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  • #1

    Physical Therapy for Pelvic Floor Dysfunction and IC

    I wanted to tell you all that I have been going to Physical Therapy for Pelvic Floor Dysfunction PAIN and IC for about 8 months now. It has helped me so much!!!!!!!!!!! If you can find a doctor to write you a prescription and then find a Pelvic Floor specialist in your area, you will be amazed. I was actually hurting more the first month I saw her, but she insisted it would get better and it did. It is very invasive. It is like spending an hour with your gynocologist each week. She does manipulation, sensor treatment, breathing, massage and tenz treatment. I was pretty embarrassed at first, but it really has reduced my IC pain. You will have to get over any embarrassment you have about your naked body! It is worth it to be naked for an hour, down there. I have the best Therapist; she is very knowledgeable about IC and how the whole pelvic floor works.
    Diagnosed with IC in September 2010, after suffering from chronic UTI's. I suffer from pretty bad insomnia as well.
    Prosed in the beginning of diagnosis. Cysta- Q helped heal my bladder.
    Amitriptyline (discontinued now, but was very very helpful), and Macrobid to maintain pain relief and get some sleep. Prelief and Marshmallow Root capsules/ or tea leaves, daily to maintain pain relief.
    Lyrica and Pristiq to maintain bladder urgency and help with nerve pain and sleep.
    IC diet is my life now. Stress reduction is a MUST to survive this illness.
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  • #2
    Oh wow. I had no idea such a treatment existed! I'm going to a new doc soon and if they recommend it, I'm not so sure I could go through with it. I'm a bit on the shy side, despite have been pocked, prodded and tested many times by the gyno and OB docs.

    How long will you need to have treatment? Is it a temporary fix or do they expect long term results? Just wondering.
    Frances

    Diagnosed: 2011 - have had symptoms for over 20 years. Diagnoses so far: Overactive Bladder, then IC, and now Myofacial Pelvic Pain Syndrome.

    Medicines: For IC am doing PT, and will be taking Gabapentin, Ativan, Tramadol and Ambien. Ice packs and drinking vanilla shakes help. Foods that cause a flare, tomatoes, yogurt, coffee, soda, all sports drinks, and most teas. Take Verapamil, Naproxen (as needed), Omeprazole, Frova (as needed) and receive Botox shots(every three months) for migraines. For allergies I use Claritin and Flonase. (Feel free to ask me any questions about meds.)

    Other conditions: Migraines, allergies, mild IBS.

    "If you believe, you will receive whatever you ask for in prayer." (Matthew 21:22)

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    • #3
      They expect it to be long term results ( not necessarily permanent), if I continue my breathing exercises and learn to release my very tight abdominal muscles. They think I will graduate in a couple of months, so that would be a total of about 10 months. I still have flares, but they are much less severe and go away much faster. I used to have flares that would last for months at a time and now they go away in a week or less. I am very shy too, but I decided I had to get over that. Of course, my Therapist is a very nice person, so that helped.
      Diagnosed with IC in September 2010, after suffering from chronic UTI's. I suffer from pretty bad insomnia as well.
      Prosed in the beginning of diagnosis. Cysta- Q helped heal my bladder.
      Amitriptyline (discontinued now, but was very very helpful), and Macrobid to maintain pain relief and get some sleep. Prelief and Marshmallow Root capsules/ or tea leaves, daily to maintain pain relief.
      Lyrica and Pristiq to maintain bladder urgency and help with nerve pain and sleep.
      IC diet is my life now. Stress reduction is a MUST to survive this illness.

      Comment

      • #4
        Re: Physical Therapy for Pelvic Floor Dysfunction and IC

        Hi how are u guys.. Hope u all are doing well.... Did physical therapy help u guys??? Please help

