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The physical stuff I forgot...

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  • The physical stuff I forgot...

    Oh, I forgot the physical stuff:

    My butt has 2 incisions and a little hole from where the wire came out- they are tender, but the pain meds work well and I have only needed to take a few a day, otherwise tylenol. for me the scar in the middle runs into to my back surgery scar, so that doesn't really phase me. No one sees my butt anyway. (which is a bummer too, LOL).

    I was nauseated post op, but I did take meds for is better. Not a big appetite, but I am sure because I am bound up that is why....

    My constipation has been the biggest drag. I knew it would be, but did I plan- NO, so now I get to whine aobut it, sorry [img]eek.gif[/img]

    Overall- I feel more like myself each day (and I am a BIG BABY). I took 6 days off of work and will be fine to return (a little sore and a little tired is all).

    I am blessed to have an Indiana Pouch now
    IC since childhood, finally diagnosed at 31 yo
    PFD/Pelvic Pain,SI joint and LBP
    Low Back Pain s/p spinal fusion at 19 with more nastiness in back
    Hydrodistension 2001, 2005, 2011 w capsacian, 2011 with botox/ super pubic tube
    Interstim trial and removel 2002,C-Section 2007 and 2010, Post Partum Depression, post partum hypertension, Idopathic hypothalmic amenorrhea
    Radical Cystectomy with Indiana Pouch 2/3/12--->multiple complications and revision of ureters in pouch due to a giant ball of scar tissue in 8/12, occasional pylo, L kidney small and scarred, low flow
    Hysterectomy 2/3/12 w one ovary removed
    Dry Eyes
    L radical nephrectomy 1//3/14 after a long "what if " the conversation, kidney working 4 %, path said full of absesses
    Still have issues, still take meds.

    I have worked some, been doing pilates, just got a post masters in nursing, learning to pace myself.
    Learning things I can't do, learning things that I need to take a LONG time to master and regain myself, but mostly just so happy to be bladder free.:

  • #2
    Hope you are doing better now! Yes those scars are there, but not a bad trade-off if it works. One thing to note: some people, and I am one always have pain at the site of the implant if it's touched. Mine bulges out of my skin a little. What really helps me is to stick a minipad on my panties right where the implant is. And, I never, never lean against anything where it will touch the implant....too painful for me!! Hope this helps!
    Positive thoughts and prayers that new treatments for IC will reach all who struggle with this disease,