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  • #16
    Re: CBD saved me (hemp or marijuana work!)

    how do you know you have pelvic floor dysfunction? what are your symptoms? I had some pelvic floor physical therapy today (myofascial trigger point release). I don't think it did much for me. I really believe now that all my pain comes from the bladder because when I take AZO or have a bladder instillation all my pain goes away temporarily.

    Comment


    • #17
      Re: CBD saved me (hemp or marijuana work!)

      I take mine as an oil in my mouth. But they do make products such as patches and oils and creams that you can apply topically. I have not tried those. My physical therapist helps me with my tight pelvic floor through physical therapy, electric stimulation, (meaning a TENS unit), and massage. The CBD has a relaxing effect too, so that may help!

      Comment


      • #18
        Re: CBD saved me (hemp or marijuana work!)

        My understanding is that you have IC, like mine that is in the bladder and starts in the bladder, it can grow into a pelvic floor dysfunction. Meaning the pain that is felt in the bladder cascades. When you have pain in a part of your body the muscles around that part of your body begin to contract to try to protect it from that pain. That's how IC that begins in the bladder can become a greater issue. It's like a pain feedback loop that causes other parts of your body to react. That's very much what's happened with me. This CBD oil really helps me with the inflammation IN my bladder. That does not mean I stopped going to the pelvic floor physical therapist because she helps retrain the rest of my body around my bladder that has become so accustomed 2 tensing due to the pain, to learn to relax again. It is all interconnected. We must go after the pain while it's small. Not only in our bladders but in the surrounding tissues that contract in order to protect the bladder.

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        • #19
          Re: CBD saved me (hemp or marijuana work!)

          Let me share some more information with you concerning CBD oil. Hemp Derived CBD oil is benefiting many people with many things. There are a lot of misconceptions surrounding hemp. It is in the cannabis family. Hemp CBD oil is naturally lower in THC levels and some companies even have a THC free CBD oil.

          You want to make sure wherever you get your products from that you can see 3rd party lab testing. It should show the purity of the oil as well as the thc content. Hemp will leech from the soil it is grown in so you want to make sure that the product you are going to put in your body does not contain heavy metals etc. If any company you choose to buy from can't produce 3rd party lab testing before you buy the product, I suggest you walk away and find another company. There are some very reputable, quality companies out there and there are snake salesmen as well. So do your homework and really check things out.

          Another thing is that you want to make sure of how it is grown. Organic, non gmo is the best. You want CO2 extraction so you aren't picking up harsh chemicals from the extraction process.

          Realize that every person is different and will respond differently. Consistency is key in taking the oil. Another important aspect of this is to start taking the oil slow and build it up in your body. It is wasting your precious oil to take a full dropper full oil when you start because your body simply can't handle all of it until you get your endocannabinoid system "woke up" so to speak. A few drops twice a day is a typical starting point serving and work your way up from there adjusting as you go with how you feel. The longer I take the oil the more I realize how much my body is benefiting from it.

          I have had IC for over 40 years now. Do I feel it is benefiting my IC yes, will I ever say cured, no. It helps some of the symptoms that trigger flares for me and helps me deal with it better when I am in a flare.
          Jolene

          "Life is what happens when you are making other plans" John Lennon

          IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

          Information for Patients can be found here.
          http://www.ic-network.com/patientlinks.html


          Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




          Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

          "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

          Comment


          • #20
            Re: CBD saved me (hemp or marijuana work!)

            One more thing I want to add is to check your state laws. Legality does vary by state on where hemp derived CBD products fall. So the blanket statement 50 state legal is misleading so you must check your state laws.
            Jolene

            "Life is what happens when you are making other plans" John Lennon

            IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

            Information for Patients can be found here.
            http://www.ic-network.com/patientlinks.html


            Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




            Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

            "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

            Comment


            • #21
              Re: CBD saved me (hemp or marijuana work!)

              I was referring to CBD from hemp oil being legal in all 50 states. CBD oil from marijuana is not. That is due to the THC content and psychoactive properties of CBD extracted marijuana. You are free to Google this and you will find the CBD hemp oil is, in fact, legal in all 50 states. CBD originating from marijuana is not.

