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  • Valium

    I had a doctor suggest trying Valium. Anyone use this for their IC?

  • #2
    Hi, Melanie ~ I use it in suppository form....valium, cyclobenzaprine, lidocaine. It does help relieve my spasms.
    Never heard of IC til suspected....Never knew so many suffer from it. Praying for a cure. I've found answers...so can you...keep the hope.

    11/2007 IC Symptoms began during recovery of surgery for bladder susp & hysto: painful/urge/freq urination up to 50 times a day, pain walking, even water hurts.
    8/2009 Susp IC; 1/2010 Treatment began; 2/2010 Diag PFD, PT, Surg remove mesh; 5/2010 Surg, 2nd bladder repair, vag vault/sm int prolapse repair, IC confirmed in surg; 7/2010 Diag Candida Esophagitis, Gastritis, Diviticulosis, Gallstones,
    8/2010 Surg gallbladder
    TREATMENTS (updated 4/15)
    IC Diet since 8/2009 (Able to vary 4/15)
    Heparin/Lidocaine/Bicarb/Kenalog Instills 1xDay
    Aloe Vera Capsules, (2) 2xDay, Loratadine 1xDay
    Pantoprazole, Prelief, Pyridium up to 3xDay, Premarin Cream 3xWeek
    *DISCONTINUED since feeling better: Celexa 10mg daily*, Fiber supp*,
    Gabapentin 12/2011 worked well *, Macrodantin 100mg after instill*, Probiotics*, PT-PFD*, Valium Vag Suppositories: Cyclo/diaz/lido, 10/5/62.5mg *
    PROB MEDS: Elavil, up to 50mg 1/2011 ret&hbp, Urelle ret, Vesicare ret

    Comment


    • #3
      Valium is a good muscle relaxant. I haven't taken it for IC, but did for a neck problem prior to my cervical fusion.

      Donna
      Stay safe


      Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
      Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

      Have you checked the ICN Shop?
      Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

      Patient Help: http://www.ic-network.com/patientlinks.html

      Sub-types https://www.ic-network.com/five-pote...markably-well/

      Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

      AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

      I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
      [3MG]

      Anyone who says something is foolproof hasn't met a determined fool

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      • #4
        I didnt know where to put this, but since your on the topic of valium... I was just put on 1 mg 3x a day... so does this mean I cant drink at all? I was supposed to on saturday before a concert... kind of bummed about being on medicine like this. Im not a heavy drinker or anything, just occasionally with friends... its just hard to be the only one, and for this reason. I know drinking isnt everything, I dont want to sound like an alcoholic or anything...but its just upsetting dealing with all of this.
        Daisy
        Age: 20
        Pelvic Floor Dysfunction

        Medicine
        Valium- .05mg three times a day
        (Lowered dose because it made me panic at night)

        Other
        Physical Therapy- Didn't started yet

        Comment


        • #5
          I have been taking Klonopin for 7 years, 1 mg a day. The same type of medicine as Valium.. benzo. It is really important not to drink alcohol with it. It interacts and can make you really drunk with little. I think it can also lead to depression when you mix the two. Good luck!
          -Pammylynn Rose
          Wishing everyone a pain free bladder day!


          Painful symptoms start in May 2011
          Diagnosed with IC in Aug 2011

          MEDICATIONS
          Elmiron
          Axert (only for rare migraines)
          Strict IC diet
          Gluten/dairy/egg free diet


          Comment


          • #6
            Ok... thank you! I wont take any chances.
            Daisy
            Age: 20
            Pelvic Floor Dysfunction

            Medicine
            Valium- .05mg three times a day
            (Lowered dose because it made me panic at night)

            Other
            Physical Therapy- Didn't started yet

            Comment


            • #7
              I would do ask my pharmacist about this, and the prescribing Dr. about this.

              Does the bottle have a no alcohol sticker on it, if you can't drink at all it should have a sticker on the bottle saying so.

              I would not drink when I first started on the Valium, but after a while and I am sure the length of time is different for everyone you be able to have the odd drink after your body adjust to the Valium.

