Tweet
Okay, I feel really stupid for asking this...(I also have no clue where to post this), but I came across this page on the Internet that states this woman "cured" her IC. She sells an Ebook for $30 that tells you what she did. I was wondering if anyone ordered it...lol...I know it seems like a scam to me, but sometimes I just get so DESPERATE. What do you all think? The link is below (copy and paste)...
-
Diagnosed with IC April 2007
Stage IV Endometriosis - April 2005
Current Medications:
Elmiron - 3x/day 100mg
Elavil - 50mg at night
Enablex - 15mg/day
YAZ - Birth control to stop my period (Period = FLARE!)
Additional Herbs & Supplements:
Cystoprotek (6 pills/day)
MSM/Glucosamine Capsules
MSM gel (For Urethral Pain)
Omega 3 Fish Oil
Indole-3-Carbinol (For the Endometriosis)
Too many medications for a 25 year old!
I WILL conquer this disease! 
-
Instead of posting the website, can you tell us about what cured her? If we haven't heard of it here, it's probably a scam, and 30 dollars for a web book is quite a lot of money.*IC-- Summer 2004; PFD--October 2005
*Fibro--Fall 2000; CFS-- Fall 2000
*MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis
Total Abdominal Hysterectomy--adenomyosis--9\08
04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message. -
Unfortunately, I'd say it's got to be too good to be true
- I think by now with all of our members etc, we'd have figured something out if there really was a "cure", bummer. lol. Wouldn't it be nice though?? Well, a girl can dream.... 
Hugs,
Tracey
How do you eat an elephant? One bite at a time...
Harry arrived 2/23/09!
*IC Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
IC Diet Cheat Sheet:
http://www.ic-network.com/diet/2009icdietlist.pdf
Dx's:
IC dx'd Nov 2004
Lymphocytic Colitis dx'd July 2005
Possible IBS
Current IC Meds
Vistaril 25mg in the evening
Previous IC Meds taken:
Cystoprotek - 2 caps 2x's a day
Elmiron, 100mg 3x's a day
Ditropan, 5 mg 3x's a day
Others:
Wellbutrin 150mg 2x's a day for Anxiety/IBS
Pepcid 40mg a day for GERD
Zytrec for Nasal Allergies
Align Probiotic daily for IBSComment
-
Just remember before you invest any money --- if it sounds too good to be true, it's highly probable that it is. I become extremely irate when people actually prey on people who feel hopeless in order to make a profit.
DonnaStay safe
Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf
Have you checked the ICN Shop?
Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.
Patient Help: http://www.ic-network.com/patientlinks.html
Sub-types https://www.ic-network.com/five-pote...markably-well/
Diet list: https://www.ic-network.com/interstitial-cystitis-diet/
AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/
I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you. [3MG]
Anyone who says something is foolproof hasn't met a determined foolComment
-
E-book for ic cure
Hey Ladies
Oh well I hate to admit it but I am glad for the sake of others that I was and still desperate as are all of us. I am broke and I confessed I was stupid. I got an e-book. Forget it, It did not work for me and I did exactly and got sooooo sick I could not even talk to my family. Since I cannot mention names I feel it is the same book we are talking. I tried it step by step and my doc ask me not to but I told him if I could help anyone for free by my own experience then I wanted to plus I wanted to get well. I will tell you of my experience and how it works if it is ok to do on this site so you will know what not to do in case anyone tries to tell you what to take and do according to the book.
I thought I was going to get healed alright., but I thought I was about to enter heaven.
Please do not waste your money. I thank God I was able to tell you before you spent your money.
Hugs and Be Blessed
J.J.Comment
-
Sort of reminds me of losing weight. I wish there was a "cure" but the only cure that works is to stop eating more than you burn.
I figure if there is a cure that MD's everywhere would be telling everyone and it wouldn't be sold as a cure in a book.
Sort of like losing weight..front page on most mags.
So far my "cure" is having bothersome symptoms taken care of. Works for me but I know it doesn't for everyone..and it might stop tomorrow for me.TREATMENT: PRN lidocaine/heparin Home Instillations since 2004
My Helpful Hints for Home Instillation: http://www.ic-network.com/forum/show...985#post309985
Institute of Female Pelvic Medicine (J. Dell, My MD) http://www.mypelvicmedicine.com/index.asp
Thank you for allowing me to share my experiences and offer support. Your physician is the only one to give you medical advice. I hope sharing the information from this site will help you and your physician develop successful management of your IC.
I post to encourage and offer total support for rescue instillations.
Find me on facebook: L. Clark Thomas
LouannComment
Comment