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so frustrated

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  • so frustrated

    just had my third clorpactin treatment on Friday

    It is very painfull for about 3 days and then I get a 1-2 week remission. It's worth taking the day off work, not eating after midight until the next afternoon, being put to sleep, eating digestive cookies for dinner and percocet. Then coming home and crashing for 24 hours.

    Not sure if it will help long term, I am thinking it will be the 1-2 week relief again,

    So I spent all day as I have done before reading on the internet about what others have done:

    cinnamon capsules, cayenne pepper, coconut oil, MSM, aloe vera capsules, prelief, cammomile tea, marshmallow root, querceten (spelling?), fish oils and the list goes on and on and on

    what to do next?

    After a year of trying antibiotics, hydrodistention, gabapentan, amytriptaline, antihistamines, instillations, marshmallow root, bromelain, fish oils, IC diet etc.. I am at a total loss for what to do.

    I am taking so much percocet and naproxen to get through the day, its very sad and scary, is this going to go on forever? I am about to turn 34, will I be able to have a baby? Boyfriend is frustrated about the lack of sex too.

    I am going to wait a month and see what happens and then try acupuncture, again, hoping for a miracle.

    If anyone has some words of wisdom or can offer some support let me know. I am feeling down tonight.

  • #2
    I am so sorry...

    I am so sorry you are having a hard time - I am, too.

    I've been dealing with IC for almost 18 months, and have only been treating it over the last 6. I'm not seeing great results, which can be very discouraging. I just keep trying to trust my dr (I've had to go through 3 uro's to find the right one) and my pt (she's great!) because they say this can be managed.

    Please know you're not alone - I will be praying for you today!


    • #3
      naproxen a lot of icer's can't use naproxen. it is an nsaid, and that class of drug is a bladder irritant for a lot of people.
      My are with you all. May you all find a way to peace and joy in your lives.