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  • PFDorIC
    replied
    I have Type I (formerly known as "juvenile") diabetes, which is an autoimmune disease--and I do feel there is some connection. There are other autoimmune diseases in my family.

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  • Claire_A
    replied
    Lupus

    My mum has Lupus and various other things.

    It HAS to be connected. I have often wondered about taking my mums immune suppressants to see what happens.

    She takes this supp called Max-gsl which she is doing well on this is suggested for auto-immune conditions. I find it interesting because a lot of the suppliments in the product including N-Acety,l Glucosamine, and a few of the stuff in cystoprotek are what I see on this forum.

    Interesting stuff.

    Leave a comment:


  • nekura
    replied
    I just saw my URO yesterday and she suggested I get on Cyclosporine which suppresses the immune system. I questioned her whether this meant she suspected it was auto-immune and she said no, but it WAS an immune issue.

    When I questioned further she said that it seems as though my immune system is making too much of (a word I wish I could for the life of me remember, I think it starts with a c) which is believed to cause irritation (which is why this med is also suggested for crohn's, RA, and other such things). I've always had a very strong immune system, have only had the flu twice in my life, and when I had chickpox I thought it was fun because I wasn't much affected by it 'sides the itching.

    So in other words it's not quite auto-immune, but does seem to have something to do with the immune system.

    EDIT: AHAH! It's these guys -- http://en.wikipedia.org/wiki/Cytokine

    "Inflammation is produced by eicosanoids and cytokines, which are released by injured or infected cells"

    From:http://en.wikipedia.org/wiki/Immune_system#Inflammation

    Those damn lil' bastards,

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  • anniepie1976
    replied
    Oh and to add to that my aunt has IC and Rheumatoid arthritis as well.

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  • anniepie1976
    replied
    My sister has a severe case of Graves disease. I have several family members with autoimmune disorders. My aunt with the most bad luck. I can't remember them all but I know she has Fibromyalgia and ulcerative colitis being I think the worst ones.

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  • Crystal30
    replied
    Drug Trials for a new auto-immune drug for IC patients

    There is a Dr that has been treating IC for over 30 yrs. He believes that IC is auto immune related and has a drug called adalimumab and needs patients to participate in the study (in southern CA).

    The Dr name is Philip C. Bosch, MD. I am interested in partipating in the study but was wondering if anyone else had heard of this Dr and his reputation OR this drug and its side effects?

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  • malone
    replied
    I agree

    This is SO interesting! I without doubt believe there is an auto-immune component to IC. I have had a thyroid problem for years and was just recently diagnosed with A typical(Ithink that is it) gastritis B and further testing found that it is the auto immune kind. I have to get weekly vitamin B12 shots because because vitamin B12 can not get through my stomach lining because of this disease. Interestingly my IC has been much better lately and I have been systematically cutting back on my pain meds! Hope this helps!

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  • phoenixgirl
    replied
    I just had a bunch more blood work done and all of it came back OK (thyroid, liver, glucose, etc.) EXCEPT I tested ANA positive. I now have to go to a rheumatologist for further testing to check for lupus, RA and other autoimmune conditions.

    My only other issues before being diagnosed with IC were migraines and allergies. After getting IC, I discovered that both of those conditions could be considered autoimmune. Now this. I don't think it's a coincidence at all.

    Anyone else here test ANA+?

    Leave a comment:


  • Mothergoose
    replied
    Dito, i think it is autoimmune related, we just get to many autoimmune related conditions that are.

    If fact when I saw my new uro he wondered if I had IC?, when I said I do not have MS, Lupus, chrones, or Fibro, I have been tested.

    But I do have, low thyroid, hypoglycemia, low BP, IBS, arthritis, migraines, VV,low immunity, sleep issues, many allergies to foods and meds. (I am sure I am forgetting somethings)

    Also a biggie for me is urinary retention, so he is leaning to wards it is all from the retention.

    My last Uro, whom I loved had to suddenly close his practice for some reason, so I am in the search for a new Uro who gets it all, ( fun, fun. fun)

    My last Uro did a 3rd Cysto in a 8 mon period, he was the only one who did it under anesthetic and said I clearly have all the tell tale makers of IC in my bladder, could not figure out why previous Uros could not see it. He decided I have a big flabby bladder and he needed to fill it a lot more than a normal IC bladder in order to see the IC, so he figured because the other Uros had not put me out for the Cysto, they were not able to fill my bladder enough to see the bleeding etc. and that they had not taken into consideration that my bladder is a big as it is from being stretched out for years from retention.

    I figure I have had IC all my life, so who knows which came first, the IC or retention. I know as a kid I was always in trouble in school because I could not make an hour class without having to leave to pee. I always needed to pee more often than my friends, it was not till much later in life when they figured out I would get frequent UTI's without symptoms of them and with immunity problems the UTI's only show if cultured.

    For years I just had the frequency and urgency that I was aware of and I never told my Dr. I figured it was normal. In my teens the never ending pelvic pain started but no ever related it to my bladder, it was always thought to be female problems. I had all the symptoms of VV which were treated endlessly as yeast infections. Then in my mid 30's I got a kidney infection which I could not get rid of, this escalated all the symptoms and more.

    Nobody still put it together, it let me with kidney pain for a year, then I went back to normal symptom's for a while till the next bad kidney infections, then multiple kidney stones, after this things never did go back to normal for me.

    After many hours of researching and many, many Dr's of all sorts, finally a Dr. put it all together with my constant prodding about what I had being reading that my problems were probably bladder related.

    I think nobody can have this many problems and it not be autoimmune related in someway, I am not too sure which comes first, I just thinks things snowball once you get one thing.

    Here hoping someday soon someone researches it enough to figure this out, maybe this is where a cure lies.

    Best wishes to everyone MG

    Leave a comment:


  • irfran
    replied
    I also think IC is an autoimmune disease.

    First, I got vitiligo (about 35 or so years ago). Then thyroid disease and next is IC. Of course, there is a little arthritis thrown in for good measure.

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  • mouse
    replied
    I think there is definitely an auto immune component to this. The doctors always tell me that my body acts like it is attacking itself but they can't figure out why. I have internal adhesions all over my pelvic floor, bladder, uterus, colon and small intestines. I recently found out that I have major (severe) food allergies to dairy and eggs (minor for wheat) yet nothing really happens when I eat them and I've eaten dairy and eggs my entire life!!

    I also have fibro, endo, chronic kidneystones, IBS (which could have been cause by eating allergens), adrenal stress disorder, chronic fatigue syndrome, and a malabsorption disoder.....My body is not absorbing nutrients,vitamins and minerals. Oh and now I am getting vitaligo

    If you look on the boards you will see that no one really just has IC....Most of us have a cluster of disorders which I think is an auto immune response.....but to what?????

    Leave a comment:


  • bubbe1
    replied
    autoimmune

    Originally posted by Linda May View Post
    No, but its odd that my aunt and cousin had it.
    That IS interesting.

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  • Linda May
    replied
    No, but its odd that my aunt and cousin had it.

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  • bubbe1
    replied
    autoimmune connection

    My brother has Multiple Sclerosis, which I believe, but positive, is considered an autimmune disease.

    This is an interesting thread. I hope you get some more responses.

    Leave a comment:


  • ICNDonna
    replied
    My family has a lot of diabetics and asthmatics, but not the ones you mentioned.

    Donna

    Leave a comment:

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