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Need info on Cyclosporine

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  • Need info on Cyclosporine

    Just wondering if anyone out there is taking this medication. I have a appointment in three weeks to do blood work to start taking this medication and so far I'm scared to death. I didn't realize what type of medication this was.
    Last edited by Thingone; 05-19-2011, 07:58 AM.
    Diagnosis: Endometriosis, IC, PID, PCS, PFD, PN/PNE, VV, fibro, Pelvic Adhesions, DDD, Hysterectomy at a young age. Unable to take estrogen, causes pain—extremely bad pain.

    Thankful: For all the support and comfort I receive on this site.

  • #2
    I hope the personal message helps. On the main Cyclosporine feed I have been trying to keep everyone updated so they know what to expect if they choose to start the medication.

    I'm doing great on the medication! I have very few side effects and so far my labs have been great.

    I'm feeling about 40 percent better and that is a huge blessing. Feel free to ask me any questions you have.

    To me starting this medication was my last hope. I didn't respond to other treatments and am not a canadate to have my bladder removed after several intestinal surgeries. It just felt right to try cyclosporine and I'm REALLY glad I did. It wasn't an easy choice to make, but the pros out-weighed the cons for me.

    I hope this helps you and others.


    • #3
      How are you feeling now? What type of medication is Cyclosporine? Ive tried it all including nerve stimulation and nothing helps!

      Nancy - newly remarried Sept 2011! Have 5 kids ages 7-22.

      Had a UTI in Oct 2009
      IC symptoms started immediately: strong urgency, little bit of burning, fullness in the bladder, urethera spasms

      Had three scopes of my bladder and one hydrodystention-this did not help at all. Found classic bleeding during the hydro. Later told almost everyones bladder bleed the test Also had a urodynamics test-normal. Did anyone have it done more than once? My newest urogynocologist does not believe

      Diagnosed fibromyalgia/lyme disease in 1999
      Acid reflux since 1998

      Have tried the following therapies:
      pelvic floor PT-relaxed the muscles but did nothing for the urgency feeling.
      Ativan-helps some
      Vicodin-some relief.
      ditropan-only caused fluid retention
      toviaz-same as abovee
      detrol-no relief
      hydroxyzine-get some relief but not for urgency
      valium-helps relax the muscles
      flexeril-same as the valium
      B&O suppositories-they help a little
      started estrogen cream
      starting effexor soon

      Had an interstim placed in 2010. Do not really notice any changes with the urgency feeling. I turned it off 6 mos ago.

      current meds and treatment:
      valium suppositories
      IC diet
      methenamine mandalate
      estrogen cream
      B&O suppositories

      Had bladder instills but this made the urethra spasms much worse.

      Had hernia repair with fundoplication dec, 2011

      Will be trying the anti inflammatory diet. Hope it works. I dont know where to start with this diet.

      Always looking for ideas on how to stop urethra spasms and urgency. Anyone in the Colorado Area? Always looking for support.

      Husband is my biggest supporter. I need the urgency to go away. What helps??