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I am having Botox !!

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  • I am having Botox !!

    Hi everyone,
    I had to see my surgeon yesterday, I need to have my bladder out for the second time.
    Mean while I have a problem with bladder spasm's so I have been asked if I want to try Botox in my bladder.
    I said I would give it a try while waiting for the surgery date, but after reading some of the Botox post's on here I am unsure whether I have made the right decision.
    I am in so much pain, I will be having a general A in theatre, as cathing urethrally is unbearable.
    Have I done the right thing saying yes to Botox??
    And will it help?
    It's mainly for the spasm's and severe pain.

    hugs xx
    I have had IC and PBS for 20+ years.
    Tried every medication I can think off.
    Had a Clam Cystoplasty with Mitrofanoff in November 2006.
    Had a Total Cystectomy, with a neobladder, Urethradectomy and Mitrofanoff review, also had a peristomal hernia repaired.
    4th october 2007.

    Check out my profile on www.myspace.com/surreychick.
    if you want to know more about me.

  • #2
    You poor thing. What do you mean by having your bladder out again?
    I wish you the best of luck with whatever you decide. I thought about doing it, but the cost and newness of it is holding me back.
    If you go for it I'd like a full report.

    Comment


    • #3
      Hiya,
      Last november I had what I thought was a total cystectomy.
      Yesterday I found out that I had a clam cystoplasty instead and that the bottom half of my badly behaved bladder was used and added to my bowel to make a neobladder.
      This is causing me a huge amount of problems(see my other posts) and now I need the whole bladder taken out and the total cystectomy done after all.
      I bet this has confused you hasn't it?
      Basically the surgeon who did the op did the wrong op!!!

      Still not sure if I will have the Botox, there are some people on here who have very bad experiences with Botox.
      It sort of put's me off the idea a little.

      hugs xxx
      I have had IC and PBS for 20+ years.
      Tried every medication I can think off.
      Had a Clam Cystoplasty with Mitrofanoff in November 2006.
      Had a Total Cystectomy, with a neobladder, Urethradectomy and Mitrofanoff review, also had a peristomal hernia repaired.
      4th october 2007.

      Check out my profile on www.myspace.com/surreychick.
      if you want to know more about me.

      Comment


      • #4
        Oh my!!!!!! That is awful! How horrible! I can't believe that they did that. I mean come on - they should have run it by you several times!!!!!! So sorry that happened!
        I'm curious to see if you get any replies where the Botox worked wonders.

        Comment


        • #5
          I had a hydro distention and botox done on March 2nd and feel great. It was my first hydo and my bladder the doctor said was a bloody mess. He said the cracks and hemerages where all over. I was in a lot of pain when I woke up and did take pain killers for 2 days later. About a week and a half later my bladder felt great. I went from peeing 30 times a day to 8. I do sometimes have spasms not many since the botox. I still have urethra burning. If you can get it covered by the insurance and or can afford it go for it you have nothing to loose.
          Lynn
          IC/IBS Hopeful : I had my bladder removed on September 29, 2008 for me but I am also so happy I have no regrets

          Comment


          • #6
            botox

            I have had botox injections many times. At first just the bladder but now I get injections in the urethra, pelvic floor, vestibule glands, etc. I loved the effects with just the bladder but really believe it helps more with urethral pain and pelvic pain then the bladder. Before I started getting my urethra injected I couldn't hardly stand a catheter now it doesn't bother me at all the use one during flares. I would suggest you order prelubricated catheters in pediatric sizes before the procedure.

            Daffie

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