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Nerve Block? SOMEONE PLEASE RESPOND

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  • JessicainArkansas
    replied
    You are worth all the bills that are about to show up in the mail box for your nerve blocks! You deserve any treatment that there is to get you feeling better, Remember I told you about the hospitalization, well my husband said" Who do you think we are the Osbournes?, we cannot afford to take you to the Looney Bin," and this was after two Doctor apointments, calling the EMS out to the house cause I cold not breath and I though I was having a heart attack and an all day ER experience from Hell. The ER told me it was just a "little pittely panick disorder and to start taking my Wellbutrin which I believed to be causing the symptoms of panick and anxiety.
    Well after the Loonery Bin stay things got worse again with the panick and on Feb. 1 2003, I went back into the doctor office and he said that the Psychiatrist that doubled me up on Wellbutrin was the worst drug I could be taking, in his book of side effects the number one side effect is Central Nervouse System upset, panic, mania, parinoia, good going guy's , You went to 8 years of school to put me on drugs like that to exaserbate the problems!!
    Do not worry about the money it will come somehow, I racked up almost $10,000 worth of them with all this that started the night of October 29, 2003 and ended on Nov 3 2003.
    I still fight the battle but I will not let the bills deter me from being a happy and semi-healthy human being, the $ will come , it will take 5 or 6 years to pay off but make the payment arrangements now, before the bills come, tell them what you can afford, I give 12 different doc's $25.00 a month and someday. I am not going to worry about it, they will be paid off eventually.

    Much luck without worries for you and your husband!
    JessicainArkansas

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  • Solfish37
    replied
    Well...I went to the pain doc...asked MANY questions about the procedure. He was very good this time, listened to all my fears, and had said he had gotten a note from my counselor regarding my fears. (I allow exchange of info between him, counselor, uro, and GP) He said he had already decided to use Versed with me so that's a BIG relief. What I did not know is this is just a diagnositic procedure. If the pain in my pelvis (not bladder, but pelvis) goes away, it tells the doc those are the nerve fibers that are too active. He has todo something to shut them down...Ablation (burning), or a spinal stimulator, or something. "Sigh"

    I'm off to see my counselor today. Plenty to discuss. My husband doesn't want to take to te procedure (too much to do at work), We're fighting about money (never ending battle)

    GRRR....T

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  • Solfish37
    replied
    Well...I've spent the past week brooding over this thing. And still in pain. Sucks. They're all congratulating each other for coming up with a plan, that took 2 weeks to come up with, I see the pain doc on Thurs for a consult...who knows the procedure will be done. SO...while I wait, I hurt. I'm doing everything legal and maybe not quite so to get rid of this damn pain. I'm tired of the curled in ball sleep position, 3-5 nighttime uncoordinated staggers to the can, and the unrelenting pain in my gut .

    OK>>>I'll quit complaining...gotta put Kelsey tobed. Good night.

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  • dixiefireball
    replied
    I hope you feel better soon good luck and keep us updated. grouphug

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  • Solfish37
    replied
    I go to a counselor who specializes in chronic pain patients. I scored high on a "potential to harm self" exam so not only do I get to see him frequently , but he calls me most every day. (guess to make sure I'm still breathing) I told him about this procedure. He knew what it was, but, bless his heart didn't poo poo my fears...(I guess that's why he's a counselor.) He said I had Post traumatic Stress from being stabbed in the back 15 times and the resulting spinal headache. So, he is going to talk to the doc, and discuss different things to help me relax, and maybe make it so I won't even remember the procedure. (I love versed) He also wants me to work on guided visualizations, which works great for me. I just have to be calm before I can start so I do some of the Yoga. (Geez...I am becoming a regular PNW gal...Iswear I'm gettingme some Birkenstocks!)

    Thanks so much...Wierd but the spot where the epidural was messed up hasreally been hurting the last few days...it's all in my mind but my chiropractor actually popped it and massaged out...it still hurts!

    T

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  • ICNJess
    replied
    (((((((((Tracey))))))) that is just awful. What a lot to go through!! I hope you are able to get past your fears--though I understand why you have them.

    Hugs to you,
    jess

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  • Ginny
    replied
    That was a lot to go through at such a young age. I hope you explained that to the doctor that wants to do the nerve blocks. I can understand why you would be so scared.
    Ginny

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  • Jeanine
    replied
    I know how stressful new procedures can be. You feel so miserable at the time that you want to do anything to make the pain go away but then....

    I was diagnosed with IC this past July and had bounced from doctor to doctor two years prior before I was actually diagnosed. My biggest complaint is the pain in my right pelvic region but I also have suffered from lower back pain and leg pain.

    After doing much research I decided to go to a Pain Management Specialist to discuss my pelvic pain. After scheduling the appointment, his nurse called and said the doctor would probably do a procedure so I should bring someone to drive me. I could not sleep the night before because of the anxiety but let's face it...if you have IC you have a hard time sleeping anyway.

