even though my doc bills himself as an IC expert--ha!). I just recently developed white blood cells in my urine, never had them before. Previous uro said I didn't fit the profile of someone with recurrent bladder infections (maybe 3-4 a year, but they are mighty and hard to treat). He said I wasn't a candidate for long-term antibiotic therapy. Do you have to have a certain pattern of UTI's or can you just send in your sample to Dr. F? Thanks for helping me.

  • #2
    Yorkiegirl, maybe someone more familiar with this treatment will send you a private message.

    I don't know much about it but I was under the impression that any IC patient would qualify if interested in this treatment, although I understand Dr. F. is very busy these days.

    The reaction of your urologist is soooo typical...sigh...not just about Dr. F.'s work, but about BCG, botox, whatever else.

    Most urologists have one or two treatments for IC that they are comfortable with, and they ignore the 99 other treatments/medications. In spite of the fact that no one treatment or medicine works for all patients, at least not as far as I've been able to tell from the studies that have come out.

    Hmmm..can you tell I have a very low opinion of the field of urology since I've come down with IC? LOL!

    Love, ICY

    Comment


    • #3
      You don't even have to have IC to send a urine sample for a broth culture. You'll find information about antibiotic therapy in the Patient Handbook.

      I have read that antibiotics do have some antinflammatory qualities --- I'm not sure why, but any time I am put on antibiotics, within a few hours I feel better.

      Some people feel long term antibiotics have improved them; others report they have developed antibiotic-resistant infections.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Anyone can send a specimen and request a broth culture. Most doctors are not even familiar with it but it has been used for years and is much more extensive than the usual agar plate done by most labs. You can contact Dr. Fugazzotto by phone and ask for a kit and instructions. His number is 605-342-8989. He is a retired microbiologist who is doing this for research purposes. He charges $25 to cover his costs.

        If you prefer to use a certified lab you can call Fairfax Medical Lab (703-222-2313) and request a kit. It is more expensive depending on how many different bacteria are found. However, a skeptical doctor might be more apt to treat if you have a report from a lab like Fairfax. A lab called United Medical in McLean, VA also does broth cultures but I don't have their number handy. They are certified and are a little cheaper.

        All of these labs find the same bacteria and will tell you which antibiotics will work. Dr. F. will consult with you about the findings and treatment, however. He really pioneered the broth culture to help ID slow-growing bacteria not usually found. Both E.coli and Enterococcus are the most common in women since they are resident in the bowels and can migrate into the vagina and then the urethra. They are treatable with antibiotics, diet, and yeast control to help the bladder heal. It takes at least 6 months according to the experience of those who have used this treatment, but the antibiotic dosage can usually be reduced as symptoms improve.

        Dr. Fugazzotto has a website if you wish to read about his philosophy. There are two interviews with B J Czarapata, NP, on this website in which she discusses her thinking on IC and antibiotic therapy.
        Dr. F.'s site: http://pw1.netcom/~jewel3/uti/bacteria.html

        Hope this helps.

        Martha ([email protected])

        Comment


        • #5
          I had a broth culture done by United Medical Laboratories about a year ago.

          Their info:
          6720 Old McLean Village Drive
          McLean, Virginia 22101
          (703) 356-4422

          You can call them and have a specimen kit sent to you.

          I tested positive for e coli and enterococcus. Took results to my uro who then sent me to infectious disease specialist. He prescribed about 6 weeks of antibiotics. My understanding is Dr. F's method you stay on them much longer. I think it did help me, but did not cure my IC.

          I had bladder biopsies and cysto/hydro and some other things done in June. According to my uro, no bacteria was found in my bladder walls from these tests. My bladder was also scarred and small. My diagnosis of IC was confirmed again.

          Finding a local uro who is willing to work with you on antibiotic treatment can be difficult. Other people who have gone this route are a great resource.

          Good luck,
          Nicole

          Comment


          • #6
            There is no cure for ic and antibotics won't cure ic. I will be on antibotics proactively to fight of the bugggies in my bladder so I won't get chronic utis every month. I am praying that the cipro will work. Hang in there.
            Hang in there , There is hope.
            There is hope. Prayer works.

            Love, Debbie

            Comment


            • #7
              I think it is important to say that there are people who have been cured of IC. If bacteria is the cause long-term antibiotic therapy works. It sometimes takes as long as 3 months to see a big change so you have to have patience and stay on the right antibiotic. I believe that the antibiotics keep bacteria suppressed and a good diet and yeast control help the bladder heal. In this case you are getting at the cause, not just the symptoms which is what other therapies treat.

