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  • Weight loss due to food sensitivities

    I am having so many flares from foods that I am losing too much weight. I am lactose intolerant but can have some fresh cheese. Can't have whole wheat, only fruit is small amount of blueberries, no cinnamon, no white sugar, no nuts, the list is long. No processed food, no chemicals, dyes, or additivies. I am desperate. The nutritionist at my hospital tried but at one point told me to, "put butter or oil in everything I eat". Does anyone know what I could put in my soy milk to help me gain? Any receipes would be greatly appreciated. Aya
    AYA

  • #2
    You will have to look this up and see if it would be tolerable to you but the name of the product is Benecalorie. I just ordered a new box and it's not here yet and I'm completely out. It's a 1 1/2 oz liquid that can be mixed into anything and it is bland in taste (although I don't suggest just slugging it, I tried it, bad). It has 330 per small packet and is balanced with fat and protein (I think, it's been a while since I read the pkg). I'm facing the same problem, not because of diet restrictions but because of my health. I always buy mine at walgreens online, they don't carry it in the stores.
    Also, I was told by a dietician, just put butter on everything. So I'm waiting for my heart healthy diet to be prescribed, lol. Good luck to both of us on the weight gain.
    Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
    Lexapro-20 mg
    Aciphex
    Ambien-as needed
    Percocet-7.5 up to 3 per day as needed
    Valium-10 mg x2 per day
    Phenergan-1 at night
    Prelief w/everything
    Now recovering from acute pancreatitis

    Currents treatments that help somewhat:
    Heating pad
    Hot baths
    Ice
    Being VERY still while lying down with legs elevated

    Comment


    • #3
      I am the same way. I have gluten issues and tons of food sensitivities. I can only really eat about 6 or 7 foods. This is so depressing. Unfortunately, butter makes me flare (cream)? Most oils do not, but I don't want to eat everything cooked in grease. (It is bad enough already).

      I am losing weight too and getting frustrated because I want to eat and I am hungry a lot of the time. I just hate the same few things over and over.
      Teresa

      We are not HUMAN BEINGS going through a temporary SPIRITUAL EXPERIENCE. We are SPIRITUAL BEINGS going through a temporary HUMAN EXPERIENCE....so that we may become more SPIRITUAL.

      Comment


      • #4
        weight gain

        Thank you so much for the Benecalorie. Your right KatieB it is BAD tasting, plus I have to slug it down. It gets rough eating the same things over and over, esp at this time of year. I have so far had one a day for the last 3 days. The only bad part of it is that it has sucralose in it which is not even a food product and has been given poor marks due to many chemicals. I called the company and they gave me the percentage in the product. It is miniscule but I'm taking it slow. Snowden1 know that you are not alone with your food issues. lol
        AYA

        Comment


        • #5
          Aya

          Can you eat oatmeal? That's what I put mine in and once it's mixed into something I really can't taste it. I'm REALLY sorry that you're having to slug it. That's bad. I'll keep thinking on things you could mix it with. Good luck from one skinny girl to another!!
          Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
          Lexapro-20 mg
          Aciphex
          Ambien-as needed
          Percocet-7.5 up to 3 per day as needed
          Valium-10 mg x2 per day
          Phenergan-1 at night
          Prelief w/everything
          Now recovering from acute pancreatitis

          Currents treatments that help somewhat:
          Heating pad
          Hot baths
          Ice
          Being VERY still while lying down with legs elevated

          Comment


          • #6
            Snowden,

            What 6 or 7 foods are they?

            Rachael

            Comment


            • #7
              oatmeal

              No, I can't have oatmeal and I used to love it. I have been tested for gluten intolerance and it was negative. Oats, whole wheat, rye, sourdough, they set off a flare with my vulvodynia/yeast issues. White bread and flour are OK. I'm cooking for 11 people this Christmas, it will be challenging. I usually slug down the Benecalorie with a water chaser, then drink my decaf, low acid coffee right away. :woohoo:
              AYA

              Comment


              • #8
                Rachael,

                My food list includes: Rice (including rice pasta), potatoes, chicken, green beans, almonds, turkey and ground beef (all natural meats). Vit B and C really hurt. I haven't found a buffered kind that works without pain yet. If I go outside this list the pain goes up to an intollerable level. I wish I could have some cheese at least, but all cheese sets me off (even brick cream cheese). Blueberries put me in extreme pain as do pears. I wonder if there is anyone else out there with food issues like this?
                Teresa

                We are not HUMAN BEINGS going through a temporary SPIRITUAL EXPERIENCE. We are SPIRITUAL BEINGS going through a temporary HUMAN EXPERIENCE....so that we may become more SPIRITUAL.

