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2nd round of botox

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    NTHottie14
    ICN Member

  • NTHottie14
    replied
    thanks

    I am taking valium 3 times a day plus the flomax. Dr. Moldwin doesnt believe that it is my bladder that is causing this but my pelvic muscles are so tight around my bladdder that its making it hard for me to pee. I will never self caf. that just would make it worse for me. I can pee i just cant empty my bladder so i either have to sit there till it comes out or go to the bathroom 10 times. But im hoping with taking the valium 3 times a day and the flomax which i start taking two tonight that it will somehow help.

    By the way... what mg. are you on for valium?? Dr. moldwin has me on 2mg so 6mg a day...is that too little or is that right?? Although he put me on 2mg for some reason.

    Thanks again!!!!!!!!
    Laura

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  • realitygirl
    IC Friend

  • realitygirl
    replied
    Flow problems

    Laura,

    I haven't tried botox but after having a bladder sling put in back in November, I have had "flow" problems. I take Flomax AND Valium and it does seem to help. If you can self-cath, that is the best way to relieve the pressure. I use a pediatric catheter because the larger ones cause more spasms. I use an 8 fr.

    I work so I can either take the Valium or pain pills - not both. Both makes me a little loopy. . .OK a lot loopy!!! The Valium, according to Dr. Robert Evans here in NC relaxes the pelvic muscles. If you can't self cath, I would go to a local doctor and ask them to show you how. It is a pain in the butt to do but once you get used to it. . .it is no big deal. I too "pushed" and it does cause a lot more discomfort - some good - some bad. Best of luck.
    Sandy

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  • NTHottie14
    ICN Member

  • NTHottie14
    replied
    over 3 weeks....not so good

    I am having trouble going to the bathroom so i have to push but im told not to because it hurts the pelvic muscles which i know so i have not yet felt any relief this time. Dr. Moldwin put me on flomax so that it would help me go to the bathroom and not push. He says its not from the botox but i had the same thing happen to me after the 1st botox but it wasnt bad i just thought it was from cymbalta which the dr. thought was also the problem. Well after the 2nd round it got worse and he still says its not from the botox! Its weird!!! i still think it is. But he said the only way that would happen is if i would put it into your bladder but he doesnt and says never will do that to anyone. So im confused...depressed and upset that it is not working this time. I believe its not working because im pushing which is not allowing the muscles to heal. So hopefully the flomax will take affect in the next few weeks and ill see if my muscles have calmed down. Hope it does. The next thing is the interstim so i dont know!! By the way.....when my mom and i were stuck on jet blue for 3 hours on the runway....the next day we EACH got a 100 dollar voucher! which will be used to fly back to NYC to see Dr. moldwin again.
    But its sooo confusing you work on one thing and another problem occurs. My bladder was doing great no burning urgency freq. nothing and now im having trouble starting sometimes and my flow is weak and have so much urine left in my bladder afterwards it sucks!!
    But i will check back again in a week or so to let you know how things are going.
    have a great 4th of july!!
    Laura

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  • Missy35
    IC Friend

  • Missy35
    replied
    IC Pain

    IC pain for me can only be described as being in labor, I find myself doing the breathing as though I'm having contractions. I've had IC for 5years now and I've been on everything out there. I had a one year period where the IC just went away I had no pain, and no other problems what so ever but now it seems that the IC is getting worse. I've been in serious pain since Friday at 1am and usually the pain lets up once in a while but this is a constant pain it feels like I actuall have a baby kicking me that's how bad my bladder is contracting, I'm scared to go to the doctors because I feel something else might be going on as well. Is it worth while discussing BOTOX with my doctor, I'm at the point where I just don't seem to care anymore because nothing is helping me.

    Missy

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  • NTHottie14
    ICN Member

  • NTHottie14
    replied
    .................................

    He did an exam right before with some sedation i still felt it so sedation my butt LOL....he told my mom yesterday he punctured six holes on each side of my pelvis where i hurt the most...plus he stetched my muslces out as well which hurt.....better day today but it still kills a bit!! All they told me to do was to take painpills constantly to get me zonked out.....but other then that they cant do anything else for me so i have to wait for the pain to go away which usually takes me a week then the botox kicks in....cant wait for that!!
    Laura

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  • deborah bush
    ICN Member

  • deborah bush
    replied
    Laura I hope you got home okay!! I will be prayer for you that the botox will help you. Will did he put the botox in?

    Deborah Bush

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  • NTHottie14
    ICN Member

  • NTHottie14
    replied
    oh boy

    Lets see ladies....everything went good yesterday.....i was stuck on the jetblue plane for 3hrs because of storms and we could only fly 10,000ft or we werent allowed to leave so i saw lighting when we were up and was like yep im shutting the window lol....then we dropped from 10,000ft to 8,000 during a bad bad turblance...but after we got out of scranton PA everything was good...........as for today im in a ton of pain and had to take the global regents and hardly could do that but got through it.....i think i did good.....

    dr moldwin stretched my pelvic muscles as well as putting the botox in....didnt know he was going to stretch them till after the surgrey....that is what made the pain worse....but in a week or so ill be better... and will update you all again...thank you for the continuing support and prayers...
    Is it just me or are my veins stupid??? i have five holes on both my arms until they got an IV in my hand its swollen and hurts but nothing compared to the awful pelvic pain today...that IV hurt so bad!

    i was about ready to break down and cry while i was waiting three hours on the plane for it to leave i was so ****** and in soo much pain im just glad we got home....we took and earlier flight cuz i was done early and which was good cuz the one were supposed to go on got cancelled!!

