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  • #1

    Sleep

    My IC pain has been horrible the past month. I've taken Ambien on and off for the past few months. I have to take it every night now b/c the pain is so bad there is no way I could sleep.

    Is there anything else that will help me sleep? Medications that typically cause drowsiness (Vistaril, pain meds) don't really make me tired.
    Tags: None
  • #2
    Sometimes low dose antidepressants can help.

    Donna
    Stay safe


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    • #3
      I'm finding that Advil nightime is helping a bit...at least with the falling asleep part. I'm still up to pee alot but can fall back to sleep faster most times.

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      • #4
        I have been on ambien for about 2 years and it is not very effective at all anymore. My Pain Management Dr. added Zanaflex, a muscle relaxer that makes you sleepy, to take at night with the ambien. For the first time in 3 years, I am getting about 5 hours sleep most nights. While this may not sound like alot of sleep to a person who was literally down to 1.5 hours a night, this is nothing short of amazing. I have been in PT for several months, and most of my issues seem to be pelvic floor at this point. I am fine until I have a bowel movement and then the pain comes. I am taking 2 mg. of valium 3 times a day, but it does very little to help. I am hoping I just need more time. Sleep is crucial to us, so I suggest you add something to your nighttime regime. I stayed away from muscle relaxers for a long time because I hate taking drugs, but at some point most of us have to realize that with a chronic pain disease, drugs may be our only help. Good luck to you.

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        • #5
          I take 10mg of Valium at night to sleep and it does the trick every time. I might wake up one time a night to pee.
          Your Friend,
          Michelle

          Diagnosed: 10/16/09

          Elmiron, 100mg 2x per day
          Imipramine, 10 mg per day
          Diazepam 10 mg for sleep
          Zyrtec
          Zovia, birth control (ongoing-no periods)
          Probiotics
          Hydrocodone, 2 pills a day (at any time of day)

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          • #6
            Plain ol Tylenol puts me to sleep....also chamomile tea and warm (not hot) baths with Epsom salts.

            Good luck..........I know this is a tough part of being sick......
            Julie Beyer, MA, RDN
            IC Dietitian, Patient Advocate, Speaker, & Author


            Did you know that up to 94% of interstitial cystitis patients find some symptom relief when they change their diet, and that dietary modification is recommended as a first line treatment for IC? Check out the IC Food List to get started!

            Do you need a little more help understanding the IC Diet? Schedule a phone or video coaching session through the ICN Store today.

            You can also learn more while supporting the ICN message boards by clicking on these book covers and buying the Confident Choices books from the ICN Store:

            ........ ........


            Other IC Diet Resources:

            IC Diet Webinar
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            Free IC Diet Booklet: What Can I Eat?
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            • #7
              Judy45

              I've noticed that there are many times my bladder starts hurting within a few minutes of having a bowel movement. Is this a sign of pelvic floor disorder?

              Comment

              • #8
                melanie- it may be. check into seeing a Physical therapist to see if u have pelvic floor dysfunction or your gyno/urologist.
                sleep:heating pad,benadryl,chamomile tea,warm baths help me.
                Newly IC diagnosed as of February 2011.

                Medications I'm on that seem to work:
                Zoloft- one once a day
                Butrans pain patch 5 mcg (THANK GOD FOR WHOEVER INVENTED THIS!SO MUCH PAIN RELIEF ITS UNREAL,I AM IN NO PAIN AT ALL UNLESS I STRESS OR SCREW UP ON THE DIET)

                Failed Meds:
                Elmiron-after 4 months,digestive side effects got to be too much
                tramadol-allergic
                DMSO treatments(5-6)
                probiotics

                THERAPIES:gardening,cooking,IC Diet,Counseling,Lots of warm baths,stress reduction,heating pad or ice packs,meditation/deep breathing,listening to relaxing music,having fun on pain free days,drinking chamomile or peppermint tea,pelvic floor physical therapy
                AROMATHERAPY-candles,incense
                Village Naturals Aches and Pains Peppermint Bath Salts
                Johnson and Johnsons Lavender Melt Away Stress Body Wash/Lotion

                ACUPUNCTURE/HERBS
                Significant pain relief so far.

                MAY TRY:yoga,swimming/hydrotherapy and anti-candida diet if i can kick my sugar addiction
                ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                ***TO MY IC SISTERS AND BROTHERS:WE ARE OUR OWN ADVOCATES!,PLEASE DO AS MUCH RESEARCH ON YOUR OWN AS POSSIBLE AND TRY DIFFERENT TREATMENTS TO GET WELL.NOT ONE TREATMENT WORKS FOR EVERYONE.MOST IMPORTANTLY,TRY TO KEEP A POSITIVE ATTITUDE,DISTANCE YOURSELF FROM NEGATIVITY/NEGATIVE PEOPLE AND NEVER,EVER GIVE UP!***

                Add me on facebook Angela Hasic

                ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
                Lord, make me an instrument of your peace;
                where there is hatred, let me sow love;
                when there is injury, pardon;
                where there is doubt, faith;
                where there is despair, hope;
                where there is darkness, light;
                and where there is sadness, joy.
                Grant that I may not so much seek
                to be consoled as to console;
                to be understood, as to understand,
                to be loved as to love;
                for it is in giving that we receive,
                it is in pardoning that we are pardoned,
                and it is in dying [to ourselves] that we are born to eternal life.

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                • #9
                  Flowerangela

                  I'm waiting on my doctor to send the referral to the PT...she does something called Biofeedback...I don't know a lot about this, but I guess it can show if you have PFD...I also have an appointment with a PFD specialist at Ohio State in July.

                  Comment

                  • #10
                    Try muscle relaxers. I have been on ambien for years and it really doesn't do much anymore. My PM started me on zanaflex, a muscle relaxer (I also have fibromyalgia, but don't we all!) and I take 8mg at night and am happy to say I sleep for at least 5 hours most nights. The muscle relaxer calms my bladder and makes me drowsy. Try it.

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