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  • botox when there is no bladder

    ive had my bladder out for yrs but still have chronic vagial and retum pain, 24/7 i wonder if botox in the vaginal walls r how ever would help. id try it for sure
    dx'd i.c in 96,too many treatments and meds to remember before badder removed in 2000.pain returned..has since been on roller coster of narcs ad other things..3 suicial att..went into hosp to withdrawl from sooo many narcs and wt. got down to 85lbs....came out eating small amounts ad keeping them down..the only pain med was ultram 50mg q 6 hrs..and gabapintien sorry..can spell..600 mg q 6 hrs..in 2003..nowin 2006-ive had mesh pulled from myvaginal walls 3 timesso pain is severe again but also in rectum now..had to add hydro/app q 4 hrs.!!!but i still pray there is hope..i just need o find it.

  • #2
    I have no idea, but the rectal pain drives me nuts and I have yet to find anything to help easy it.

    Luckliy for me I don't get it too often.

    It feels like I am sitting on a baseball, or have it in my rectum.

    Botox is not an option for me as I have severe urinary retention.

    I am now self cathing. So once I get the hang of this maybe botox will be an option. I was told I could not use it as it would make my retention worse, but if I have to cath to go whats the difference.

    I had really good success with botox for migraines.

    Keep us posted if you find anything out about this option for you.

    Thanks MG
    My are with you all. May you all find a way to peace and joy in your lives.

    Comment


    • #3
      Just a thought: if botox causes retention in the bladder for some people, would it cause the muscles in the bowel not to work propperly and cause constipation.

      Each time I had it for migraine I could raise my eyebrows for 3 mons, just in time to get it again.

      having said that C seems to go with IC for a lot of people so if you have to treat that already would it make any difference.

      MG
      My are with you all. May you all find a way to peace and joy in your lives.

      Comment


      • #4
        personal experience

        I have had botox done & it has been quite helpful as far as any of the treatments that i have tried. I suffer from retention & although the first 2 weeks or so the botox causes a little more difficulty in voiding, it wears off & the relief outweighs this side effect. botox is not permanent...

        I know that everyone worries about retention & having to self cath for the rest of their lives with this treatment, but i think its important to remember that if done correctly, the treatment can be a success. I can't say that everyone should try this treatment, but im just simply saying that weighing the options a little further, and looking past the retention aspect, there can be quite a benefit from this.

        I say if you are debating on doing any sort of treatment because you "heard" and read and so on and so on, it might be a whole lot simplier if you just kept an open mind rather than completely wiping off botox from the list of things to "try"...just my two cents.

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        • #5
          botox

          Have heard lot success stories re botox and OAB
          Anyone know if botox for IC? Are drs. doing it.

          Comment


          • #6
            I don't know if this helps anyone, but I'm very sensitive to urine retention. I however haven't had it since the botox injections 2 and a half months to go. It's harder to empty though.

            Comment


            • #7
              Botox injections

              I am scheduled to have the botox injections on thursday .. I am worried because lately I have had to have many different times of having foley caths in because I could not pee at all one time my bladder got so bad it had 900 cc's of fluid in it talk about severe kill me now pain.. but now they have thought me how to self cath and that does help at some points however the pain I feel on a daily basis is horrible right now they have me on valuim suppository gel which seems to help (most days.. BUT NOT TODAY ) other than that I am nervous about how my body will react to this medicine as I have weird reactions to alot of things.. such as when the doc did the last instill on me of lidocaine and sodium bicarobonate it sent me so far back and into so much pain..that is when the doc started the valuim.. so i am scared to death as to how I will react to the botox on thursday... praying it helps because honestly I AM DONE
              Last edited by ICNDonna; 11-14-2011, 04:08 AM.


              With all the pain in the world comes love and hope.. For someday they will find the cures for all the pain we suffer and just take it all away and we can again be pain free and enjoy life.. and remember those who suffer the same pains and sorrows are usually the ones with the most understanding hearts
              Hugs and Loves
              Melinda


              Multiple health issues.. IC , Type 2 diabetic, Knee problems (7 surgeries), Fibromyalgia, Cystoscope with botox injections done on 11/17/11, Hystorectomy in 2005, Asthma, Migraines, High BP, High colestoral, pseudotumor cerebri and Depression..

              Comment


              • #8
                botox

                Originally posted by georgecoolname View Post
                I don't know if this helps anyone, but I'm very sensitive to urine retention. I however haven't had it since the botox injections 2 and a half months to go. It's harder to empty though.
                georgecoolname-- your name sounds like male--me also. you mentioned sensitive to urine retention--if you did not urinate for a bit (no toilet around), did you ever go in retention and have to self cath? Do you know exactly where you had botox injected? if in bladder: lower portion or upper? I am told by Drs it makes a difference--apparently lower often works best, but not certain. Assume injections were in bladder--if not, where? Many thanks!

                Comment


                • #9
                  botox injections

                  My daughter has been suffering from IC for over 2 years. She has severe pelvic pain. She does not have urgency, but rather retention. At the beginning of August, she had Botox injections in her vaginal area. It HELPED! She had her 2nd round of injections last Monday. This has not been a cure-all. It has made it possible for her to function. She does have terrible opiate caused constipation and is on Amitiza and Relistor. It takes that combination to work. Thank goodness for them though because nothing else worked.
                  She is on several medications, but there is another thing that is new to us that has helped - compounded creams. A pharmacist friend told me about them and sent information with me to her doctor. These are creams that helps with pain in her legs, arms, hips, and she also rubs it on her tummy where her bladder is. It does not have the side effects as medicine taken by mouth.
                  I pray that this will help someone to find a little relief. I have been an avid reader for the past 2 years trying to find any ideas that might help.

                  Comment


                  • #10
                    Inoble,

                    Thank you for posting this I hope your daughter continues to do well.
                    Frequency/Urgency, Mild Pain, Spasms, Pressure

                    I have tried:
                    Bladder Spasm medications and antidepressants - all cause mydriasis
                    Antihistimine - Mydriasis
                    Cyclosporine - side effects
                    Elmiron - side effects
                    Interstim
                    Botox - can't pee but need to all the time
                    Mild Hyrdo
                    My 11 year old german shepherd taken away because I am no longer able to care for him. Feeling yet another failure.

                    I am trying:
                    Omega 3
                    IC and anti oxalate diet but staying on Cystoprotek
                    Acacia Fiber (helping some)
                    Hugs and Kisses from my German Shepherd

                    Comment


                    • #11
                      Sorry 8-ball, late reply. I am a female. I've had to self-cath before due to being in retention. I'm not what part of the bladder it was injected.

                      georgecoolname-- your name sounds like male--me also. you mentioned sensitive to urine retention--if you did not urinate for a bit (no toilet around), did you ever go in retention and have to self cath? Do you know exactly where you had botox injected? if in bladder: lower portion or upper? I am told by Drs it makes a difference--apparently lower often works best, but not certain. Assume injections were in bladder--if not, where? Many thanks!

                      Comment

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