    Aye!!!!! But i will update aagain and thank you!!
    Laura

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  • deborah bush
    ICN Member

  • deborah bush
    replied
    Laura, I am happy that Pairs Hilton went back to jail to!!!!!!!!!!!!!!!

    Leave a comment:

  • NTHottie14
    ICN Member

  • NTHottie14
    replied
    Thanks

    Ok thanks so much.....I'll keep you and everyone else updated

    Totally off subject but thank god paris hilton is going back to jail! LOL!!!

    Laura

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  • deborah bush
    ICN Member

  • deborah bush
    replied
    Hi Laura I am so happy that your insurance is paying for the botox. There is one thing I would do is take something for the burning pain. I did not have any problem about walking. I will be praying for you and did let us know what happens.

    Deborah Bush

    Leave a comment:

  • NTHottie14
    ICN Member

  • NTHottie14
    replied
    4 Days!!!

    Four more days until the botox. Im so excited because i am in sooo much pain and cannot wait to get relief. My insurance has covered the botox we only had to pay 29$ for 2 viles 100cc's!!!!! It was shipped to our house so we have to bring it on a plane with us to Long Island. Dr. Moldwin was like WOW i cannot believe it was covered. But it helps a great deal and i thank my mother for that. She would call the insurance company pretty much everyday and sometimes maybe twice a day. I guess they got so annoyed they covered it LOL!

    Does anyone notice that if you walk too far or fast that you have major pelvic pain afterwards?? If i run around with the dog....sit on a chair too llong ( a hard one) or walk too far or fast i get sooo much pain. I had to go into school for a lab practical and it seemed i had to walk a mile just to get to the classroom (science wing). Then i felt the pain just like that.....then the next day its 10x's worse but then the day after that (today---Friday) im much better.

    It was hard for me to go into school. I was so scared and i havent seen my friends in so long....even sadder part was when i was sitting outside the classroom waiting for my teacher to come out from the class.....bell rang.....friends and people i knew walked by and never said hey how are ya. At first i thought of it as a blessing because i havent seen them in so long and was nervous...but then when i was talking to my counsler/social worker...it really sunk in....i realized it was very upsetting but hey what are you gonna do about it...They ask what is wrong with me but nobody knows what IC is so they think its nothing....they arent smart enough to know what PFD is so i guess they think its nothing...Had to vent sorry this is so looong!!

    But if i were to go back to school in september....and i had to walk so much would my pelvic pain come back again and create problems where i would have to start homeschoool again??? My mom suggested doing the botox every 3months..depending how long the next one lasts....but im so iffy about it. My dad WANTS me to go back...but he has no idea what the pain is like...sometimes i just feel like breaking his pelvis so he knows!!

    But im excited about the upcoming week....hoping the botox goes well and that im not too drugged to take my regents exams!!! Please pray for me. I will update either when i get home after the botox( fly in and out the same day) or the day after to let yyou know how everything goes... Thank you so much for the support and prayers. Its wonderful to have a group of people who knows what im going through..without it i have no idea where i would be. Thanks again and sorry its so looooong!!!

    Laura

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  • deborah bush
    ICN Member

  • deborah bush
    replied
    Laura, Will you please answer my private message for me!!

    Deborah Bush

    Leave a comment:

  • NTHottie14
    ICN Member

  • NTHottie14
    replied
    thanks

    Thanks so much. I just cant wait to get it done and over with especially the regents.
    Laura

    Leave a comment:

  • realitygirl
    IC Friend

  • realitygirl
    replied
    What does IC pain feel like?

    Laura,

    To me giving birth was much easier than having IC pain. At least with giving birth the pain would eventually go away. IC does resemble being hit with a baseball bat or being kicked every 5 minutes in the pelvic area. (Your dad can probably relate more to the being kicked part!).

    Best of luck on your regents.
    Sandy

    Leave a comment:

  • NTHottie14
    ICN Member

  • NTHottie14
    replied
    pain

    I have severe muscles spasms in the pelvic muscles. My bladder has been doing great. No urgency or freq......only when i have an infection which is about every couple months. Ive been able to go back eating and drinking everything with no problem. The pelvic pain is just the worse thing in the world. My mom and dad are wondering.....what does the pain feel like to you guys?? My mom sometimes wonders if it feels like giving birth but i really dont know how to explain it. So how do you explain your pelvic pain as being????
    To me its like getting hit in the pelviis with a baseball bat over and over again. AHHH! But thanks for all the prayers and help!!!
    Laura

    Leave a comment:

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