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Nerve block scheduled-what to expect?

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  • #46
    Re: Nerve block scheduled-what to expect?

    Jadia,
    THANK YOU for your response. I appreciate it so much. I got my pudendal nerve blocked in an attempt to stop some of my clitoral pain I was having. What kind of pain were you having? As for the caudal nerve block - what pain does that block? It's good to hear that yours are working out for you. I was so overjoyed to have pain relief for a day but so devastated when it came back. Are your nerve blocks guided with MRI or X ray? My doctor didn't use anything and just went in, which is why I was nervous. I was so scared he would hit the nerve. But obviously he didn't. I am hoping as I get more and more, the effects will build up

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    • #47
      Re: Nerve block scheduled-what to expect?

      I actually just scrolled up and saw your more in-depth description of your experience. I guess my only question now is - what type of doctor did this nerve block? A neurologist? Gynecologist? I'm interested in having more of these done and I want to make sure I'm going to the best person possible

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      • #48
        Re: Nerve block scheduled-what to expect?

        No problem at all!

        This was done by a pain management specialist. If you aren't seeing one, I highly recommend them in addition to your OB and Uro! They often can open up a whole new avenue of treatments the other two don't have access to!

        My first Pain Management specialist did his caudal's unguided. My second one though used an Xray to help guide him. He felt like he could more reliably hit the same place over and over again with such guidance...but it was a lot more expensive and I had a high deductible insurance at that time so...whew! I am with a third doctor now after a big move and am hoping to undergo the interstim implant trial sometime in Jan/Feb.

        For me, the caudal blocked out all the pain from my bladder and Urethra; all the cramping, the burning, the stabbing pains. It also numbed the senses of urgency and the frequency I was experiencing. My pain tends to be mostly in the Urethra and Bladder...probably a bit worse in the Urethra than the bladder in some ways...the bladder pain is a stabbing cramping pain where the Urethra is a stabbing...burning...cutting type of pain. When I don't have my nerve blocks, there are literally times I will be standing up or walking and I suddenly stop and go to my knees and I just have to pant through it...that's how the stabbing pains are. I have very rarely had clitoral pain, pain with intercourse, always though. So I can't really say if it would help that or not.

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        • #49
          Re: Nerve block scheduled-what to expect?

          Hi Nuthatch, I've just read all of your posts regarding your nerve blocks. My doctor is recommending a nerve block for my IC. I'm currently having pelvic floor therapy and wonder how pelvic floor therapy worked for you. I hope you have found relief after this period of time. Hope you receive this post and reply. God speed.

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          • #50
            Re: Nerve block scheduled-what to expect?

            I know this thread is old but I’m doing a nerve block fri and am nervous.how many did u get and how far apart?

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            • #51
              Re: Nerve block scheduled-what to expect?

              I got them for several years and I only stopped getting them because I now have a neurostimulator implanted that I love beyond life itself.

              Also if you read post #42 in this thread, you will find my blow by blow details. The originator of this post hasn't replied to anything here in 7 years so I am not sure if they are around to answer you, but hopefully I can add some comfort and clarity!

              At first they didn't last very long...about 3weeks or so. So every 3wks, new caudal. But as I got more and more of them they seemed to "build up". They lasted longer and longer in between. After a while they would last me 3 months at a time before I needed to get another.

              The idea of the caudal is a bit intimidating! But don't let your nerves get the better of you! It sounds a lot more scary than it actually is, imo...and this is coming from a person who was terrified of needles back when I started the caudals. It's mainly pressure that you experience, not pain. Depending on the location your doctor is putting the fluid and the nerves it touches you can get some strange sensations, tingles or numbness. The most "pain" I experienced was if the fluid was pushed to quickly into the caudal. This caused my calves to cramp up....as weird as that sounds! But if you communicate with your doctor and (s)he goes slow, any discomfort and pain should be minimal! Seriously! Talk their ear off...tell them -everything- you are feeling.... "ohhh! Theres a cramp in my right calf!" "huh...I've got a tingly sensation in my groin!" Anything you tell them can help them with placement and speed..also if it doesn't work or if it does...then you have "markers" to help guide for next time. My doctor and I used the sensations to know when he was "in the right spot". Just go as slow as you need to be comfortable and remember to breathe!

              Caudals really changed my life. Try to focus on the chance at relief from the IC more than being nervous about the procedure (the best you can). For me, that relief was worth anything...even fighting my absolute phobia of needles.

              I hope this helps and it goes well for you!!
              Last edited by Jadia; 11-27-2017, 01:36 AM.

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