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Scheduled my Botox procedure

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  • Scheduled my Botox procedure

    Hi I've been dealing with IC since I was 16 and Im 29 and I have done everything to help my frequency urgency incontinence plenty of bladder infections and I done everything froms bladder meds to interstim and nothing works and Botox is going to be my last try. I don't what to do anymore. :/ So I really hope this helps and that I won't have to self Cath after.

  • #2
    Re: Scheduled my Botox procedure

    I wish you the best of luck. I"m a guy, and they don't recommend botox to guys because of the possibility of needing to self cath. My main and pretty much only problem is pain/discomfort. It is mostly when I"m sitting.

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    • #3
      Re: Scheduled my Botox procedure

      Originally posted by Bunnygirl1 View Post
      Hi I've been dealing with IC since I was 16 and Im 29 and I have done everything to help my frequency urgency incontinence plenty of bladder infections and I done everything froms bladder meds to interstim and nothing works and Botox is going to be my last try. I don't what to do anymore. :/ So I really hope this helps and that I won't have to self Cath after.


      I hope botox will help.


      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

      Comment


      • #4
        Re: Scheduled my Botox procedure

        Hi, I am also 29 but only been dealing with IC for a couple years so I am still new in trying different treatments. I had Botox directly in my bladder (not pelvic floor) in June, I think it was 100cc's. The actual procedure was quick and not nearly as painful as I thought it would be. Before the Botox I was going to the restroom close to every 15 minutes but didn't have any incontinence. I did get retention afterwords which is a very weird feeling. I did have to catheterize 4-5 times a day for around 6 weeks. I have been doing daily bladder installations so thankfully catheters aren't traumatizing to me. There's so many compact catheters that it was a social issue of people noticing. Having to cath multiple time a day is mush better than the never ending frequency. I can go 2 hours between using the restroom now but I'm feeling it fading away slowly. I really hope it works. When are you having it done?
        Current treatments: Botox, Bladder installations, Elmiron, Amitriptyline, Gabapentin, Hydroxyzine, Sprix.

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        • #5
          Re: Scheduled my Botox procedure

          Im really nevous about having to self Cath. Ive been tramuatized. Im having it done Dec 14

          Comment


          • #6
            Re: Scheduled my Botox procedure

            Well there's a small chance of having retention. I see Dr. Robert Evans and he told me the dosage of Botox they use for the first time in a IC patient only has a 10% chance of retention. Have you used the red rubber catheters before? Thats what I use for installations and I was never good at cathing when using those and they cause irritation. Also, when I was going to an old urologist his office would use an 16 french size which is way to be for a women. Average size women need is 12 or 14 and some use smaller than an 12. I got hydrophilic catheters after the botox and those are so much easier to use and don't cause pain.
            Current treatments: Botox, Bladder installations, Elmiron, Amitriptyline, Gabapentin, Hydroxyzine, Sprix.

            Comment


            • #7
              Re: Scheduled my Botox procedure

              I have never use a catheter before

              Comment


              • #8
                Re: Scheduled my Botox procedure

                If you've lived with IC than cathing is nothing, you've been through far worse than cathing I'm sure. It's just like using a tampon. At first you have no idea what your doing and scared but after a few times it's something that you don't even think about.
                Current treatments: Botox, Bladder installations, Elmiron, Amitriptyline, Gabapentin, Hydroxyzine, Sprix.

                Comment


                • #9
                  Re: Scheduled my Botox procedure

                  Originally posted by Bunnygirl1 View Post
                  Im really nevous about having to self Cath. Ive been tramuatized. Im having it done Dec 14
                  You might want to have a self cath lesson before your procedure --- once you learn how, you won't worry so much about it. I'll admit that my first couple of times were scary, but after that, no problem. I haven't had to catheterize recently, but if I do, I can do it with no problem. Once I learned how, it gave me a comfortable feeling just knowing that I'll never again have to make a middle-of-the-night trip to emergency room to get me out of pain.

                  Good luck!
                  Donna
                  Stay safe


                  Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                  Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                  Have you checked the ICN Shop?
                  Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                  Patient Help: http://www.ic-network.com/patientlinks.html

                  Sub-types https://www.ic-network.com/five-pote...markably-well/

                  Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                  AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                  I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                  [3MG]

                  Anyone who says something is foolproof hasn't met a determined fool

                  Comment


                  • #10
                    Re: Scheduled my Botox procedure

                    I totally agree with Donna. I went to the ER in total retention, the nurse asked when the last time I voided was, she decided it had not been long enough to be a problem, which may be true for most people but not for people who don’t empty before hand. I was in agony, she just ignored me. I learnt to self cath, I will never be put in that position again.
                    My are with you all. May you all find a way to peace and joy in your lives.

                    Comment


                    • #11
                      Re: Scheduled my Botox procedure

                      Originally posted by Mothergoose View Post
                      I totally agree with Donna. I went to the ER in total retention, the nurse asked when the last time I voided was, she decided it had not been long enough to be a problem, which may be true for most people but not for people who don’t empty before hand. I was in agony, she just ignored me. I learnt to self cath, I will never be put in that position again.
                      I did that just once. By the time I realized I couldn't urinate, it was already very uncomfortable --- by the time we drove the 45 minutes to the hospital, then waited in a crowded waiting room for what seemed like an eternity, my pain level was above a 10. After I learned how to catheterize myself I was able to do my own instillations so learning was a double benefit.

                      Donna
                      Stay safe


                      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                      Have you checked the ICN Shop?
                      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                      Patient Help: http://www.ic-network.com/patientlinks.html

                      Sub-types https://www.ic-network.com/five-pote...markably-well/

                      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                      [3MG]

                      Anyone who says something is foolproof hasn't met a determined fool

                      Comment


                      • #12
                        Re: Scheduled my Botox procedure

                        Donna May I ask what your story with IC is? Is see youboffering lots of support on this forum and was wondering if you are in remission or are you still struggling with ic?

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                        • #13
                          I've been having to self cath recently a couple times a day...it's no big deal (and I'm a man). I usually have to self cath once a night when I get up and at times during the day, but not too often. This all started when I had a procedure done and was put under...when I came to I couldn't pee. I ended up in the ER twice that night.....I've never been in so much pain in all my life. I kid you not. Relief isn't spelled Rolaids (for the older folks here who remember that commercial)..Relief is spelled CATHETER!!!! I could have hugged and kissed the nurse when they finally cathed me. Before they finally cathed me I was in total agony.... Words can't describe the pain. I was petrified of catheters in the past, but don't give it a second thought now. I use a #10 French. I have had no problems with infections, but I'm very careful about having clean hands when I cath, etc. I'm having to cath less and less, so hopefully I won't have to at all soon, but if I do I know it will be no big deal. I'll just make sure I have some on hand just in case.

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