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  • #1

    Questions

    I am just starting to look into interstim because a GYN suggested it might be a good idea. I have Vulvodynia and she feels if I get the frequency issue from IC under control it might help the Vulvodynia. Anyone helped by it?

    Here are some of my concerns:
    I have Type 1 Diabetes
    I need to have MRI's because of follow up for a lung tumor

    Help please.

    Ginny
    Tags: None
  • #2
    It's my understanding that you can't have an MRI with an interstim. I don't have vulvodynia, but there are many here who do --- hopefully you'll hear from some of them.

    Donna
    Stay safe


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    • #3
      Yesterday

      Doc said this would be next step for me. I DUNNO

      THEY SAY: these things stick out from your clothes and you can never clear airports, groceries etc. again.....that's a big big decision.

      AT this point, I will try to trudge on before doing it.

      Please keep us updated....... I want to hear all about it.

      BEST WISHES

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      • #4
        Hi Ginny
        It shouldn't be a problem with diabetes but ask your doctor. They told me it would not.
        As far as MRIs you can not have one! This has been a huge problem for me to deal with as I have a brain tumor that they found after the implants.
        I called every MRI place and my drs called every MRI place and not a single one would do it.
        There are a lot of risks to it.
        I was able to get one so if you would like more info let me know. I had to travel 12 hours away to get it.
        I can explain more if needed.
        Whatever you decide good luck and I wish you the best!!
        Current diagnosis
        Severe IC, Severe Endometriosis(keeps growing back all over despite surgeries and treatment), Chronic ovarian cysts, Chronic Pelvic Pain Syndrome,Fibromyalgia,Inguinal hernia, bursititis of the hip, Migraines, IBS, Celiac disease, CROHN'S Disease, Chronic Constipation, Chronic anal fissures, Vulvodynia, Pelvic Floor Dysfunction, Pirisformis muscle spasms,vulvar vestibulitis, chronic insomnia, Burning Mouth Syndrome, Brain TUMOR, Chronic Lyme Disease,Temporomandibular Joint Disorder,Degenerative disc disease,Arthritis.
        Allergies: Elmiron, Levaquin, Sulfa-Anaphylactic shock,Morphine, Doxyclycline,Cipro

        Treatments I have tried:Bladder instillations, Oral meds-Elmiron, Elavil (amitryptyline), Hydroxyzine (Vistaril & Atarax), Ditropan, Levsin, Urispas, Urised, Pyridium, Cystoprotek, Desert HarvestAloe,antibiotics,Ultram,Neurontin,Valium,Tramadol,Lunesta,Ketor olac,Cipro,Meloxicam,Dilaudid,Morphine,Vicoden,Darvocet,oxycontin,Lyri ca,Cymbalta,Nortriptyline,Enblex,Baclofen,Clonidine,oxybutynin,Detrol, Nitroglycerine ,Vesicare,Sanctura(there are more but this is enough)
        Physcial Therapy, Cystoscopy with Hydrodistentions, Numerous Nerve Blocks, Neuromodulation-including Sacral neuromodulation(Interstim) and post-tibial nerve stimulation (Urgent PC-12week), Botox, bladder instills, physical therapy, natural(herbs)Current meds: Long list..just email if you are interested
        Interstim implants--8 plus surgeries for them.
        I am selling IC awareness bracelets, keychains, pens and pins..if interested please email me! ThanksFeel free to email me at [email protected].
        One day at a time

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