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CANNOT do Topamax!!!
Well, I did give it a shot. I tried. I was put on 25mg every night. The first night I was energized, and woke up a few times to urinate. It wasn't terrible, but worse than I have been. The Atarax has been so helpful in getting me to sleep through the night or just up once to urinate. So, the Topamax countered that drug. I thought, maybe it was the first dose. The next day I had to urinate more. I was told and read that it can act as a diuretic, so no wonder my volume increased. I thought, maybe it's just the first day...
So, the next night... I took the next dose... I had to get up more times. The urge to go was much stronger and the next day the urge was exponentially worse. I wanted this to work so I wanted to give it another shot...
The next day was torture. I had to go so bad. I was miserible. I was getting nautious due to the urge (not pain) and the frequency was through the roof. I wasn't drinking a lot more or anything, but my bladder was putting out too much urine. It killed me. I thought... ok... one more dose...
That was the breaking point. That night the urge was so strong and I started to get pain from the urge to urinate. I couldn't take my Ultram and it was beyond what Ultram can do, so I took Lortab (hydrocodone) and I had an severe reaction to it. I was in agony from my collarbone to my pelvic bone front and back. I had trouble breathing. I started to shake, get cold, my teeth were chattering... I had the same reacting to codeine back in January when my IC was at the all time worst (when they didn't know what it was and I was unable to sleep for 3 months). I actually had to be taken to the ER because I was blacking out from the pain to codeine. Go figure. A pain med causing pain...
So... Topamax is just not worth it to me. I can't do it. I got worse each time I took it. I tried to blame it on my diet, but the last "questionable thing" was before the Topamax started or the first day I took it. I just got worse and worse on it.
It is a miracle drug for some of you... for me... not so much. Good luck to those on it or those considering it!
So, the next night... I took the next dose... I had to get up more times. The urge to go was much stronger and the next day the urge was exponentially worse. I wanted this to work so I wanted to give it another shot...
The next day was torture. I had to go so bad. I was miserible. I was getting nautious due to the urge (not pain) and the frequency was through the roof. I wasn't drinking a lot more or anything, but my bladder was putting out too much urine. It killed me. I thought... ok... one more dose...
That was the breaking point. That night the urge was so strong and I started to get pain from the urge to urinate. I couldn't take my Ultram and it was beyond what Ultram can do, so I took Lortab (hydrocodone) and I had an severe reaction to it. I was in agony from my collarbone to my pelvic bone front and back. I had trouble breathing. I started to shake, get cold, my teeth were chattering... I had the same reacting to codeine back in January when my IC was at the all time worst (when they didn't know what it was and I was unable to sleep for 3 months). I actually had to be taken to the ER because I was blacking out from the pain to codeine. Go figure. A pain med causing pain...
So... Topamax is just not worth it to me. I can't do it. I got worse each time I took it. I tried to blame it on my diet, but the last "questionable thing" was before the Topamax started or the first day I took it. I just got worse and worse on it.
It is a miracle drug for some of you... for me... not so much. Good luck to those on it or those considering it!
....I know there is something out there that is going to help you, its just sad that we have to go through all the pain and suffering to find the right treatment.. Just remember we are all right here with you on this journey...((((((((((hugs))))))))))))
I forgot to mention the diuretic part. It did that to me too, but that's part of how I lost so much weight. I was retaining so much fluid in all my tissues I had to pee it all out, and I even had severe diarrhea for a couple days. But fortunately after just a few days, maybe 4-5, it all levelled out. It wasn't fun while it lasted, but I determined to stick it out and it was worth it because now I don't retain any fluid and don't have any frequency or urgency at all, unless I eat or drink the wrong thing. 
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