Mitrofanoff and bladder denervation

[pelztier86]

hi,

I don't have ic but a severe emptying and storage dysfuncion of the bladder and uretrha.
The cause of the bladder issues is my underlying disease which is a severe chronic motility disease (proper peristalsis is not there)

I have now been offered the option of getting a Mitrofanoff, along with a bladder or maybe even pelvic denervation in hope that the pain will subside and the bladder capacity increase. This would enable them to use the bladder as a simple storage organ while creating a Mitrofanoff channel for catheterization.

Has anyone heard of or had these procedures done?
Also - anyone who has a Mitrofanoff - do you know if the jejunum can be used instead of the bowel segments usually used for the construction? For my bowel issues use of a jejunual segment would be better.

Total removal or augmentation of the bladder is rather risky with my bowel isses but a simple Mitrofanoff procedure would not work due to the pain and the little capacity.

Also, did you notice any change in bowel habits after the procedure?

thanks
Sarah

[lola99]

Hi there,

I realize this was posted a long time ago, but I wanted to respond and say that this is very interesting, as I am in a similar position as you. In theory my bladder can hold a normal amount, but the nerves tell me it's full when really it's almost or totally empty. I have tried every conceivable treatment, and am very intrigued by what your doctors have proposed. What is "bladder denervation?" Are there any risks? What have you opted to do? Please let me know - I'm thinking bladder removal isn't such a bad option given the way things are now, but what you're describing sounds equally satisfactory and less risky.

Thanks!