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  • #1

    ditropan?

    I just read on another IC site that Ditropan is not for long term use by IC patients. The site did not give a reason or any explanation. My doctor has not said anything like that to me.

    But I found this upsetting, because I don't think I'd get any sleep without the Ditropan. (I only take 5 mg. at night, unless I'm flaring really bad, then I'll add a half tablet in daytime if at work).

    Does this have any basis that any of you have heard of? (Preferably with a reference.)

    Thanks.
    Kadi

    -------------------------------------------------------------
    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    ------------------------------------------------------


    New favorite quote: "God gives us only what we can handle. Apparently God thinks I'm a bad-ass" ~Author Unknown
    Source - Pinterest
    "

    Current treatments:
    -IC diet
    -Elavil 50mg at night
    -Continuous use birth control pills (4-5 periods/year)
    -Heparin/Marcaine/Sodium Bicarb home instills at night 3-4x per week, more often if needed
    -Pyridium if needed,
    -Pain medicine at bedtime daily, as needed during the day several times per week
    -Antibiotic when doing an instillation to prevent UTI
    -Colace & SmartFiber to treat chronic constipation from meds, Fleet enema as needed
    -Dye Free Benadryl 50 mg at bedtime
    -"Your Pace Yoga: Relieving Pelvic Pain" dvd, walking, treadmill at gym
    -Managing stress= VERY important!
    -Fur therapy: Hugging the cat!
    Tags: None
  • #2
    I started taking Ditropan xl this month. I take one 5 mg. every morning. I have not heard that it was not for long term use so I would be interested to know about this also.
    Pam

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    • #3
      i'm not sure but i have taking the xl before and what i read about it it was not for long term use and for those that get uti alot it can give them a uti.
      now i found that on there site. i didnt have to use it that long i used it for bladder spasm and it didnt help me much best of luck. grouphug
      Medicine taken daily or as needed:
      1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
      2. MS.Cotin 100mg 3x daily
      3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
      4. Fentanyl 100 mg Change every 48hrs.
      5. Gentamicin 80mg install after each rescue treatment
      5 Leviquin 500mg self start as needed.
      6. Klonopin 1 or 2 daily as needed.
      7. Prosed/DS as 1 every 6hrs as needed.





      I have IC, but IC doesn't have me anymore!

      Comment

      • #4
        I have never heard that before, Kadi. I have heard of a lot of people taking it long term.
        Kim

        Diagnosed August 2001

        Current IC meds: Elmiron (since 2001), Levaquin (one pill after intercourse to prevent UTIs), Effexor (for depression & anxiety)

        Past IC meds: Amitriptyline (Elavil), Hydroxyzine (Vistaril), Detrol LA, Lexapro (for depression & anxiety, but also helped my IC) (They all helped, but I was able to discontinue them.)

        I've been virtually symptom free and able to eat & drink whatever I'd like for about 8 years now.

        *****************************

        “We who lived in concentration camps can remember the men who walked through the huts comforting others, giving away their last piece of bread. They may have been few in number, but they offer sufficient proof that everything can be taken from a man but one thing: the last of the human freedoms -- to choose one's attitude in any given set of circumstances, to choose one's own way.” ~ Viktor Frankl

        “You cannot control what happens to you, but you can control your attitude toward what happens to you, and in that, you will be mastering change rather than allowing it to master you.” ~ Brian Tracy

        Comment

        • #5
          My daughter (6) has IC and has been on ditropan xl since last June with no plans to have her come off of it. It has helped her reduce the frequency greatly! Now she can play like other 6 year olds without going to the bathroom 4-6 times an hour. I do not notice any side effects.

          Comment

          • #6
            that is wonderful news i'm glad it is helping your child its bad enough having ic when adult but poor little children its just not right but thank God it is helping her. grouphug
            Medicine taken daily or as needed:
            1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
            2. MS.Cotin 100mg 3x daily
            3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
            4. Fentanyl 100 mg Change every 48hrs.
            5. Gentamicin 80mg install after each rescue treatment
            5 Leviquin 500mg self start as needed.
            6. Klonopin 1 or 2 daily as needed.
            7. Prosed/DS as 1 every 6hrs as needed.





            I have IC, but IC doesn't have me anymore!

            Comment

            • #7
              I think whatever helps we should be grateful for. I do know, however...some patients can't take it because it causes retention and makes it so that the bladder gets lazy and won't empty. Hence, the symptoms get nastier. That happened to me with ditropan...man...I couldn't pee even though I was desperate. So, my uro says that can happen, especially with long term use. (it only took like one week for me )

              I hope it continues to works for all you it works for. It bit for me blah

              Bye
              I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

              Medications I CURRENTLY take:
              90 mgs Ms contin (45 mgs Am/PM)
              Percocet as needed
              Topomax 100mg day
              Ambien 10 mg bed
              desipramine 25 mgs




              If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
              Albert Einstein

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