Dear LM, you're right, it's a weakened strain, not completely killed.
I have been doing Cystistat for about three years, off and on. Sometimes as close as every two weeks, sometimes waiting as long as a few months, depending on symptoms. It always makes me feel better within about two days, but it doesn't last. I wasn't doing the Cystistat at the same time as getting the acive BCG instillations two and a half years ago. This time I had just had a Cystistat instillation a week before the BCG started and the uro didn't think it would be a problem. But we guess now that it was.
I'm not Dr. Peter's patient and I just emailed him and he replied. I looked up the site for Beaumont Hospital in Detroit and emailed him there and he responded immediately. I think that is Sooooo nice!!!! Not many busy doctors would bother to do that.
No, I'm not angry about the pharmacist - why should I be, sorry if I sounded that way - just wondered why a pharmacist's opinion about this would be more important than a uro's - but then there are uro's who are clueless and pharmacists who really know their stuff, I guess...
If there is anything else I can tell you, please post again.
I'm going for the second of this set of instillations on Wednesday, and then another the following week and then I'll talk to the doctor and we will decide if we need to do two more.
I haven't had any symptoms this time and we don't know if that's because I've had it before and have developed an immunity or if it's just not working because of the Cystistat instillation just the week before.
I'll keep you posted.
Suz
I have been doing Cystistat for about three years, off and on. Sometimes as close as every two weeks, sometimes waiting as long as a few months, depending on symptoms. It always makes me feel better within about two days, but it doesn't last. I wasn't doing the Cystistat at the same time as getting the acive BCG instillations two and a half years ago. This time I had just had a Cystistat instillation a week before the BCG started and the uro didn't think it would be a problem. But we guess now that it was.
I'm not Dr. Peter's patient and I just emailed him and he replied. I looked up the site for Beaumont Hospital in Detroit and emailed him there and he responded immediately. I think that is Sooooo nice!!!! Not many busy doctors would bother to do that.
No, I'm not angry about the pharmacist - why should I be, sorry if I sounded that way - just wondered why a pharmacist's opinion about this would be more important than a uro's - but then there are uro's who are clueless and pharmacists who really know their stuff, I guess...
If there is anything else I can tell you, please post again.
I'm going for the second of this set of instillations on Wednesday, and then another the following week and then I'll talk to the doctor and we will decide if we need to do two more.
I haven't had any symptoms this time and we don't know if that's because I've had it before and have developed an immunity or if it's just not working because of the Cystistat instillation just the week before.
I'll keep you posted.
Suz
Comment