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LiRIS 400 (lidocaine pretzel) trials are underway again!!

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  • LiRIS 400 (lidocaine pretzel) trials are underway again!!

    LiRIS 400 clinical trails are now recruiting again! I am trying to get into the clinical trial taking place in Glendora, Ca. I really hope I get in and this helps! If it works it would be a godsend for us suffering from this horrible affliction!

    Here is the clinical trails website for it.

    http://clinicaltrials.gov/ct2/show/NCT01824303

  • #2
    This is the study my urologist wants me to be part of. I have to be honest the thought about being part of a study SCARES me but I would LOVE TO BE PAIN FREE at the same time.

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    • #3
      Originally posted by Linybaby View Post
      This is the study my urologist wants me to be part of. I have to be honest the thought about being part of a study SCARES me but I would LOVE TO BE PAIN FREE at the same time.
      One of the good things about the trials is that those participating are closely followed medically. I would love to participate, but doubt I would qualify since I'm on a program with a Pain Management Specialist.

      Hugs,
      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        Re: LiRIS 400 (lidocaine pretzel) trials are underway again!!

        Hi Donna, This is Sharon Davis. I saw your comment above about you "doubting that you would qualify for the Liris study because your on pain management. Well, I checked into one recruiting in NC and the lady said that participants were allowed "I think" as many as 20 doses a week of Oxycodone. Anyway, if you fall within those guidelines, at least in that particular study, pain meds don't necessarily disqualify you. I am first on the list to participate in the Liris trial at my local hospital. It is supposed to be coming soon. I don't know what the guidelines are going to be here. I think each study has their own rules. You might check on one nearest you. You might be surprised at what is allowed. Elmiron was also allowed in the one in NC. Just thought I'd let you know.

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        • #5
          Re: LiRIS 400 (lidocaine pretzel) trials are underway again!!

          Even at that, I don't quite make it --- I'm on 28 Norco a week plus 15 mg morphine daily via pain pump.

          Thank you for being willing to participate --- maybe down the line it will be a better answer for me.

          Huuugs,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            Re: LiRIS 400 (lidocaine pretzel) trials are underway again!!

            Donna,

            OH BOY!! And I thought I had it rough!! You seem to stay so positive even in the face of all that! Praying for you. Sharon

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            • #7
              Re: LiRIS 400 (lidocaine pretzel) trials are underway again!!

              I am currently participating in the Liris study. The device was inserted Friday, April 25, 2014. I am in the first phase where 50% get the real thing and 50% get a placebo. 2nd phase starts in about 6 wks where we are all guaranteed to get the real thing. I am posting detailed accounts/updates of my experience whether good or bad. I did not notice the title to this thread, or I would have posted the story under this thread. I am posting these updates under the thread entitled, "Liris NEWS! TARIS launches Phase 2 started by Jill some time ago. Anyone interested can look under that thread for my entry dated April 26, 2014 by Lou Lou girl

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