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  • #1

    Please!! Tell Me How Many Meds You are Taking

    I didnt know exactly where to put this, but I feel like I am taking so many drugs. Would you all please put down all the drugs you are taking so I dont feel so alone..LOL.. I am on Cymbalta, Enablex, Ulmar-T, Topamax, Pain meds<when I can get them and Birth Control..and High Blood Pressure Medicine.

    But I really want to add Elmiron and Hydrozine<sp to the mix but dang thats alot of meds...All these meds scares me to death...


    Thanks Ronda
    Hugs
    Ronda

    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


    Link to Patient Handbook:
    http://www.ic-network.com/handbook/

    Diet Reference Sheet:
    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

    Meds I have Tried:
    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
    Lexapro< Bad reaction to this med!
    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

    Dx With IC in Nov 2006 with Hydro/Cysto
    Hydro/Cysto Caused Bladder to Rupture.

    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    Tags: None
  • #2
    Birth Control + Interstim!

    I was on 5 plus pain meds before the interstim though. Now all I need is the pill!

    Erika
    IC diagnosed officially via cysto/urodynamics 1/26/07

    Grade II Endometriosis diagnosed via lap 12/11/07

    "Fall down seven times, Stand up eight."

    "Life is a tragedy for those who feel and a comedy for those who think."

    Current Treatments:
    Interstim Since 5/25/07!
    Birth Control

    Comment

    • #3
      Most of mine are listed below. I looked all over the place, like Target, Walmart, etc, to find a tote bag that wasn't too big or too small to carry my pill bottles from room to room with me. I literally can't stand having my meds upstairs if I'm downstairs, or vice versa for fear that I might have pain and have to climb those stairs. Sounds ridiculous, but my life revolves around my medication schedule.

      If it makes you feel any better, I'm taking more meds than you are.

      I know how you feel...I'm only 43 and take more meds than my 70 year old mom does!
      *IC-- Summer 2004; PFD--October 2005
      *Fibro--Fall 2000; CFS-- Fall 2000
      *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

      Total Abdominal Hysterectomy--adenomyosis--9\08

      04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

      Comment

      • #4
        I take alot of drugs too and added elimiron and hydrozyxine too. The meds I take are:

        Premarin (menapose)
        Asacol (ulcerative colitus)
        diovan (high blood pressure)
        baby asprin
        simvastatin (high cholestrol)
        elimiron (IC)
        hydroxyzine (IC)
        Aloe Vera
        For pain with IC I take:
        Prosed/DS
        Tramadol HCL-Acetaminophen
        Plus prelief and Azo as needed

        I was concerned too but I talked to my pharmacist and he assured me they were all fine to take together. One thing I learned was to always talk with your pharmacist about adding any meds, even if they are over the counter. He really is the authority when it comes to medication.

        I know you hate taking more meds, but the two drugs you listed will help your IC. So you need to consider taking them. Talk to the pharmacist first. Let him/her see what all you are taking. I use the CVS drugstore because if you buy all your meds there, the computer checks and makes sure all the meds can safely be taken together.

        Hope I helped
        Robin
        The happiest people don't neccessarily have the best of everything, they just make the best of everything that comes their way!!



        Meds:
        IC: Elmiron, Tofranil, Hydroxyzine, Prosed DS, stool softener
        UC: Asacol

        Comment

        • #5
          Thanks Robin...
          Hugs
          Ronda

          ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


          Link to Patient Handbook:
          http://www.ic-network.com/handbook/

          Diet Reference Sheet:
          http://www.ic-network.com/diet/icndi...tsheet0909.pdf

          Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

          Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

          Meds I have Tried:
          Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
          Lexapro< Bad reaction to this med!
          Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

          Dx With IC in Nov 2006 with Hydro/Cysto
          Hydro/Cysto Caused Bladder to Rupture.

          Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


          ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

          Comment

          • #6
            Right now I am on Zegarid, Birth control and Tramadol (as needed). I was so fed up with all the meds that I took only what I absolutly need.

            Before, I was on: Percocet/Tramadol, Elmiron, Elavil, Atarax, BC, Zegarid, Carafate, TUMS (not really a pill), and Ditropan XL.

            Waaaaay to many pills.

            Medical "Issues":
            IC
            GERD
            Tachycardia(resting rate is 125-130 )
            Medicastions:
            Tramadol-as needed (IC)-50mg
            Elmiron 200mg twice a day
            Levsin .125mg 1-2 pills 4 times a day

            Comment

            • #7
              ok Ronda but I ain't sharing
              Vicodine as needed for pain
              Flexeril
              urised
              hydroxizine
              ambien
              and one for acid reflux.
              I think that covers it lol
              'The will of God will never take you where the Grace of God will not protect you.'

              Comment

              • #8
                Ronda, I'm on SO many pills it's a wonder I don't rattle when I walk!!! LOL
                I take Zegerid (and love it a lot more than Nexium!) Ranitidine, Elmiron, Elavil, Oxytrol Patch, Climara Patch, Carafate, Lyrica, Freeze dried AloeVera, Vit. D, Multi-vit., Probiotics, chewable calcuim, Foodbased Iron and several others I take 'as needed'. I get hives once in a while and my dr. says he's pretty sure it's a drug interaction but has no idea which drugs since I take so many Roxie

