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Sacral neuromodulation in Canada?

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  • Sacral neuromodulation in Canada?

    This March 2011 research study seems to show incredibly positive relief results with sacral & improved symptoms.
    This makes me want to look into it... anyone know the status / ease of getting this in Canada?

    'Long-Term Outcome and Surgical Interventions After Sacral Neuromodulation Implant for Lower Urinary Tract Symptoms: 14-Year Experience at 1 Center:

    Few reports address the reoperation rate after sacral neuromodulation implants. We report our long-term results and reoperations during our 14-year experience with sacral neuromodulation at our center.

    Materials and Methods
    We retrospectively reviewed the patient database at our center to assess the long-term outcome, incidence and cause of surgical re-intervention after InterStim® sacral neuromodulation implantation for lower urinary tract dysfunction between 1994 and 2008.

    A total of 96 sacral neuromodulation devices were implanted in 88 women and 8 men. Indications for implantation were bladder pain syndrome in 47.9% of cases, urgency urinary incontinence in 35.4% and idiopathic urinary retention in 16.7%. The explantation rate was 20.8% and median time to removal was 18.5 months. Reasons for explantation in all subgroups were poor result in 12 patients, painful stimulation in 6 and radiation of stimulation to the leg in 2. Median long-term followup was 50.7 months. The long-term success rate was 87.5%, 84.8% and 73% in patients with idiopathic urinary retention, urgency urinary incontinence and bladder pain syndrome, respectively. Overall 39% of patients needed revision of the sacral neuromodulation implant. The main reason for revision was loss of stimulation in 58.5% of cases. The revision rate decreased with the introduction of the tined lead technique from 50% using lead Model 3092 to 31% using lead Model 3893 (Medtronic, Minneapolis, Minnesota). The battery was changed in 8 patients. Mean battery life was 101.8 months.

    Sacral neuromodulation is a minimally invasive procedure with a good long-term outcome. The reoperation rate has improved with advances in surgical technique and equipment.
    Severe IC developed fairly quickly, autumn 2010.
    So severe that I was bed-bound & on 160mg/day morphine to cope with torturous pain levels, and unable to function other than hospital/medical appointments, for seven months. Then, miracle of miracles, something started working. I am steadily lowering the methadone dose level. I have been far out of that desperate nightmare hell zone for several months now and continue to improve.

    - Ranitidine (anti-histamine, H2-inhibitor) 300mg/day
    - Methadone 9 ml/day
    - Instillations:
    - 40ml Kenalog (steroid for inflammation) 2 x per
    week, along with rescue cocktail of heparin,
    lidocaine, sodium bicarbonate
    - 20ml Uracyst, monthly @ $100/per
    - Depo lupron injections for endometriosis, monthly @ $88/per

  • #2
    I am one that has had wonderful success with the InterStim Implant , have had since 1999 ...
    Thinking positive has got me through to another day!!


    • #3
      Interstim in Calgary

      I have been given a package with all the info about interstim being performed in Calgary. I am in Northern BC so the commute may not be what I want. My GP knows little about Interstim so I wouldn't have a support system in my own town. Still very apprehensive about going through with it...PM me if you want to chat.

      Interstitial Cystitis: Elmiron and Hydroxyzine
      Depression/Anxiety: Remeron, Cipralex and Clonazepam

      *tried instills for nearly a year, had a break then started again for about 4 months...discontinued due to no improvement and increased flares
      * 2 hydrodistentions :

      * currently on "Nabilone" for pain management

      Taken the following:
      Gabapentin no relief but could tolerate it
      Lyricano relief but could tolerate it
      Cymbalta severe depression/anxiety etc.
      Topamax severe nausea and weight loss
      Oxycodone: I could tolerate if I used it for flares only...not for extended use due to constipation

      What helps IC: yoga/meditation are my current treatments along with chiropractic and pelvic physiotherapy and acupuncture

      Other conditions...
      Vulvadynia (amytriptaline cream - no longer using to to irritation)
      Severe IBS
      Chronic Sinus pain (nasal rinse as need)
      Lower back and sacroiliac joint disfunction

      Allergies: Erythromycin, scents and detergents