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Day #2 on 50mg of Topamax

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  • MakinIT
    replied
    Jes' trying to remind yall and not being a wet blanket on this weight loss picnic (Because it is really cool....no hunger, everyday it seems you stand on the scale and another pound is gone) you will feel some memory lapses or you repeat yourself. I have almost total amnesia now after I take my night meds. I won't remember I wrote this tomorrow, although while I'm doing it I am perfectly fine. I'm on a fairly high dose, 150 mgs..and I went up to 200, and wound up going down too far and have come back up again. 150 is what my body needs. Oh, and since my doc put me on Lyrica a ways back, I was starving all the time and I ate constantly. On the Topamaz..I lost 80 pounds...stayed that way for a year after my botched surgery... but gained back 10 after a year. stayed at that 10 for another year...got the Lyrica and went crazy...I wound up gaining an addition 25 pounds, in about 6 weeks. I got off because i couldn't even fit into what was now my fat clothes (3 years before hand Iwas thrilled icould wear them...) So, i did a lot of thinking, had a bowl of Ben and Jerry's phish food and dropped the Lyrica. My hunger dropped but weight has been slow to drop but my acitivity level just wasnt what it was. So, in a 2month time period I've lost 4 of the 35 I regained. It sucks. But, I also was in a dilema w/ my diet. I was lo carb which was awesome for me. I eat a piece of bread...i can feel my pants stretch... Fruit...same thing, but veggies..meat, cream, ect...I'm fine. I lose weight in combination with the Topamax. (Dr. Bernsteins diet for Diabetics) It is very, very strict. At my best I couldn't stick entirely to his diet demands. But I lost weight. (only allowed 6 carbs at breaffast. Eggs and bacon are zero...) 3 carbs for a midmorning snack, so a handful of almonds or jerky. 6 at lunch so some salad , 3 for late afternoon (cheese stick and carrots) and dinner was whatever everyone was eating, minus carb stuff...ever had spagetti wl/no noodles? (I was on a hunt for for something after that and wound up brushing Kale with olive oil and baking it for couple minutes...It was versatile) I could eat 12 at dinner. night was 3-6 dependingon how good I was. But I found protein really filled me up, as did the veggies. I never got bored l was too busy plannning meals and watching poounds drop.

    I guess the entire diatribe is: keep a constant watch for signs of your mind slowing. Ask you partner to keeo notes for you, but not to be obvious or you get paranoid.

    Good night....

    Leave a comment:


  • LeeAnn
    replied
    i hear ya!

    I agree Moonheart!

    Before IC I competed in triathlons, loved skiing, hiking, etc and weight was never something I had to think about. I was such an active person that I ate whatever I wanted and was still itty bitty.

    Then IC robbed me of almost everything I enjoy. You can't exactly go hiking when you desperately need to pee every 15 minutes. I would probably get arrested!

    I stopped skiing b/c going to the bathroom became too big of an ordeal when you have to pop off your skis and clunk into a building in ski boots, clunk back out, pop your skis back on. Repeat in 15 minutes.

    I used to be this tiny little thing and it's kind of embarrassing running into people from high school. They probably think I just let myself go or wonder what the hell happened. At least I live 22 hours from home!!!

    So hopefully Topamax will help me lose some pounds while controlling my pain.

    I hope this keeps up. I feel like IC has robbed me of SO MUCH, including my figure. It would be nice to have it back. So whatever works you know.

    Leave a comment:


  • MakinIT
    replied
    Actually, my migraines were under control, I was just a drooling idiot. I backed it down, with the assistance of a my chiro, and he found where the migraines were coming from. Unfortunately, they have kicked backup. When they are bad I have a sensation of heat, and when people saw me, the side of my head affected actually had a red ring under the eye and my face was hot. (Trigeminal nerve?) I was often fortunate enough to notice the signs the h/a was approaching (heat, light flashes, ect) but sometimes at work I would be so into what I was doing, my staff was suddenly shutting out the light in my office , or pushing me toward it, and putting ice packs on me and calling my chiro. Even my severe special ed. kids could ID when "miss fishy gots a bad headache coming"...I would have to stop and look around, then I would notice the signs and all I could do was pace, but they would sit on me with an ice pack. Sometimes Greg was working at the hospital near my job so he'd come by with his table and snap it out. It was the most bizarre feeling. I could actually feel the warmth disapate from the back of my neck, once it cracked..and he felt the temp rise when it cracked and then go way down. He had never experienced that before. So it's happening again, I wake in the middle of the night sick with a migraine..Greg works on me, but he has cancer and can't do what he used to. In fact, his cancer came back and the treatment that was his last hope won't work now. I'm very sad, he has about 6 months, won't give up his practice yet. He's fighting mad right now.

    Gotta go...we have a thingy to go to tonight and i have to sleep off pain meds. whoopeee.

