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Lidocaine Patches are helping me!

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  • Lidocaine Patches are helping me!

    Hi guys!

    I had a terrible flare that started up in early March. I am so thankful for all of your support during this time. I am also happy to tell you all that I am now doing SOooo much better and this flare has significantly retreated.

    I also just started Lidocaine 5% Patches 3 nights ago. They are prescription and I can tell a big difference! I am falling asleep in about 15 minutes after lying down at night. Which is great! The vicodin alone was helping but it was still taking me 3 hours or more----even WITH temazepam (sleeping pill). These patches are really making a difference. They are worn 12 hours on and 12 hours off. They don't hurt when you pull them off and they don't even leave a sticky residue or anything! They are expensive (about $200 for a box of 30) so I am thankful I have a good prescription drug plan. I was a little concerned they would make me feel numb (as lidocaine is an anesthetic) but they didn't! It didn't feel like anything except it reduced the pain.

    I haven't heard or read about using these for IC but I am not as well informed as most of you are. SO maybe you are already aware of these.

    Anyway, just trying to help!!!
    Lee Ann
    Current Rx Meds:
    Atarax, Ditropan, Elmiron
    Prior to pregnancy: The above 3 meds PLUS Neurontin, Topamax, Loratadine, continuous OrthoCyclen, Lidocaine Patches PRN, Temazepam PRN, & Vicodin PRN
    Hooray for babies!
    Misc. lifesavers: Hot baths, ThermaCare Heat Wraps, Ice Packs. The IC Diet has changed my life.
    Didn't work for me:
    Detrol LA, Amitryptiline, Morphine, Percocet, TENS unit, Interferential Pain Stimulator Unit, Hypogastric Plexus Nerve Block
    IC (Mod-Severe) since 1996

    UPDATE: 5/21/08 Pregnancy and breastfeeding afterwards have alleviated my IC symptoms more than anything, EVER. Most days are 100% pain free & I now have normal frequency (as long as I take these 3 meds).

    My little sweetie! Jack weighed 9 lbs 12 oz and was born via c-section on Feb. 28, 2008...

  • #2
    Well thats great news!!!..

    Thanks for sharing that with us..I have only been dg with IC since Nov 06..I have heard something about some patches but not sure if its the one your talking about.. But hey if they are working for you then thats great..

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!

    Link to Patient Handbook:

    Diet Reference Sheet:

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.

    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.


    • #3
      I'm really glad they are helping you!

      I use Lidoderm patches for muscle spasms and tenderness for fibromyalgia -- and their original use was for the skin/nerve pain that can linger around after a bout of shingles. Often they are not prescribed for IC because the lidocaine doesn't penetrate very deeply into the it usually doesn't reach the bladder itself.

      However, they're great for easing pain from the pelvic floor muscles and some of the pelvic nerves that are closer to the surface.

      Seems like you're getting good relief from them, though, and that is GREAT

      *Diagnosed with severe IC in 2004
      *Also diagnosed with PFD, fibromyalgia, chronic myofascial pain, IBS, migraines, allergies/asthma, dermatographism
      *Kept trying a million different treatments for all these things until I found what works, and I am doing okay these days with the help of a cocktail of medications and the InterStim, which was first placed in 2007. [I have had 2 revisions - one in 2010 when my battery died and had to be replaced, and one complete replacement (lead and generator) in 2012 after a fall on my stairs caused my lead to move.]
      *Current meds include Atarax (50mg at night), Lyrica (150mg twice a day), Xanax (0.5mg at night and as needed), Zanaflex (4mg at night), hydrocodone (10/325, every 6 hours as needed), Advair, Nasonex, Singulair (10mg at night), oral contraceptives, home instills containing Elmiron and Marcaine (as often as I need to do them).

      **I am not a medical authority nor do I offer definitive medical advice. I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.