Announcement

Collapse
No announcement yet.

Botox for Migraines: What's your experience with its effect on bladder?

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Botox for Migraines: What's your experience with its effect on bladder?

    Hi,
    Like a lot of posters, I suffer from migraines as well as IC (which is usually under control, thanks to a strict adherence to the IC diet, and aloe vera supplements). The migraines, however, have gotten progressively more painful and more frequent. My neurologist has agreed to give me Botox injections for the migraines but I'm nervous about its effect possible on my bladder. *The fine print on the Botox home page says that one of the most common side effects is urinary retention and warns that you may have to learn how to catheterize yourself, but that seems to apply only to Botox injections in the bladder.
    Can anyone who has had Botox for migraines weigh in on their experience?
    Thanks,
    Ellen
    Last edited by egrolman; 04-12-2018, 01:52 AM.

  • #2
    Re: Botox for Migraines: What's your experience with its effect on bladder?

    One thing you might do is learn how to catheterize yourself --- then if you ever have a need to go that direction, you'll know how and it won't be as upsetting. I learned how to do this a lot of years ago and it's not hard after the first few times.

    Warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Re: Botox for Migraines: What's your experience with its effect on bladder?

      Retention with botox is when it is put directly into the bladder. Catheterizing is very easy. An IC nurse taught me to catheterize within 2 minutes. I do think learning to self-catheterize is an important skill for all ICers.

      Current Meds:
      1 Elmiron 100mg 3x a day
      1 Cimetidine 300mg 2x a day
      4 Gabapentin 300mg 3x a day (3600mg)
      1 - 2 Atarax 25mg at bedtime
      1 baclofen 10mg 3x a day as needed
      200mg of Pyridium 3x a day (usually do in cycles - on for a week or two as needed) - I am very careful about this.
      2 belladonna and opium suppositories as needed for pain daily.
      Bladder instillations (Lidocaine, Heparin, & Sodium Bicarbonate)

      I have tried but failed -
      lidocaine instillations, heparin instillations, oxybutynin by mouth also called ditropan, tylenol 3s with coedine, cyclobenzaphrine, Ativan, vesicare, Oxytrol patches worked for 3 to 4 years and then failed, I tried Uracyst and had some success but my urologist felt that it was not successful so we moved on to trying something else. .
      [/I]

      Comment


      • #4
        Re: Botox for Migraines: What's your experience with its effect on bladder?

        I should add that I know a few people who have used botox for migraines and they have had great success.

        Current Meds:
        1 Elmiron 100mg 3x a day
        1 Cimetidine 300mg 2x a day
        4 Gabapentin 300mg 3x a day (3600mg)
        1 - 2 Atarax 25mg at bedtime
        1 baclofen 10mg 3x a day as needed
        200mg of Pyridium 3x a day (usually do in cycles - on for a week or two as needed) - I am very careful about this.
        2 belladonna and opium suppositories as needed for pain daily.
        Bladder instillations (Lidocaine, Heparin, & Sodium Bicarbonate)

        I have tried but failed -
        lidocaine instillations, heparin instillations, oxybutynin by mouth also called ditropan, tylenol 3s with coedine, cyclobenzaphrine, Ativan, vesicare, Oxytrol patches worked for 3 to 4 years and then failed, I tried Uracyst and had some success but my urologist felt that it was not successful so we moved on to trying something else. .
        [/I]

        Comment


        • #5
          Re: Botox for Migraines: What's your experience with its effect on bladder?

          I also have a friend who has had great success using Botox for her migraines! She does not have ic. I, however, have had Botox for crows feet and it has absolutely no effect on my bladder! I think it MAY cause retention in some people when used in their bladder, but most have good success.

          Comment


          • #6
            Re: Botox for Migraines: What's your experience with its effect on bladder?

            I have botox for migraines every three months. For the first time in 15 years, I am migraine free! Totally! No more imitrex. Since the injections are so localized, I am sure they are more bladder friendly than the migraine meds. My IC specialist said no problem. I have been getting the migraine botox for about four years.
            Elmiron 300 mg day
            Nortriptyline 25 mgs
            Desert Harvest Aloe Vera
            Hydroxizine, Uribel
            Cysto Protek, Marshmallow Root
            Probiotic, Prelief, Klonopin
            Gabapentin, Tramadol, Kratom
            Vaginal Valium 10mg
            Mupirocin, Triamcinolone, lidocaine ointments.
            Saginil Gel, Vmagic salve, Estriol
            40 oz distilled only water per day
            Therawand and magnetic dialator
            Botox pelvic floor, Fulguration, Pudental Nerve Block, Kenelog injections, Trigger Points, PT

            Comment

            Working...
            X