    Leave a comment:


  • Moonheart
    replied
    The good thing is, with all of the documentation we all have, there isn't a doctor or judge on the planet that could argue that any of us is only taking it for the weight loss. That's just a benefit, and a nice one at that! I know for me that the pain relief is the biggest relief!!! But I sure as heck won't turn down losing all the weight I've gained from this stupid disease!!!

    Leave a comment:


  • LeeAnn
    replied
    Ronda

    Hey Ronda,
    You can probably relate. I'm just NOT hungry on Topamax. I rarely get hungry but when I do, it doesn't take very much food to fill me up and usually water will fill me up instead. Yesterday I ate a little jello pudding thing for breakfast. A slice of bread for lunch. A taco for dinner and a little bit of guacamole and chips and OMG that was WAY too much---I felt stuffed. I've lost almost ten pounds in only two weeks----and without feeling hungry. And my pain is better too. Is there a better drug on the planet? I don't think so!!! Duh, no wonder Anna Nicole's autopsy found Topamax in her system. Howard Stern says she had migraines. Yeah, SURE SHE DID!!!! Uh huh. Yeah.

    (But don't worry, they say it's not what killed her).

    Leave a comment:


  • feresp497
    replied
    moonheart, thats great thart you are doing so good on so low a dose. I don,t do well at all on 50 mg i know I have to go to 100, as a matter od fact i was in so much pain this morning I took a 5o at 5am then the pain wasnt gone at 9am i took another 50 at that time I feel better now but I still have the frequency. Tonight I will take the full 1oo together to see how I feel. I will let you know. I wish the frequency would go away, I really don,t have to go I just have a little bit when i go. Is that how you were? hank you Violet

    Leave a comment:


  • Moonheart
    replied
    Hi guys!

    I'm on 100 mg a day and have complete migraine relief, complete clitoral relief, VV relief, bladder relief, frequency is 2-3, max of 4-5 times a day with infrequent flares.... Tracey, I think you were actually on too high of a dose of for migraine relief. I've heard it going the other direction at that high of doses for migraines. I have heard many people getting migraine relief like me at 50mg.

    Leave a comment:


  • MakinIT
    replied
    I've been on Topamax for 4 years...started to control migraines...and at that time they didn't realize how bad it was at high doses and i was all the way up to 500 mgs!!!! needless to say, I couldn't remember my own name. I stopped taking it for a while but went back on because of nerve pain and he had me at 200 but I dropped it to125 b/c I was just too sedated with my other meds. And yes, I lost 80 pounds in 7 months...unfortunately, over a 1/3 of that weight came back on so, but I have to control my diet so I can keep diabetes away. anyway, it is a good med but it makes you forget stuff very easily, especially the higher you go. I used to tell my husband, each increase I could feel my IQ drop by 10 points.

    Good luck to you....It is very good for nerve pain.

    Leave a comment:


  • feresp497
    replied
    Ronda. On 50 mg I still get lots of clitorus pain, so thats why I wnt to get on 100 mg quick.. I took a LORTAB AND 1O MG ALAVIL today to help with the pain I hope tomorow is a better day. Moonheart how much topamax do you take? thank you Violet

    Leave a comment:


  • tigger_gal
    replied
    your one of the luck ones who dod not gain weight on it. I gained a few pounds, but only was on it for a short time do to side affects.

    Leave a comment:


  • leelee88
    replied
    feresp,
    I am just not hungry, I have to make myself eat..

    Sharon, I think its day 4..The bladder pain is still gone BUT the clitoral pain is coming back, I thought the Cymbalta was helping that but I guess it was the elavil to .. I think I am going to see if I can just go on a low dose of elavil like 10mg and see if that helps.. I think I can live with being over weight I CANNOT live with that clitorial feeling you know it was driving me crazy..

    Ronda

    Leave a comment:


  • feresp497
    replied
    Hi, I am also on 50mg I haven`t lost any weight , are you watching what you eat or are you eating what you want maybe I am eating to much. As for the pain I really need it higher it doesn"t `t help me enough for me to be comfort able. I still have to take lortab almost every day. I will keep trying ,hoping it will start to helping me, I have been on 5omg for 5 days now thank you violet

    Leave a comment:


  • mary124
    replied
    Watch the weight loss! I have lost 60 pounds in 3 years. Now I'm to the point that I don't need to lose any more weight-- at 5ft7in (128lbs) I'm almost too thin as it is. My family doctor is about to take me off of it. But he has to talk to my neurologist to see what he can be me on.
    (p.s. I haven't weighed this since my first born was just a baby and that was 23 years ago!!) --don't know if that good or bad??)

    Leave a comment:


  • SharonA
    replied
    So how is Day 3 going? Or will it be Day 4 when you read this? I do hope you get better and better results.

    Leave a comment:


  • leelee88
    replied
    Oh Christine,
    I wanted to eat EVERYTHING!!!! On Elavil..lol it was like I had to have it..So strange...

    Leave a comment:

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