              Remember everyone and their tolerances are different, so in time you may be able too I don't know what will happen to you.

              Good luck MG
              My are with you all. May you all find a way to peace and joy in your lives.

              Comment


              • #8
                I forgot to say if you take Valium as a vaginal suppository, it is supposed to stay in the pelvic area and not go through your system, so if you are taking it to reduce bladder spasms this may be an option for you.

                When I picked up my VV I for sure was not told not to drink, i don't drink anyways my bladder doesn't like alcohol, but the pharmacist doesn't know that.

                MG
                My are with you all. May you all find a way to peace and joy in your lives.

                Comment


                • #9
                  No, I take it orally... I didnt know I could do that, I wonder why they didnt have me take it that way instead since its for pelvic. =/ Sounds safer... Im not a fan of this stuff overall.
                  Daisy
                  Age: 20
                  Pelvic Floor Dysfunction

                  Medicine
                  Valium- .05mg three times a day
                  (Lowered dose because it made me panic at night)

                  Other
                  Physical Therapy- Didn't started yet

                  Comment


                  • #10
                    There is lots of posts here about VV you should read some of them and ask your Dr. about rxing it for you. It does have to be compounded made at a compounding pharamacy.

                    MG
                    My are with you all. May you all find a way to peace and joy in your lives.

                    Comment


                    • #11
                      haha well now I know what VV means, I been confused reading it all over! Thanks! This is good to know about.
                      Daisy
                      Age: 20
                      Pelvic Floor Dysfunction

                      Medicine
                      Valium- .05mg three times a day
                      (Lowered dose because it made me panic at night)

                      Other
                      Physical Therapy- Didn't started yet

                      Comment


                      • #12
                        Sorry I should have wrote VV was vaginal valium I am just too lazy to write it all out.

                        MG
                        My are with you all. May you all find a way to peace and joy in your lives.

                        Comment


                        • #13
                          Dr. Moldwin put me on Valium. Tiny dose and hugely helpful.

                          Comment


                          • #14
                            Yes, I have used it both in suppository and pill form, and found it to be very helpful.
                            ----------------------
                            -Amanda
                            34 years old, bladder symptoms all my life
                            diagnosed with PFD and VV October 2009; IC May 2010

                            Current meds:
                            Cystoprotek 2 pills twice a day, Hydroxyzine 10 mg, Gabapentin 600 mg, Myrbetriq 25mg, Zoloft 25 mg, Mircrogestin, capsaicin cream (for vulva)
                            Other past treatments:
                            IC diet, physical therapy, Traumeel injections as needed, TENS unit, heating pad, instills with sodium bicarb, lidocaine, and mucosa compositum
                            Tried and didn't work:
                            Pyridium, Singlair, Nortriptyline, Elmiron, lidocaine and heparin instills (worked at first, then didn't anymore), various creams, acupuncture

                            Comment


                            • #15
                              I only take Valium occasionally because it causes a terrible feeling of panic in me the next day if I have them regularly (my doctor says she has several patients with the same hyper-sensitive reaction). The Valium does help with the pain and also helps with sleeping more deeply and so waking up less to go to the toilet. I was interested to read that in the US you have access to a suppository Valium which I wanted to try given my reaction to the oral version. I thought the suppository might not creat the same side effect. The pharmacist looked it up and said it was only available orally or by injection in Australia. Do you need a prescription to get it in the US? I was wondering if I could buy some from a mail-order pharmacy.
                              Diagnosed with severe IC Feb 2008. Symptoms since 2004
                              C5/6 fusion 2004. Chronic pain in neck and arms
                              C4/5/6/7 posterior neck decompression December 2012
                              Treatments tried for IC

                              Hydrodistension - made me worse for 5 months
                              DMSO installations (2) - second one caused so much pain that Dr decided not to do any more.
                              Numerous oral medications for the bladder, none of which helped.
                              4 treatments of Botox injections - minimal success.
                              Permanent Interstim implanted August 2012 - nil benefit so removed May 2013
                              Bladder nerve cauterization March 2014 and April 2014

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