              Comment


              • #22
                Re: CBD saved me (hemp or marijuana work!)

                It all depends on how the state law is written. Some states their law is written that any plant in the cannabis family so in those states even the CBD from hemp is a gray area and I know some have been advised by their own attorney's not to use it simply because of the language of their state laws. People should always check their state laws. I am not an attorney and I know people in some of these states that can't use even the hemp CBD oil simply because of the language of their state laws. 50 state federal legal to ship in the US but the states have their own laws as well. These laws are changing and people just need to do their own research for their own state. I would never tell someone with a blanket statement it is ok because I know there are places it is not ok.
                Last edited by dyno; 06-25-2018, 04:17 PM. Reason: To add more information.
                Jolene

                "Life is what happens when you are making other plans" John Lennon

                IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

                Information for Patients can be found here.
                http://www.ic-network.com/patientlinks.html


                Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




                Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

                "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

                Comment


                • #23
                  Re: CBD saved me (hemp or marijuana work!)

                  The majority of CBD hemp oil that is on the market is made overseas. That is because harvesting hemp on a commercial basis in the United States is illegal. However, legislation is getting passed, hopefully very soon, to make it legal to farm it on a commercial basis in the states. That said, most of the hemp CBD oil that's on the market out there commercially, is from overseas sources, so it is legal in the states. I think we need to get a very familiar with the most recent DEA commentary made this May: https://www.anaviimarket.com/blogs/n...ederally-legal... if the DEA is not going to go after you for your CBD hemp oil and they have announced it this may of 2018, I don't want anyone to be scared off from trying this, because your health and your quality of life is more important. I have flown across the country countless times with a nice bottle of CBD hemp oil in my carry on, and the TSA never questions me, and no one is breaking down my door. This is something folks who are suffering should give a try if nothing else is working for them. I personally think CBD hemp oil is something IC suffers to try before they try elmiron and every other Pharmaceutical that is pushed on us. If the DEA makes the statement just last month that they are not going to go after you for it, and they find these overseas sources legal, perhaps you should listen to that more than myself or anyone else on this board. Let's look at articles and facts and data that is recent because this market is constantly changing on legality. I want to talk about what the federal government is saying today rather than what they said a couple months ago or a year ago, as a reason to hold you back from trying it. There is nothing to be afraid of, but you'll always have that one person or two that concentrates more on that and they do the benefits and the possibilities of how your life could change for the better. Yes, you need to be aware that if you're carrying around CBD oil from marijuana, in a state that is not legalized it, that may be an issue for you. I personally couldn't care less. My quality of life is more important. But DON'T be afraid of your CBD hemp oil. The DEA isn't interested in you. They just said so, and that it is legal.

                  Comment


                  • #24
                    Re: CBD saved me (hemp or marijuana work!)

                    I just spent about a half hour trying to find an answer to this --- I was looking for a DEA site for clarification, which I didn't find (I probably could if I spent more time), but I did look at some information printed by major newspapers/magazines, such as Denver Post and Forbes. I was able to find it legal in 46 states, including my Oregon.

                    The best advice I can think of is to check the law in your specific state if you want to try it. I did a search for CBD oil legality by state.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #25
                      Re: CBD saved me (hemp or marijuana work!)

                      Thank you Donna! Just today the FDA has approved a cannabis-based CBD drug to treat seizures. Things are changing every single day on this and all in the direction of legalization of even marijuana based CBD. I just don't want people to be scared off from hemp CBD based products based on a few folks outdated information. The DEA press release just came at the end of May saying they were not going to pursue any kind of hemp oil CBD based medicinals. This one thing, hemp CBD, has replaced all of my IC Pharmaceuticals. It's been life-changing and I think it can be life-changing for a lot of other people. That is why I sound so passionate about it. We all deserve a decent quality of life, and up-to-date information instead of outdated information.

                      Comment


                      • #26
                        Re: CBD saved me (hemp or marijuana work!)

