Hi everyone!, well, I had my 2nd. adjustment 2 weeks ago. But when I lied down my leg moved so much that it looked as if I was going to kick someone!, I had a new adjustment two days later. They left me in the same electrode as my first setting, they just changed my on/off intervals (I was 5 on and 5 off) now I'm 10 on and 10 off. (I posted a few days ago telling that my on/oo was 8 on and 8 off). My uro told me that he was really happy for the placement of the electrode, it was in a perfect position, no leg movement (in one of the electrodes) and a perfect rectal "movement" (in my adjustments my doc puts me in the same position as in the trial procedure to see your private areas movements, if you have a leg or toe movement).
Well, I told him that I didn't found an improvement with my urgency and incontinence with this setting, he told me that I have to "help" this therapy, (I have this urgency for all my life), he told me that I have to "educate" my bladder to hold more urine, I have to go to the bathroom every 3 hrs. even if I have extreme urgency ( I don't have IC, I have urgency and urge incontinence),it is extremely difficult for me to hold for 3 hrs!, I thought that this was the interstim that would do the "work". I told this to him, but the said me that my bladder needed to be re-educated and that it was as any muscle that had to be streched out.
He has helped me so much, and I know he is right with all this, but I think that my interstim should help me more with the urgency ...
After reading different stories, I know that sometimes it is necessary 4 or more adjustments, and I need to be patient, that it may take 1 yr. to find the right adjustment for me. But I'm so scared that all this surgery was for nothing! For me it is extremely difficult to have the adjustments, I have to fly to the States (I live in Mexico!), is at least 4 days out of work!
At this point I'm so dissapointed with the therapy (not with my doc), I know that it takes time, the bladder reeducation, etc... He gave me his cel phone to call him, and tell him how I'm doing.
I don't know what to think, it is just a few days in this re-training but, I don't find help with the interstim!!!! Maybe I need another adjustment, but he thinks that the electrode that is on, is the rigt one to give the stimulation.
Sorry for my long story... But I have to post this, I know that all of you have IC, and for you it is IMPOSSIBLE to hold because of pain, but, do you think that I'm on the right track?
Well, I told him that I didn't found an improvement with my urgency and incontinence with this setting, he told me that I have to "help" this therapy, (I have this urgency for all my life), he told me that I have to "educate" my bladder to hold more urine, I have to go to the bathroom every 3 hrs. even if I have extreme urgency ( I don't have IC, I have urgency and urge incontinence),it is extremely difficult for me to hold for 3 hrs!, I thought that this was the interstim that would do the "work". I told this to him, but the said me that my bladder needed to be re-educated and that it was as any muscle that had to be streched out.
He has helped me so much, and I know he is right with all this, but I think that my interstim should help me more with the urgency ...
After reading different stories, I know that sometimes it is necessary 4 or more adjustments, and I need to be patient, that it may take 1 yr. to find the right adjustment for me. But I'm so scared that all this surgery was for nothing! For me it is extremely difficult to have the adjustments, I have to fly to the States (I live in Mexico!), is at least 4 days out of work!
At this point I'm so dissapointed with the therapy (not with my doc), I know that it takes time, the bladder reeducation, etc... He gave me his cel phone to call him, and tell him how I'm doing.
I don't know what to think, it is just a few days in this re-training but, I don't find help with the interstim!!!! Maybe I need another adjustment, but he thinks that the electrode that is on, is the rigt one to give the stimulation.
Sorry for my long story... But I have to post this, I know that all of you have IC, and for you it is IMPOSSIBLE to hold because of pain, but, do you think that I'm on the right track?
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