Tweet
I saw my new uro yesterday. He is young, funny, and more compassionate than any doctor I have ever had in my life. He made my other doctor look like a hack. He look at my treatments so far and actually laughed out loud when he saw I had been on flomax. He was extremly thorough! my appointment was sheduled for 1/2 an hour and he kept me for over an hour! The office staff was great, and his nurse is a sweetheart and said I reminded her of her daughter. They looked me in the eye when I spoke and rubbed me on the arm when I cryed-then cracked jokes to make me smile! They told me not to worry, since lots of women they see are on there last rope. I also have a whole new outlook on cystoscopys, if you can remember I kind of got a little ptsd from my one with the last uro, it wasn't pretty. I had a pelvic, rectal, catheter, and a office cysto! He THOUROGHLY numbed me up with lidocane and waited with me for 5 minutes just talking to me while it kicked in. He also gave me the choice to back out, if I thought it would be too much. I said "whatever it takes to help me go for it." The scope didn't hurt at all!!! No pain! I felt the pressure of it going in and out, but not even a pinch! He said my bladder looked ok
I didnt burn at all the rest of the day, not even the first time I peed after the cath and cysto! He reviewed my records and saw the treatments I had tried and failed. Elmiron, antibiotics, antihistamines, antidepressents, IC diet, bladder training, bio feedback, detrol,vesacare, ditopan, and the list continues. The first thing he told me was that, beleive it or not, my biggest problem is nerve related and my pelvic floor! He said my pelvic floor was a mess and I had severe high tone pfd. He gave me a referral to a great womens clinic especially for pelvic floor physical therapy. Its run by all women, and the receptionist Betty, whom I sheduled with there is a doll and said she couldn't wait to meet me! He interviewed all the therapists there personally and said it was one of the best clinics in the country for what they do. He said that the physical therapy was a must since I simply will not get any better with my pelvic floor the way it is. Then he excused himself for a sec and grabbed the interstim itself a lead and a replica of the spine. He told me that my nerves were miss firing. He said the physical therapy will help my pelvic floor and pain, and this will help my bladder communicate with my brain better. I said ok lets do it! He said, "I won't schedule you right now, its not ethical. You must do the pt or I won't do it. I will see you in two weeks. Really think about this, and watch the video and read the brocures." So I have my first pt on April 10th which to tell you the truth i'm looking forward to the "me" time. I was hoping for any insight you guys may have to offer good and bad. I have scoured the internet and have done tons of research alreay and ordered an info packet from medtronic. All I want now are personal experiences. I want to do it since bascially everything else has failed but I want to be realistic about the dangers associated as well. I read all of Cindy's info too including her Sticky. Advice would be much appreciated! Thanks again for the continued support, I'm long winded today sorry!
Erika
I didnt burn at all the rest of the day, not even the first time I peed after the cath and cysto! He reviewed my records and saw the treatments I had tried and failed. Elmiron, antibiotics, antihistamines, antidepressents, IC diet, bladder training, bio feedback, detrol,vesacare, ditopan, and the list continues. The first thing he told me was that, beleive it or not, my biggest problem is nerve related and my pelvic floor! He said my pelvic floor was a mess and I had severe high tone pfd. He gave me a referral to a great womens clinic especially for pelvic floor physical therapy. Its run by all women, and the receptionist Betty, whom I sheduled with there is a doll and said she couldn't wait to meet me! He interviewed all the therapists there personally and said it was one of the best clinics in the country for what they do. He said that the physical therapy was a must since I simply will not get any better with my pelvic floor the way it is. Then he excused himself for a sec and grabbed the interstim itself a lead and a replica of the spine. He told me that my nerves were miss firing. He said the physical therapy will help my pelvic floor and pain, and this will help my bladder communicate with my brain better. I said ok lets do it! He said, "I won't schedule you right now, its not ethical. You must do the pt or I won't do it. I will see you in two weeks. Really think about this, and watch the video and read the brocures." So I have my first pt on April 10th which to tell you the truth i'm looking forward to the "me" time. I was hoping for any insight you guys may have to offer good and bad. I have scoured the internet and have done tons of research alreay and ordered an info packet from medtronic. All I want now are personal experiences. I want to do it since bascially everything else has failed but I want to be realistic about the dangers associated as well. I read all of Cindy's info too including her Sticky. Advice would be much appreciated! Thanks again for the continued support, I'm long winded today sorry!Erika
In Memory of My Father (Lawerence) 1/25/2007
hehe Jake knows he will have lots of responsibilities during the recovery period.I have made up my mind and I have been praying that this is the right choice. My gut tells me yes, and I know I will regret not doing it. Thanks for listening and looking out for my best intrest.
Comment