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  • CystaQ

    Good day everyone. Here is my story. I started having problems when I was 17 years old after having a D&C. For many years I was diagnosed with bladder infections. However, when I was 21 someone suggested I visit the urologist who in turn diagnosed me with IC. He put me on Bentyl (which is actually a stomach medicine) and it did nothing for me. I gave up caffeine and that seemed to help with the everyday pain but not my flare-ups. So, about two months ago I had a HORRIBLE flare up and started looking again for cures. I found CystaQ on the net and ordered it. I am 100 times better!!!

    However, now I seem to be having bowel problems. I have read in here that other people have irritable syndrome as well as IC. But, I am not sure if it is from my new supplements or not. Any comments? <img src="graemlins/toilet.gif" border="0" alt="[toilet]" />

  • #2
    Are you also on Elmiron? That makes me have URGENCY of bowel......


    • #3
      It's true, many IC folks have IBS. Stress plays a huge part in both. The only way to figure out what is setting you off is to stop one thing at a time for a week or so and see if you feel better. Just trial and error. Did the Bentyl do anything to help your intestines? It's supposed to be good for that. Good luck.


      • #4
        Seems like this is an old thread but maybe someone will read it...looks like maybe a Pelvic floor Issue as well....should look into it. Since Ive been working on that, I can sure, you know, take care of the ol' BM problems better cause my perineal muscles are stronger.

        Just a thought.
        I.C. DX'd following my "second hysterectomy" (the remaining ovary, that kept bursting and bleeding 2 years after my hyster/right oompherectomy, was removed in 2003. I was a special ed teacher. I am now very lost, and feeling rather hopeless in my life.

        Medications I CURRENTLY take:
        90 mgs Ms contin (45 mgs Am/PM)
        Percocet as needed
        Topomax 100mg day
        Ambien 10 mg bed
        desipramine 25 mgs

        If people are good only because they fear punishment, and hope for reward, then we are a sorry lot indeed.
        Albert Einstein


        • #5
          i do hope you are feeling better by now i'm sorry i didnt see this post when it first came out.
          sending you hugs hopes and many prayers
          please let us know how you are doing
          Medicine taken daily or as needed:
          1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
          2. MS.Cotin 100mg 3x daily
          3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
          4. Fentanyl 100 mg Change every 48hrs.
          5. Gentamicin 80mg install after each rescue treatment
          5 Leviquin 500mg self start as needed.
          6. Klonopin 1 or 2 daily as needed.
          7. Prosed/DS as 1 every 6hrs as needed.

          I have IC, but IC doesn't have me anymore!