                        Originally posted by Ginaandmybladde View Post
                        Thank you Donna! Just today the FDA has approved a cannabis-based CBD drug to treat seizures. Things are changing every single day on this and all in the direction of legalization of even marijuana based CBD. I just don't want people to be scared off from hemp CBD based products based on a few folks outdated information. The DEA press release just came at the end of May saying they were not going to pursue any kind of hemp oil CBD based medicinals. This one thing, hemp CBD, has replaced all of my IC Pharmaceuticals. It's been life-changing and I think it can be life-changing for a lot of other people. That is why I sound so passionate about it. We all deserve a decent quality of life, and up-to-date information instead of outdated information.
                        I just found this news release: In a news release today, the FDA announced its approval of a marijuana-derived drug called Epidiolex for the treatment of seizures in a subset of patients suffering from severe epilepsy. Epidiolex contains CBD, a cannabis chemical compound skyrocketing in popularity and driving what is estimated to have doubled into a $200 million market in 2018.

                        I hope it helps a lot of people --- and it's easy to check to be positive it's approved in home states.

                        Donna
                        Stay safe


                        Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                        Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                        Have you checked the ICN Shop?
                        Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                        Patient Help: http://www.ic-network.com/patientlinks.html

                        Sub-types https://www.ic-network.com/five-pote...markably-well/

                        Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                        AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                        I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                        [3MG]

                        Anyone who says something is foolproof hasn't met a determined fool

                        Comment


                        • #27
                          Re: CBD saved me (hemp or marijuana work!)

                          I get exactly where you are coming from because I use it too and I live in a state where the law is really gray. I just keep it at home and I don't travel anywhere with it. I am not going to go into why I have the knowledge I do on this but I can tell you in my state they do watch this a little more than some states do and it is not consistent. Some counties in our state are worse than others. It is all in how our laws in this state are written and just how much the law enforcement and county attorneys want to push things. I want everyone to know that I feel that the pure products that are out there are a good thing. I favor CBD oil in this form more than this new drug the FDA just released. The product I use is farmed and manufactured here in the USA.
                          Jolene

                          "Life is what happens when you are making other plans" John Lennon

                          IC diet cheat sheet....http://www.ic-network.com/diet/dietcheatsheet.html

                          Information for Patients can be found here.
                          http://www.ic-network.com/patientlinks.html


                          Jen's tips for great IC sex..http://www.ic-network.com/forum/showthread.php?t=22522&highlight=jens+tips[/url]




                          Newbie Angel...I will be happy to answer any questions or just listen. Email me at [email protected]

                          "IC Angel Volunteers are not medical authorities nor do we offer medical advice. In all cases, we strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you."

                          Comment


                          • #28
                            Re: CBD saved me (hemp or marijuana work!)

                            I didn't stress enough in my post that it's approved FOR SEIZURES ONLY.

                            Donna
                            Stay safe


                            Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                            Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                            Have you checked the ICN Shop?
                            Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                            Patient Help: http://www.ic-network.com/patientlinks.html

                            Sub-types https://www.ic-network.com/five-pote...markably-well/

                            Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                            AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                            I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                            [3MG]

                            Anyone who says something is foolproof hasn't met a determined fool

                            Comment


                            • #29
                              Re: CBD saved me (hemp or marijuana work!)

                              Is this the same CBD oil that I can find on amazon? I might be worth giving a try. I thought this would be something I would have to wait until marijuana is legally sold in my state, but this must be available for purchase now.

                              What brand do you purchase? How much CBD oil do you take? It seems a little pricey for a small bottle. Do you just take 1 or 2 drops per day orally?
                              Last edited by neohioic; 06-27-2018, 12:52 PM. Reason: I wanted to add more info.

                              Comment


                              • #30
                                Re: CBD saved me (hemp or marijuana work!)

                                Hi Neohioic,

                                I take a CBD oil from Ananda Professionals. My compound pharmacist sells it. An EXCELLENT product. There is another CBD I can recommend. It's called Hempworx. My good friend takes it for pain and anxiety. I think you should try it. I take 2 droppers full a day when the pain is bad and 3 droppers if it is REALLY bad. CBD is legal everywhere thank goodness!!! Check these out!

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