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Medtronic Interstim implant Patient, I've got one and it works!

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  • Medtronic Interstim implant Patient, I've got one and it works!

    Hello Lady's and gents,
    For any of you that experience the lovely IC symptoms of urgency/frequency I do recommend at least giving the interstim trial a go! I've had my interstim now for about 4 years, it's helped me tremendously! Before having the device implanted I'd void about 50-60 times a day! I had to catheterize very often which of course brought on chronic UTI's! Since the implant I've had to go in and have the device checked here and there sometimes they will switch up the programs during flare ups. For the most part it's helped me out with urgency/frequency a tremendous amount! Now I void on average 10-15 max on bad days!!! I love my interstim!!! My biggest advice before going through with the trial is make sure you know how to adjust the intensity level of the nerve simulator!!! I have had a few mishaps with accidentally turning the device off or all the way up which can be pretty darn uncomfortable!!! The reps are very good about answering questions you have about using the interstim it's pretty easy to use once you catch on!!! The procedure was relatively painless, just one small incision in your lower/upper buttock. For me personally the office trial procedure was more uncomfortable than the actual surgery. Please feel free to post any questions if your a candidate for this device! I'm happy to answer any questions for you all! Love my interstim

  • #2
    Re: Medtronic Interstim implant Patient, I've got one and it works!

    I'm glad it's working for you.
    Stay safe

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    • #3
      Re: Medtronic Interstim implant Patient, I've got one and it works!

      That's wonderful to hear. My MIL has one for OAB and it works for her too. My uro says they are helping a lot of IC patients with it. It's one of those things I keep in mind for the future if I feel I need it. Thanks for letting us know.
      Diagnosed 1/7/14 via cysto/hydro

      Current Treatment:
      10 mg amitriptyline, DH Aloe Vera

      Used During Flares:
      Uribel, extra DH Aloe Vera, Klonopin and Tramadol (as needed)

      Practicing bladder training and stress control (hot baths, pelvic stretching)
      Recently tried PT, do not appear to have PFD

      Things that have not helped in the past:
      Oxybutynin, Vesicare, Pyridium, Myrbetriq, Vagifem

      Also have migraines and IBS


      • #4
        Re: Medtronic Interstim implant Patient, I've got one and it works!

        Hi, This is Lou Lou girl and Im scheduled to go through the trial and implant surgery in April. I have heard that those IC patients who have Fibromyalgia actually get much worse with regards to their Fibro, sense this interstim is interfering with nerves in the spine. Fibro actually comes from the Central nervous system which means it is in the spine and brain, but manifests itself throughout the body as muscle pain. It is suspected that Fibro can be triggered by a spinal injury. I developed Fibro after a spinal injury participating in Jujitsu. I am afraid that this implant may be interpreted as another "injury" and set off Fibro that is worse. Do you have Fibro? Is there anyone out there whose Fibro became worse, or who developed Fibro after getting interstim placed? I would really like to hear from anyone that might know something about this. Thanks, Lou Lou girl


        • #5
          Re: Medtronic Interstim implant Patient, I've got one and it works!

          I was diagnosed with IC in 2002 and fibro in 2004. Got my first Interstim in 2006 and when it died in 2011 I got another one. I had no problems at all with the surgeries or the device itself flaring up my fibro. In regards to my IC the interstim totally gave me my life back when it comes to urgency and frequency. I will never be without one!
          Live life to the fullest day to day. The best way to eat an elephant is one bite at a time!

          DX: IC - November 2002 after hysterectomy
          Interstim implanted March 2006 - died May 2011
          Interstim replacement June 2011
          Meds: Pain meds, muscle relaxer, cystex, and marcaine bladder instills as needed.
          Docs: Pain management doc, urologist, family practice