              Martha

              Comment


              • #8
                I think it is imporant to say that there is no cure for ic. I even asked my urologist who knows about ic and is educated in it, there is no cure for ic. You can go into remisson for long periods of time which has happened to me but the ic does come back which it has for me and it is progressing with me.
                Hang in there , There is hope.
                There is hope. Prayer works.

                Love, Debbie

                Comment


                • #9
                  I have met one woman who had a twenty year remission with absolutely no symptoms. She was very fortunate for that time, but her IC symptoms did return. It's not unusual to have a remission lasting up to five or six years.

                  I also met one woman (this one on the internet) who reported she was "cured" after two years with no symptoms. I have had one two year period with no symptoms and I absolutely assure you that I am not cured.

                  There is currently no permanent cure for IC. I will be the first to jump and cheer when one is found.

                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #10
                    This is something we all are going to have different opinions on. I believe that my bladder symptoms were not true IC but an infection of some sort with a bacteria not usually found in the bladder. With antibiotic therapy i am getting better. I do believe people can be cured from this because I believe not everyone with these symptoms have true IC. Doctors are way to quick to jump and say you have IC when they can't find the root of the problem. The truth is if they would educate themselves more and be a little more willing to work with there patients the outcome would be a lot better. I am grateful I have a uro who belives the same as I do and with his help and Dr. F's I am getting better. I am not saying this is the answer for everyone and there is no cure for true IC but I believe there are some who do not have true IC. This is only my opinion and I hope it doesn't spark any trouble. God Bless!!

                    Success

                    Comment


                    • #11
                      Success, sometimes it is hard to define what"true" IC is because the symptoms differ so much. The doctors, themselves, have different standards for diagnosis. I was diagnosed by a hydrodistension and had glomulerations, but not everyone has them. However, I have been healed by the use of antibiotics. I have had a few recurrences of symptoms, but a culture has always shown bacteria and antibiotics have restored health. Bacteria are always lurking on our bodies and sometimes they cause problems and sometimes they do not, but that is true with other infectious diseases. It is true of UTIs. We can be cured and have another bout again later. I believe IC is a form of UTI for many of us; it is just caused by a different bacteria than the usual UTI and some of us are susceptible to this particular one. If bacteria are found and antibiotics treat it, it doesn't really matter whether you call it IC or UTI. What we all want is to be healed. As you know, if you are better that is all that matters to you.

                      I know that most doctors are adamant that IC is not bacterial because that is what they learned in medical school. The labs do not really do an extensive enough culture to find slow-growing bacteria and report "no growth" on their lab reports. That happened to me; however I did have bacteria and it responded to the right antibiotic for the right length of time. You are fortunate if your doctor is open enough to treat the bacteria that was found by Dr. Fugazzotto. We know how long it took to convince the medical establishment that most stomach ulcers are caused by bacteria. And it is interesting that the earlist evidence of what we now call IC were called "Hunner's ulcers". And in some cases the ulcers are still found in IC patients.

                      Martha

                      Comment


                      • #12
                        I also believe that there are many forms of IC, many different causes perhaps.

                        I am very much intrigued by the theory of slow-growing bacteria hard-to-culture bacteria, because I have a constantly high nitrite or nitrate or whatever that is level, which sometimes means infection, and my urine smells like UTI urine if you know what I mean, so sometimes I wonder if it's some kind of infection that just isn't showing up for some reason.

                        I hope that more research being done these days will lead to more answers for us, and more remissions or even cures someday.

                        Love, ICY

                        Comment


                        • #13
                          ICyuck,

                          I sent you a private message. Please read.

                          Martha

                          Comment


                          • #14
                            Martha,

                            I agree with you entirely. I'm not very good at writing things out. I believe I had a UTI that was misdiagnosed as IC because no bacteria was found, though Dr F found the bacteria and with the antibiotics I am getting better. I am grateful for that and i truly believe others could be helped the same way if they gave it a chance. God Bless!!

                            Success

                            Comment


                            • #15
                              I once went into remission for months after a 5-6 week course of Cipro, with no infection detected. The urologist I saw told me he didn't want me to be in the "no man's land" of IC and that perhaps I had bacteria hiding in the lining. I have not repeated this treatment, despite the fact that my IC symptoms returned, because I now have IBS and I am afraid of what antibiotics would do to my guts, not to mention I am much more prone to yeast than I was a few years ago.

                              I may send in a sample to this Dr. F. person, whoever he is, just to see what happens. I am glad for the post above telling me how to go about this if I want to.

                              I have also heard from another urologist that certain antibiotics have anti-inflammatory properties. And, a dermatologist said the same thing. They sometimes treat inflammations of the skin successfully with antibiotics, even when it isn't clearly an infection.

                              Diana.

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