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  • heating pads

    Has anyone tried using a heating pad? I just bought one b/c sometimes when my urethra starts burning out of the blue I jump in a hot bathtub and that relieves it-------until I get out.....and then it hurts again. So I got a heating pad thinking it would at least allow me to lay in bed and read or watch TV. What do you guys think of using a heating pad? I guess I always overthink things b/c I'm an occupational therapist and I know that we NEVER use heat when people are swollen or obviously inflamed b/c it can actually damage tissues. In those cases we use ice. But ice doesn't work for me. Will I be hurting myself if I use heat? Does anyone know? Any advice would be greatly appreciated.
    Lee Ann
    Current Rx Meds:
    Atarax, Ditropan, Elmiron
    Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
    Hooray for babies!
    Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
    Didn't work for me:
    Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
    IC (Mod-Severe) since 1996

    UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).


    My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...

  • #2
    Hi Leeann

    I cant live without my heating pads and use them all the time. I buy the ones which are safe to use for 12 hours and autamatically swith themselves off.

    My pharmacist said they are safe to use for back pain, bladder/vaginal pain/ period pain etc but dont use them on broken skin.
    I use mine everynight to ease the pain!! Make sure you get one which is safe for night time use as you dont want to burn yourself.

    take care
    x
    Started with symptoms 2004 after a severe infection.
    Was diagnosed with IC Feb 2006 after cystoscopy.
    Diagnosed with vulvodyina and PN in july 2006.
    Dignosed with ME and IBS Oct 2006.
    Currently taking Amytriptaline 50mg, regular pain killers and birth control!
    Also doing IC diet and regular use of heat packs.
    Still struggling with IC and controling my symptoms so looking for some help

    also recently had abnormal pap, CIN III and just had LEEP done 2007

    Comment


    • #3
      LeeAnn if you read some of the posts you will see that for many of us next to our significant others our heating pads are our best friends. I have two, one I keep at home and one I keep at work. There are days that I don't think I would make it through the work day w/o my heating pad. I just rotate it between my lower back and my pelvis as those are the two areas that usually hurt me the most. I hope that you find some help with your new heating pad.
      Christine



      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
      I have tried every oral medication as well as rescue instills and DMSO.

      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
      Also proud mom to the best Bullmastiff on earth, Claus

      Comment


      • #4
        Yep - my heating pad and I have a very special relationship, lol. It's my 2nd one, and it was a sad day when the first one died... But I upgraded with this second one - it has auto-shut off, so if I fall asleep with it on, no worries! And if I can't have it with me (like for work or travel) I have the ThermaCare stick-on heat patches for menstrual pain, they work great as well!!!
        Hugs,
        Tracey
        How do you eat an elephant? One bite at a time...

        Harry arrived 2/23/09!



        *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

        IC Diet Cheat Sheet:
        http://www.ic-network.com/diet/2009icdietlist.pdf



        Dx's:
        IC dx'd Nov 2004
        Lymphocytic Colitis dx'd July 2005
        Possible IBS
        Current IC Meds
        Vistaril 25mg in the evening
        Previous IC Meds taken:
        Cystoprotek - 2 caps 2x's a day
        Elmiron, 100mg 3x's a day
        Ditropan, 5 mg 3x's a day
        Others:
        Wellbutrin 150mg 2x's a day for Anxiety/IBS
        Pepcid 40mg a day for GERD
        Zytrec for Nasal Allergies
        Align Probiotic daily for IBS

        Comment


        • #5
          From reading the forums, I know that a lot of ICers use heating pads. I know I definitely do. And some use those stick-on ones when they are away from home.

          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            I have 2 - one at work and the other at home. My husband kids me alot and says I love it more than him. But honestly, I don't know what I would do without it! I have the one that shuts off every 2 hours - which I keep at the house, this way when I fall asleep at night I don't have to worry about it not going off.

            Comment


            • #7
              Yup, I am with the rest of them... my heating pad is a must have on some days. I also use the stick on ones when away from home.
              Jolene

              "Life is what happens when you are making other plans" John Lennon

              IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

              Information for Patients can be found here.
              http://www.ic-network.com/patientlinks.html


              Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




              Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

              "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

              Comment


              • #8
                aahhh!

                i feel so stupid! i can't believe i didn't think of heating pads sooner! i have used mine for two nights in a row now and i actually got some sleep! i did keep waking up and turning it back on (it shuts off every 45 min) so i just ordered one from amazon.com that stays on for 3 hours! Thanks so much for all the advice, it is much appreciated!
                Lee Ann
                Current Rx Meds:
                Atarax, Ditropan, Elmiron
                Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
                Hooray for babies!
                Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
                Didn't work for me:
                Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
                IC (Mod-Severe) since 1996

                UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).


                My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...

                Comment


                • #9
                  That's ok LeeAnn, I did pretty much the same thing - came late to the wonders of heat, lol. When I was first diagnosed, I had read a ton of great reviews on using heat, but heat had never worked for menstrual cramps for me, so I dismissed it as being helpful - til I discovered how wonderful a hot shower worked one day!!! From then on I was a believer!!!!
                  Hugs,
                  Tracey
                  How do you eat an elephant? One bite at a time...