        Comment

        • #5
          Re: Physical Therapy for Pelvic Floor Dysfunction and IC

          Originally posted by Nancy1980 View Post
          Hi how are u guys.. Hope u all are doing well.... Did physical therapy help u guys??? Please help
          Yes, physically therapy for the pelvic floor helped me a lot. I had an excellent therapist, specializing in pelvic floor. It is worth it. You will feel very shy, as I did, to have someone work on your private body parts. But if you have a therapist who is caring and gentle I would do it!!!! I would only have a woman therapist if I were you. It took a long time, as I went for 8 months, but worth it!! I feel better than I did. Also reduce your stress and it will help too( with deep breathing exercises). I still suffer very mild flares but I'm better than I was.
          Diagnosed with IC in September 2010, after suffering from chronic UTI's. I suffer from pretty bad insomnia as well.
          Prosed in the beginning of diagnosis. Cysta- Q helped heal my bladder.
          Amitriptyline (discontinued now, but was very very helpful), and Macrobid to maintain pain relief and get some sleep. Prelief and Marshmallow Root capsules/ or tea leaves, daily to maintain pain relief.
          Lyrica and Pristiq to maintain bladder urgency and help with nerve pain and sleep.
          IC diet is my life now. Stress reduction is a MUST to survive this illness.

          Comment

          • #6
            Re: Physical Therapy for Pelvic Floor Dysfunction and IC

            My experience with PT is also positive, but I had a flare after one treatment. Did you also experience that right after PT the pain is worse? And what else (besides what you name in your signature) are you doing or taking? Do you keep the diet?
            Wish you to continue on this path!
            Pernille
            Struggling with urethral pain for 19 years. When it started in 95 I was told this was psychosomatic. I coped quite well with lots of remissions. Just when I got nervous and was stressed I had urethral pain and felt like I had to pee all the time.
            Cysto/hydro with biopsies in 2012, result: no IC. Had a first, second and third opinion and the result was always PFD or chronic pelvic pain syndrome. I encourage everyone with these symptoms to get a proper diagnosis! I am doing physiotherapy based on yoga exercises, I had been pain free for almost a year... Now unfortunately it is back. So I am still struggeling
            Greetings from Denmark!

            Comment

            • #7
              Re: Physical Therapy for Pelvic Floor Dysfunction and IC

              Originally posted by Pernille View Post
              My experience with PT is also positive, but I had a flare after one treatment. Did you also experience that right after PT the pain is worse? And what else (besides what you name in your signature) are you doing or taking? Do you keep the diet?
              Wish you to continue on this path!
              Pernille
              Yes, I did have quite a few bad flares when I started the PT. The pain was worse, but then got better. After the first month it got better. It really takes a while, but I hope your PT person is nice and gentle. If they are too rough or not caring you need to stop and find a new one.
              Yes, I still keep the diet. I am strict with the diet and never try spicy or acidic food/drink.
              The diet is very important. And drink lots of plain water everyday!!
              Have you tried to take Marshmallow Root pills or tea? That helped me a lot too. I still take them when I feel a flare.
              Reduce your stress, it will help too.
              Hope you feel better soon.
              Diagnosed with IC in September 2010, after suffering from chronic UTI's. I suffer from pretty bad insomnia as well.
              Prosed in the beginning of diagnosis. Cysta- Q helped heal my bladder.
              Amitriptyline (discontinued now, but was very very helpful), and Macrobid to maintain pain relief and get some sleep. Prelief and Marshmallow Root capsules/ or tea leaves, daily to maintain pain relief.
              Lyrica and Pristiq to maintain bladder urgency and help with nerve pain and sleep.
              IC diet is my life now. Stress reduction is a MUST to survive this illness.

              Comment

              • #8
                Re: Physical Therapy for Pelvic Floor Dysfunction and IC

                Thanks for your reply! That sounds encouraging!! I haven't been diagnosed with IC and the times I tried the diet it didn't make any difference. Right now I have pain again and I keep the diet, because I am scared.
                Your experience with PT is most welcome. I think my therapist is sometimes too rough.i have to tell her. And this is also good to know that it can get worse in the beginning. So, I keep trying. And about stress you are perfectly right, this is cause no. 1 for me!
                Warm greetings
                Pernille
                Struggling with urethral pain for 19 years. When it started in 95 I was told this was psychosomatic. I coped quite well with lots of remissions. Just when I got nervous and was stressed I had urethral pain and felt like I had to pee all the time.
                Cysto/hydro with biopsies in 2012, result: no IC. Had a first, second and third opinion and the result was always PFD or chronic pelvic pain syndrome. I encourage everyone with these symptoms to get a proper diagnosis! I am doing physiotherapy based on yoga exercises, I had been pain free for almost a year... Now unfortunately it is back. So I am still struggeling
                Greetings from Denmark!

                Comment

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