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  • First Physical therapy appointment

    Hi.
    Well, I went to my first PT appointment yesterday. The therapist seemed really nice. She did some feeling around on my stomach and pelvic area and showed me some exercises I can do at home. She also checked the pelvic floor internally. I guess she does internal PT as well. I told her I was a little concerned about it as far as getting infections go though as I seem more prone to getting infections. I guess they use this antibacterial gel when they do the internal, but I asked her to just use water, as my gyne told me that the antibacterial gel can mess with your flora and cause vaginosis.
    I did notice that I felt more pain in my bladder after my visit and after she poked around in there near my bladder. Is this normal to feel more pain. I notice the bladder instills are helping with the bladder pain I have. But it was like she upset things by messing around in there. I am not sure how they come to the conclusion that you have PFD. She pressed around inside and I did not feel any pain at all. She said that one side seemed tighter than the other though and that this could be a part of PFD. I am a very skeptical person when it comes to any form of treatments because I have already beem through the mill when it comes to having treatments for my different problems and spent ALOT of money on different therapies that were a joke.
    I guess being a person that has been through alot of these things, I really need to be convinced before I buy into anything. I went to a meeting a couple weeks ago and heard a physical therapist speak and she said that she went to a teaching hospital and was doing free untrasounds on anyone who wanted one to have an ultrasound and see how the pelvic floor was. She said that she had a ton of younger teenage girls who supposedly had very tight pelvic floor muscles and they did not even know it. She said she had them tighten the pelvic floor muscles and then relax them during the ultrasound to see how well their pelvic floor responded and said all of them had pelvic floor issues. Well, seeing that these young girls did not even know they had any problem since they have no symptoms at all makes me wonder if there is even a problem, you know what I mean?
    It just makes me wonder. I am willing to give the PT a try though just to see if it will help. I did not like that I felt even worse afterwards though. I know that I did not expect to feel any better right away, as I know that takes time, but I dont think I should have felt so much worse. I guess I will give it a couple weeks and see how it goes and see if things seem to get better. Anyone here have good results from PT?
    Jen

  • #2
    I am having good results from internal PT. Before i couldnt even insert a q-tip i was that severe. After the first PT internal session and she released my muscles i felt lighter in the pelvis.

    the problem i am having now is that my muscles go back to being tight, not as bad as they once were but they do get tighter.

    Overall i have improved with PT.

    The urethra symptoms improved
    i can walk better
    internal exams can now be done

    i can see how you might be skeptical since your muscles dont seem as severe as mine were/are... did she tell you what level the muscles were at 0-4? I was a 4 when i began, and the left is about a 1 or 2 now and the right close to a 1.


    Lyme disease diagnosed 11/05
    vulvar vestibulitis diagnosed 2/06 -worst case she has ever seen..very bad.
    IC diagnosed with hydro/cysto- may 17, 2006

    Over growth of lactobicilli found 8/07 treating with doxy.

    Was able to get my first internal exam evaluation for PFD....wohoo 1/18/07:woohoo:

    8/22/07- was able to get my first speculum exam, with pap

    Strep D found in bladder with United medical labs May 2006
    2 strains of strep in stool culture 9/06
    high Strep ASO titre found 10/06

    NEW MED

    Capsasin cream-once a day for 20min,
    BUt wont lie it does burn

    About to start valium supositories for PFD

    Trigger point injections- oct 07

    Current meds:
    Neurontin- 100mg at night supposed to work up to 300mg if i can tolerate it
    Zanaflex 2mg
    IC and low oxalate diet, no sugar diet
    Xanax for appointments to help relax me since they cause so much pain

    Started PT 3/07, PT has really helped me in ways I never knew that it would

    Meds ive tried
    Lyrica
    Klonopin
    Singulair
    Claritin
    Pyridium
    Soma- can barely tolerate half a pill
    Atropine cream- didnt seem to work, although i found out I was applying the creams wrong
    Estradiol cream
    Urelle- caused worse bladder spasm and retention

    Various antibiotics for lyme which caused yeast and made the IC and VV worse

    waiting for the next chronic illness to pop up


    "Did you know?
    Every 15 seconds,
    a person is
    diagnosed with
    interstitial cystitis."
    Source: J. Dimitrakov, MD

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    • #3
      Hi Mich2604,
      Thanks for replying. No, the therapist never said how tight my pelvic floor was using numbers, she just said it felt tight especially on one side, I believe my left.
      I am able to have pelvic exams and such without it hurting my pelivc floor, but it does irritate my bladder when I have a speculum put in because it pushes up where the bladder is located which would cause irritation to the bladder. I am not certain that I have PFD, but I guess it could be possible that I do have a slight case of it. She said that I have no trouble tightening my pelvic floor muscles, but she said they do not relax right away like they should, so maybe they are somewhat tight. I just am not convinced that this has anything to do with my pain and IC though.
      I will continue to go and see what happens though, I figure it is worth a try just to see, but if I continue to get worse or feel worse after each session, then it is probably not for me or not the problem. Thanks for replying, I appreciate it.
      Jen

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