                Comment


                • #9
                  i have to stick directly to the ic diet, i tried two cups of coffee over a two day period and ended up with uti and ic flare. coffee never again unless they find a cure.
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                  Comment


                  • #10
                    diet

                    If I use frozen blueberries and heat them up I can have small amounts. Once in a while I can have asian pears. I noticed the greater my activity level the easier it is to eat forbidden foods. If I lay around it hits fast. The urethral "flare" is the worst. I use boric acid caps I fill every night, Clobetasol cream, and atropine cream as needed. I have Valium suppositories too. I have a great doctor and PA. Their not close by but I make the trip to Philladelphia a when I need too.
                    AYA

                    Comment


                    • #11
                      Aya

                      Can you have honey? If you can you can freeze some soy milk, add some honey,vanilla extract (?) and the benecalorie for a kind of smoothie. I'm just thinking of ways that you don't have to slug it. I only did it once and that was way more than enough!! I'm still thinking!!
                      Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                      Lexapro-20 mg
                      Aciphex
                      Ambien-as needed
                      Percocet-7.5 up to 3 per day as needed
                      Valium-10 mg x2 per day
                      Phenergan-1 at night
                      Prelief w/everything
                      Now recovering from acute pancreatitis

                      Currents treatments that help somewhat:
                      Heating pad
                      Hot baths
                      Ice
                      Being VERY still while lying down with legs elevated

                      Comment


                      • #12
                        Snowden1

                        If you can use the benecalorie, you can mix it with mashed potatoes. Really once you mix it in you really don't taste it. I'm still waiting on mine to be delivered. But when I was taking it regularly I used it 3 times a day which is an additional almost 1000 calories. I gained about 7 lbs but since i've run out I'm losing it again. Good luck, it seems like no one understands how devastating this can be. Everyone wants to lose weight. Which I totally understand, but when your losing weight and you can't seem to control it, it's scary and I don't know about you but I'm starting to look scary. So good luck to all of us!!!
                        Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                        Lexapro-20 mg
                        Aciphex
                        Ambien-as needed
                        Percocet-7.5 up to 3 per day as needed
                        Valium-10 mg x2 per day
                        Phenergan-1 at night
                        Prelief w/everything
                        Now recovering from acute pancreatitis

                        Currents treatments that help somewhat:
                        Heating pad
                        Hot baths
                        Ice
                        Being VERY still while lying down with legs elevated

                        Comment


                        • #13
                          There are many foods that are okay for most ICers. Unfortunately, soy is an irritant for may of us. One thing you can try is to print out the 2009 IC/PBS Food List and work with that. You'll find the link in my signature below.

                          Donna
                          Stay safe


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                          Comment


                          • #14
                            Soy

                            I forgot about that Donna. I was just going by what she said she could drink. But your right. Maybe almond milk?
                            Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                            Lexapro-20 mg
                            Aciphex
                            Ambien-as needed
                            Percocet-7.5 up to 3 per day as needed
                            Valium-10 mg x2 per day
                            Phenergan-1 at night
                            Prelief w/everything
                            Now recovering from acute pancreatitis

                            Currents treatments that help somewhat:
                            Heating pad
                            Hot baths
                            Ice
                            Being VERY still while lying down with legs elevated

                            Comment


                            • #15
                              Soy

                              I forgot about that Donna. I was just going by what she said she could drink. But your right. Maybe almond milk?
                              Katie-46 yr old female dx'd with IC after 15 years of symptoms off and on long term antibiotic use, GERD,IBS and now IC diet, gallbladder removed, endometrial ablation w/tubes tied
                              Lexapro-20 mg
                              Aciphex
                              Ambien-as needed
                              Percocet-7.5 up to 3 per day as needed
                              Valium-10 mg x2 per day
                              Phenergan-1 at night
                              Prelief w/everything
                              Now recovering from acute pancreatitis

                              Currents treatments that help somewhat:
                              Heating pad
                              Hot baths
                              Ice
                              Being VERY still while lying down with legs elevated

                              Comment

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