                  Harry arrived 2/23/09!



                  *IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                  IC Diet Cheat Sheet:
                  http://www.ic-network.com/diet/2009icdietlist.pdf



                  Dx's:
                  IC dx'd Nov 2004
                  Lymphocytic Colitis dx'd July 2005
                  Possible IBS
                  Current IC Meds
                  Vistaril 25mg in the evening
                  Previous IC Meds taken:
                  Cystoprotek - 2 caps 2x's a day
                  Elmiron, 100mg 3x's a day
                  Ditropan, 5 mg 3x's a day
                  Others:
                  Wellbutrin 150mg 2x's a day for Anxiety/IBS
                  Pepcid 40mg a day for GERD
                  Zytrec for Nasal Allergies
                  Align Probiotic daily for IBS

                  Comment


                  • #10
                    I use the microwavable pads. The heat dissipates slowly so I don't notice it is gone unless I have to get up to pee. I throw it in the microwave while I run to the bathroom, it is ready and waiting for me when I get back. I bought mine from the chiropractor but there is a herb one in the ICN store that I use sometimes as well. (much prettier) My sweet honey will occasionally steal it in his sleep during the night, but I think he is just jealous of it, he knows which of them I can't sleep without. I carry a regular hot water bottle with me when I travel. I am not taking the chance on not having a microwave and having to run to a hotel desk to ask for a reheat in the middle of the night. I have used the heat forever, I don't even know why or when I started. I messed up my back shortly before my IC started and I know I used heat before doing my stretches, that may have led to my trying it.
                    I was born with one ureta not attached to it's kidney, I've been poked and prodded for so long. I never had "private" parts. I had constant infections and took low dose preventive antibiotics into my teens.

                    DX with IC July 1993 after seeing 3 different Uro's and finally switching Primary care doctors and affiliated hospitals.


                    I have 2 beautiful daughters, the oldest has been in heaven since she was 14 when she was hit by a car The youngest is 20 now. She has had one UTI. She went into complete panic that she would end up like me. Now she has some idea of what the pain is like. Poor kid has been forced to know where every bathroom in Disney World is.

                    Comment


                    • #11
                      My chiropractor told me not to use a heating pad because that only increases the swelling. That concerned me so I stopped using it.

                      Then I was in a bad flare and said to myself, I just want relief. I went back to using the heating pad. I don't think I feel worse with it at all. It is so comforting! Use whatever works or feels good!
                      Interstitial Cystitis: Elmiron and Hydroxyzine
                      Depression/Anxiety: Remeron, Cipralex and Clonazepam

                      *tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
                      * 2 hydrodistentions :

                      * currently on "Nabilone" for pain management

                      Taken the following:
                      Gabapentin no relief but could tolerate it
                      Lyricano relief but could tolerate it
                      Cymbalta severe depression/anxiety etc.
                      Topamax severe nausea and weight loss
                      Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation

                      What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture

                      Other conditions...
                      Vulvadynia (amytriptaline cream - no longer using to to irritation)
                      Severe IBS
                      Chronic Sinus pain (nasal rinse as need)
                      Migraines
                      Lower back and sacroiliac joint disfunction

                      Allergies: Erythromycin, scents and detergents

                      Comment


                      • #12
                        Yes me too. I everynight use a neating pad. This time though I put more money out to buy a better one. It also has a shut off time which is great but I know that still can be dangerous. The thing is I can't sleep without one.My electic blanket burn out on me and can't find one how because it is summer. As soon as it comes out, I will get it.

                        Sending hugs, Trishann

                        Comment


                        • #13
                          I too use my heating pad every night. I have the kind that shuts off automatically after 8 (?12) hours. It really helps me. I also have one in my car for traveling (my next car will have heated seats that get really hot). I have an inverter that is large enough to use with a heating pad and it gets turned on whenever I am in the car. I also have used the disposable thermacare velcro back heating pads for days when I was going to be walking around or shopping a lot.

                          Janice

                          Comment


                          • #14
                            Jan, I have the convertor in my car as well. My husband, with his gadget mind, did that for me along time ago. It definitely helped me through lots of trips through the years.

                            Comment


                            • #15
                              I actually use two heating pads at the same time -- one on the front and one on the back. It's heaven. When we go on vacation, I usually pack the regular heating pads (unless we go to Europe where the electricity is not compatible), but I also make sure to get the Therma-Care ones as well, for the trip itself. I would never survive a car ride or plane trip without heat!

                              It's very important to get a pad with auto shut-off. I once fell asleep with a therma-care on, and I still have an interesting pattern burned into my lower abdomen and upper thigh. I know some others here have had heating pad burns also.
                              Je vous souhaite de la joie, de la bonne santée, et tout ce qu'il y a de bon dans la vie.
                              Wishing you happiness and good health, and all the best out of life.

                              Peace, Carolyn
                              ___________________________________________________

                              Laura (11), Susannah (12 1/2) and Maman (that's me!), North Wildwood NJ, September 2007


                              On the Beach with IC

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