    I went to see this wonderful doctor and discussed my pain with his nurse, his nurse practioner and to the doctor also. He had me fill out a diagram to show where the actual pain was. After doing so, they discovered that the back pain was from leaky bulging discs (I had brought a ct scan of my back, just in case.)and that the pelvic pain was due to damaged nerve tissue.

    They decided to do two procedures instead of one. I was not to excited about the idea but the thought of being pain free or at least comfortable sounded too good to be true so I had to try it.

    They did trigger point shots into my pelvic ileolinual nerve and then moved me to another table to do the epidural. I have had three of these epidurals with each birth of my boys so I knew it was not going to be fun. At least when you have a baby you know you get a great gift after it is all over.

    Well, I have to tell you that the procedure went very quickly and they did not put me under at all. I have had three procedures since....once every other week. I am amazed at what a difference this has made in my life. I finally have found the hope that I might be able to regain some existance of a normal life again.I spend the majority of my life in bed with my trusty companion, my heating pad.

    After the procedure, they bring you into recovery and have you rest for about an hour. I felt a little nausea so they gave me crackers and water to relieve that problem. I had to have a little support walking for the first hour after I came. I iced both areas and stayed in bed and rested for the next day.

    The first time I had the procedure I felt like I had been completely cured because I was numb in my pelvic area, my back and my legs. I did not feel any pain and could not have been happier. Unfortunately, after the numbness wore off two days later , I was back to the terrible pain I had before. He warned me that this might happen. He said it could take a complete round of many visits since I have had this for such a long time.

    I went yesterday for my third round and he was so impressed with my mobility and the amount of function and feeling I am having again in my back and legs. The knotty feeling I have in my pelvic area is slowly becoming soft like a marshmallow. He told me he has given several IC patients epidurals with great results.

    My hope for you is that you find peace and painless happiness in whatever you decide. The last two times I have went, I have taken my pain med, tramadol, about thirty minutes before I arrive along with a little nibble of crackers. That has made my procedure experience go so much better.

    I am sorry you have had such negative experiences in the past. If they are good health care providers, they will do all they can do to alleviate your fears. Just make sure you express them the best you can.

    You will be in my thoughts and prayers. Please let me know what you decide.

    Sweet Thoughts,

    Jeanine

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  • Solfish37
    replied
    BIG SHUDDER.....y'all have to understand, I have an epidural that went horribly wrong. Just thinking about doing this is making me want to down about 4 or 5 of my valium tablets. And I honestly have tosay, I prob. have been through more medical procedures than the average "joeette"....I was paralyzed for a year at 20 years of age, and to behonest, it's been all down hill since in terms of auto immune (it was auto immune that did the paralysis) I'm seeing my shrink tomorrow. Maybe he can give me some help to get past this because I am ready to just toss my cookies. (girl scout, that is...anyone else got a ton of cookies sitting at their home because of a Brownie living amongst them?)

    Thanks for your support...I will definately demand very politely that I get the versed and make sure he knows my hx with the epidural gone bad.

    you are all great....as my Yoga instructor says...breathe all the way to your diaphragm... Oh yeah..exhale too! Ha, ha...

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  • Ginny
    replied
    I had 5 nerve blocks done. They were a piece of cake. They put you out. You don't feel a thing. It's done once a week for a few weeks.
    Of course, you need someone to drive you home.
    They did not help me at all.

    If you are this scared you don't have to do it. It is your decision, not there's.

    Ginny

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  • ICNJess
    replied
    Tracey,

    When I had mine, I had a versed drip and I was very drowsy, they told me I could sleep if I want to.

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  • Solfish37
    replied
    Okee dokee...we shall see what happens at that moment in time. I will prob be much like my cat was this weekend when he had his 40 stiches and came too, realizing what the heck had happened tohim. (it wasn't pretty)

    Where'd the Greamlins go? I miss 'em!!

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  • dixiefireball
    replied
    the first one they tried i walked out of there fine My legs didnt feel numb but with the second one my legs felt numb from my waist to my knees but i still walked out of there i was ready to go.

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  • Solfish37
    replied
    I still say they, seriously, are going to have me tie me down to do it. I managed to get my mind off if for awhile today then went back to the boards and am now shaky and sweaty again. Hopefully, they will give me versed. I've had that pre op for other stuff and didn't care what theheck they did with me. Turn me upside down and hang me by my toes, I'd giggle all the way through. There will be some serious fighting in mudville without some sedation if they dont give it to me.

    BTW...Did it make your legs feel funny, like an epidural. Thanks for the replies..at least I'm not alone...I slept all day today...that is what stress does to me

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  • dixiefireball
    replied
    I Have had two nerve blocks done threw the spine. it was helpful for me for seven days the first one and the second one lasted 2 weeks. If you decide to do this it could be helpful i was at the point i was sick of taking another pill and was sick of living in pain so i tried it. You may want to give it a shot it might be your answer.
    they give you a local before they begin. so you should be relax.
    good luck hon and let us know what you decide to do.

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