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urethral irritation and interstim

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  • urethral irritation and interstim

    I do not have pain and only minimal freq and urg. My main problem is an incomplete emptying feeling and pressure around my urethra and in my bladder neck. Since this not exactly pain would the interstim help with this?

    Michaela

  • #2
    Michaela,
    I just wanted to let you know. The interstim does NOT help for pain. There have been a very small number of IC patients who had the implant put in for urgency and frequency and it did manage to help with pain. But that was pure luck. The reason for the implant is to help with severe frequency and urgency. There is an implant out there that is for pain. It is called the ANS device. The website for that is www.ans-medical.com They can send you free information on the device as well as a video tape that shows you how the procedure is done.


    Kelli
    IC Angel: Proudly supporting the Children and the Elderly with IC.


    E-Mail: [email protected]

    http://www.myspace.com/lilmiss200595


    Revelation 21:4
    "And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away."

    Comment


    • #3
      and I misread your post...lol You said you do NOT have pain and I thought it said you do have pain. Maybe it's time for me to get some sleep....lol
      IC Angel: Proudly supporting the Children and the Elderly with IC.


      E-Mail: [email protected]

      http://www.myspace.com/lilmiss200595


      Revelation 21:4
      "And he will wipe out every tear from their eyes, and death will be no more, neither will mourning nor outcry nor pain be anymore. The former things have passed away."

      Comment


      • #4
        That's ok kelli, I'm behind on my sleep to with all this worrying.

        Michaela

        Comment


        • #5
          Michaela~it did not help me. How ofter do you use the potty It's a huge step if you are only using the bathroom a dozen times a day......
          teri
          ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
          Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".

          Comment


          • #6
            When i had the frequency I was miserable but now that this urethral irritation has started i would give anything to have the frequency back. I voided roughly 12-15 times a day. Now it's this urethral crap bugging me to death.

            Michaela

            Comment


            • #7
              Micheala,
              did you talk to your uro about the interstim? got to www.interstim.com this is a great site. You may have a very naror urethia, maybe you need it dilated. hope fuly you can figure this all out
              Brat
              'The will of God will never take you where the Grace of God will not protect you.'

              Comment


              • #8
                It's just a thought, but have you considered talking to your doctor about trying a TENS unit? Some ICers are having some good results with those.

                I have never tried one for IC pain, but I did have one following a frozen shoulder from rotator cuff surgery and it was very effective for that. It was a rented unit --- sometimes I wish I had it to try for my IC.

                Sending healing thoughts,
                Donna
                Stay safe


                Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                Have you checked the ICN Shop?
                Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                Patient Help: http://www.ic-network.com/patientlinks.html

                Sub-types https://www.ic-network.com/five-pote...markably-well/

                Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                [3MG]

                Anyone who says something is foolproof hasn't met a determined fool

                Comment


                • #9
                  Donna,

                  I had not thought of that. Can you get a TENS unit from your uro? I thought I had to see a PT. I may check into that. I'm feeling better now. (knock on wood) I think all that cathing made me raw or something. I also think my nerves are going haywirer or something. Thanks for the advice!

                  Michaela

                  Comment


                  • #10
                    Any doctor can write an order for a TENS unit. And they are actually not expensive any more.

                    If you use the Google search at the top of this page and search the ICN, you will find links to information on TENS units.

                    Donna
                    Stay safe


                    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                    Have you checked the ICN Shop?
                    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                    Patient Help: http://www.ic-network.com/patientlinks.html

                    Sub-types https://www.ic-network.com/five-pote...markably-well/

                    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                    [3MG]

                    Anyone who says something is foolproof hasn't met a determined fool

                    Comment


                    • #11
                      Thanks alot!!

                      Michaela

                      Comment


                      • #12
                        I used a TENS unit for my IC for two years. It was wonderful! Helped with my urgency/frequency so much, and really helped my sleep. Unfortunately, no one told me that taping electrodes to the same place on your body for two years straight is a bad idea...so now I have allergies to adhesive & can't stand to have electrodes on my skin. Wish I could go back to that option.
                        IC & fibromyalgia since ~'77. Osteoarthritis since ~'88. Idiopathic Thrombocytopenia Purpura (autoimmune blood disease) since '96. IBS for who knows how long. Interstim implant 2/04, revised 6/06, replaced 11/12 & again in 9/17. Antibodies to thyroid since at least '92 (finally diagnosed & treated 1/06). Asthma & vocal cord dysfunction 12/06. Hypoglycemia '07. Perimenopausal at 37, menopause at 45. Pituitary & adrenal failure. Osteopenia. Grade 3 sacral fracture by S3-S4 at age 12, healed 14mm out of place.

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                        • #13
                          When I used a TENS unit, I used little gel squares that fit the electrodes. They worked very well and no skin irritation. I also am very tape sensitive.

                          Hugs,
                          Donna
                          Stay safe


                          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
                          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

                          Have you checked the ICN Shop?
                          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

                          Patient Help: http://www.ic-network.com/patientlinks.html

                          Sub-types https://www.ic-network.com/five-pote...markably-well/

                          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

                          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

                          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
                          [3MG]

                          Anyone who says something is foolproof hasn't met a determined fool

                          Comment

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