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  • Antibiotics

    I just would like to bring up a discussion but it does not mean it is good for everyone. I have noticed if I take antibotics and Elmiron together I hurt more, and either medicince seems to work as well. Recently I was taking antibotics due to chronic sinus affection and I stop the Elmiron because of the antibiotics and noticed I did very well with it. Even the antibotics helped my bladder. I just wonder if anyone experience this too. This is the first time I did this and maybe it was just something that happen, I am guessing here. Maybe it won't work again, and I guess that is why I am asking about it.

    I know there could be different reasons for this to happen but I was just wondering if this ever happen to any of you.

    Sending hugs, Trishann

  • #2
    Yes, when I was on cipro for a bladder infection, I did notice significant improvement. Well, antibiotics do have anti-inflammatory qualities, so that's one possible reason. I really don't know if that's the true reason or not. But I definitely had the same experience as you did.
    Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
    Wishing you happiness and good health, and all the best out of life.

    Peace, Carolyn

    Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007

    On the Beach with IC


    • #3
      HI Trishann,
      When I have a bad flare (which luckily hasn't happened in a while) my IC/Uro has me take 3 days of Cipro 500mg along with the Elmiron. I've never had any problems with that and it always calms the flare down pretty quickly. Did you dr. say to quit the Elmiron while on antibiotics?? I hadn't heard of doing that before. Take care......Roxie

      Double Spinal Cord Stimulator surgery 8/09
      Unsuccessful MiniArc sling surgery 12/07
      Dx'd Hypothyroid
      Dx'd Chronic Axonal Neuropathy & Myopathy
      June 2007
      Dx'd IC May 2006 (after suffering for 25+ yrs!)
      First Cysto 1979
      First Hydro 1981 (Many treatments since then!)
      Collagin"Durasphere" injections for urethra
      Gall bladder surgery Aug. 2004
      Gastric Bypass Dec. 2004
      Dx'd: Barrett's Esphogus July 2004
      Dx'd: Vaginal Atrophy 2005
      Bladder surgery 2000
      Dx'd: IBS 2000
      Hysterectomy (fibroids) 1999
      Laminectomy 1989
      Dx'd: Degerative Disk Disorder 1989

      For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
      I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra's amazing stuff!!:woohoo:


      • #4
        Thanks Carolyn for letting me know. It just seems odd.

        Roxie, no my doctor did not tell me to go off of Elmiron but because I have problem with taking it at the same time I thought I try and see. Well sure enough I did better taking one or the other. But unfortunately I needed the antibotics. No it is probably not a wise thing to do but when my body is telling me something I learned to listen to it. Something, it my case, just not working with taking it both together for some reason. I just wondering if others experience the same thing and again maybe this only is a problem with me.

        Sending hugs, Trishann


        • #5
          Cipro usually makes me feel really good. I took it at the same time as my Elmiron and never had any problems, never tried it without taking Elmiron though. I have heard too about the anti-inflammitory agents in it that may make IC feel better.


          • #6
            As many of you know if you have read my posts (and I post pretty often) I, and others, believe that IC is really an undiagnosed infection. The lab tests are not really adequate to find all bacteria, and we now know that bacteria can invade the bladder wall and/or form biofilms that enable them to hide from detection and treatment. They can re-emerge to cause new symptoms and that could be what is known as a flare. You can send a specimen to United Medical Lab in McLean, VA and ask them to do a broth culture. Usually they report bacteria that no other lab has found in a patient, and then a sensitivity test will tell what antibiotic is the right one. Some antibiotics have broad spectrum capabilities and may be helping, but it is better to have a specific one for a particular species of bacteria. No one that I know of has been cured using antibiotics for their anti-inflammatory properties, but I know many who have been using them to treat an infection successfully.

            Something is damaging the bladder wall and no one has shown conclusively that it is not bacteria. If bacteria are able to hide then it is difficult to culture and 24-48 hours is not always enough for some species to grow. And other species need something like a nutrient broth to encourage growth. But nothing is going to grow that was not already there when a speciemen is taken. Bacteria are all over our bodies, inside and out, and it is easy for them to get into the bladder.



            • #7
              Martha I heard this before but I am not for sure if it is exactly right or wrong. If this is the case I wish that doctors would investigate in this and see if this could be the reason why we are sick.

              The thing with United Medical Lab, alot of insurance will not paid to have this done. I don't even know if doctors will give a patient a referral to have it done. That is the only way I can do this Lab. work.

              If it was up to me, I would tell my doctor to do all blood test, and broth culture, and all vitamin deficiency test. But they usually won't do this unless they see a problem.

              This IC is so controversary about what is causing it. I guess it is just something they can't quite put their finger on. I do believe it is more help now then what it was but I think there is still away to go.

              Right now I know their are things that can help you to manage it at times but I haven't seen a cure yet neither.

              I hope you keep us update on this and let us know if new things are coming up with it.

              Thank you, Trishann


              • #8
                Trishann, I take an antibiotic with my elmiron all the time but it seems to me you would like to be able to do that too. I guess I am wondering if it isn't something like an IBS spasms that are making them not work out together? Since they both can cause stomach upset have you tried just taking them 2 hours apart?
                Faith, Hope, and Love,

                I believe God is using me. He uses me for God. Things I gain from all my suffering are meant to help others. I hope I can help you too. Email me or start a chat if you like my help or anything. I CARE!Illnesses: IC,IBS, IBD, GERD, PFD, Epilepsy, Endo, Allergies, RLM,Rapid heart beat, low blood pressure,Gastritis,Gall stones,Tendonitis,migraines, Shingles, Prolapsed pouch,ext. fatigue (current problem) I have seen periods of remission and I have seen them end and return. At this time remission is over and working on getting it back!

                IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
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                • #9
                  Katrina I think you got to the point of the problem. This can be a possibility of what is going on and why I am having trouble with it, and it makes me feel awlful. Grrrrrrrrrrrr, I don't know why I did not even think about it. Thank you so much for sharing your understanding of it.

                  Sending hugs, Trishann