                Double Spinal Cord Stimulator surgery 8/09
                Unsuccessful MiniArc sling surgery 12/07
                Dx'd Hypothyroid
                Dx'd Chronic Axonal Neuropathy & Myopathy
                June 2007
                Dx'd IC May 2006 (after suffering for 25+ yrs!)
                First Cysto 1979
                First Hydro 1981 (Many treatments since then!)
                Collagin"Durasphere" injections for urethra
                Gall bladder surgery Aug. 2004
                Gastric Bypass Dec. 2004
                Dx'd: Barrett's Esphogus July 2004
                Dx'd: Vaginal Atrophy 2005
                Bladder surgery 2000
                Dx'd: IBS 2000
                Hysterectomy (fibroids) 1999
                Laminectomy 1989
                Dx'd: Degerative Disk Disorder 1989

                For IC I use Elmiron, Elavil and Freeze dried Aloe Vera (it works likes Elmiron, but naturally)and Azo as needed. I also take Zegerid, Randitine for Barrett's Esophagus. (which causes me to have constant yeast infections!)I take Cymbalta for Neuopathy/Myopathy pain. I use the Climara patch for menopause symptoms. I'm on a very strict diet because of the IC, IBS and Gastric Bypass. I take Primal Defense Probiotics and whole food Iron.
                I no longer have the awful urethral pain! I've been using MSM gel now for 4 mo. and haven't had a flare up or the urethra pain.....it's amazing stuff!!:woohoo:

                Comment

                • #9
                  Ok here's my list of medications:
                  Elmiron
                  Pyriduim (as needed)
                  Vicodin (as needed for pain)
                  Coumadin (blood thinner for heart valve replacement)
                  Toprol-XL-(blood pressure medicine for the above- don't have HBP; never did)
                  Topamax
                  Vesicare
                  Fortical (Spray)

                  Comment

                  • #10
                    Ok Mary I am not feeling so bad now...lol..
                    Hugs
                    Ronda

                    ONE Second, ONE Bite, ONE Breath, ONE Pill, ONE Minute, ONE Teardrop, ONE Hour, ONE Sip.. ONE DAY! I will Prevail from this disease! IC Hoping for a Cure!


                    Link to Patient Handbook:
                    http://www.ic-network.com/handbook/

                    Diet Reference Sheet:
                    http://www.ic-network.com/diet/icndi...tsheet0909.pdf

                    Meds For IC: Lyrica-25mg Glucosamine-500 MSM-500mg, Prosed Ds -When Flaring

                    Other Meds: Levlite- Continious Birtcontrol, Micardis-40mg for High Blood Pressure

                    Meds I have Tried:
                    Topamax,Tofranil, Elmiron, Atarax, Cymbalta, Elavil, Enablex, Detral La, Prydium.
                    Lexapro< Bad reaction to this med!
                    Intstills, could not continue them due to some kind of reaction after 3rd instill. Tasted the lidocaine in my mouth, tongue and lips went numb then went into what seemed like a panic attack. Shaking, racing heart, tingling face/head, blood pressure shot up..

                    Dx With IC in Nov 2006 with Hydro/Cysto
                    Hydro/Cysto Caused Bladder to Rupture.

                    Other Dxs-Vulvodynia,Fibro, Endo, IBS, HPV, Migraines, Spastic Colon, Mild Dysplasia.


                    ICN Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.

                    Comment

                    • #11
                      I'm on Elmiron, Urelle, Elavil, birth control pills, I also take Vicoden when I have some and have pain. I guess that's not too many but it still feels like alot.
                      Christine



                      I have been diagnoised for 6 1/2 years now. I have taken a long break from the ICN but really miss helping out my fellow IC patients and want to get back into posting.
                      1st hydro 4/07 showed no visible signs of IC but tons of mast cells in all my biopsy samples which did prove IC.
                      2nd hydro 4/13/09 showed dark purple glomerulations and I had a capacity of 450 cc's. This hydro proved that my IC had progressed.
                      I have tried every oral medication as well as rescue instills and DMSO.

                      I have been lucky enough to see Dr Hanno, the top IC specialist in PA who has told me due to the fact that I have not responded to any "standard" treatments that I have a severe, end stage case of IC with a horrible quality of life (didn't have to tell me that last part!)

                      Proud wifey of Shane, mommy to Griffin, and step-mom to Logan and Gage
                      Also proud mom to the best Bullmastiff on earth, Claus

                      Comment

                      • #12
                        Hi ladies.
                        I would say that if these meds help you, then it is a good thing. I wish to God I could take some meds, but I seem to be sensitive or allergic to all meds. I cannot take any anticholergenic meds( elevil, detrol, urelle etc..) due to my digestive disorder. I am already slow in that area, and these meds make this worse so I cannot take them at all. That goes for pain meds too, and they also cause me urine retention as well, so those are out for me. I wish my body would cooperate and let me be able to take a pain pill now and then, but no such luck there.
                        I know it sucks to be taking all these meds, but if they are helping you be able to function, then it is great. I mean, if you can get by without any of the meds, then that is good too. Only take what you need, that is my motto.
                        Jen

                        Comment

                        • #13
                          Elmiron
                          Pyridium
                          Prelief
                          Premarin
                          Zoloft
                          Ambien
                          Asthma inhalers,
                          Benadrl
                          Calcium
                          Soma
                          Vytorin
                          Valium
                          Percocet
                          or Norco depending on pain level
                          ear drops

                          That's all I can think of right now

                          It is ridiculous that I take more pills than my 75 year old mother does and she has a heart condition and high blood pressure

                          Comment

                          • #14
                            Elmiron--2 pills taken at night
                            Elavil--50mgs taken at night
                            Toprol XL--100mgs 1/day
                            Synthroid--150mcgs 1/day

                            Diana
                            (\__/)
                            (o.O )
                            (> < ) This is Bunny. He's on his way to world domination.

                            Comment

                            • #15
                              Umm.. I think I win the gold medal in this competition. I take 25 meds. Not long ago I took over 40 meds everyday.

                              Comment

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