Turning it up

[yvette Support Leader Find all posts View Profile Close yvette]

Has Anyone ever been told to continually turn up their stim as time goes by? My rep has told me to...wondering if anyone else does this.

I assume its to keep getting better results. (?)

and....is this the right place to post this....there isnt really a "General Nerve Stim" board.

[Jazzy Baby Registered User Find all posts View Profile Close Jazzy Baby]

Ya, my rep told me to do this when I had mine, my doc did also. I did try to do it when I had mine, but I could never get mine to go up past 5, it just hurt too bad.

[Guest Close deborah b.]

<img src="graemlins/hi.gif" border="0" alt="[hi]" /> I do turn my up and sometime I have to turn it down because it starts to hurt in the butt. [img]confused.gif[/img] It really bug me that some time I can put it up for while and some days I have to turn it down. <img src="graemlins/banghead.gif" border="0" alt="[banghead]" /> I've been having cramping in my legs and feet. Does anybody have probelms with this???

[Teri Registered User Find all posts View Profile Close Teri]

<img src="graemlins/hi.gif" border="0" alt="[hi]" /> Hey Stranger! Have you been hiding from us [img]wink.gif[/img] Yes, I was told to go up a click or two every couple of days but right now I'm having a problem with major retention so I have it turned off more than it's on. The retention is a cycle I go into and the only thing that usually makes it better is a hydrodilation but my last one was sooooooooo bad on my uretha that I just don't wanta go there again, at least not yet [img]frown.gif[/img]

Miss U <img src="graemlins/kissing.gif" border="0" alt="[kissing]" />

[Gweniviere Junior Member Find all posts View Profile Close Gweniviere]

My rep also told me to keep turning mine up. As I have turned mine up it is harder for me to relax at night. If I turn it down then I have to resort to more medicene. Does anyone have a suggestion on how to handle this?
Tammi

"The happiest people don't necessarily have the best of everyhing. They just make the best of everyhing." [img]smile.gif[/img]

[codyryonwoodward Registered User Find all posts View Profile Close codyryonwoodward]

Hi! Yes I get cramps also. Mine is more in the area of my toes on my left foot. This is were the stimulation goes to.

[Guest Close deborah b.]

How long have you interstim in and when did you notice the cramping? I've been having cramping in my legs and feet. I've had my interstim in since April 2001 and the cramping had started about 4 weeks ago.

[yvette Support Leader Find all posts View Profile Close yvette]

Oh My!!! I've missed a lot....I've been gone for a little bit (Teri, you meant me...right?) Yeah, the house is suckin' the ever-living life outta me. With cleaning and desoderizing and revamping just so I can live there. My email has been disconnected temporarily while all new HW floors were put in....

OK so back to the Interstim question. I can't turn it up much either without causing pain/discomfort when I move, shift in my seat or bend over.I want to get better results and if turning it up will do it, then fine....but the stim is just too much sometimes <img src="graemlins/eek.gif" border="0" alt="[eek]" /> and I ceratinly can't sleep with all jacked up like that <img src="graemlins/cussing.gif" border="0" alt="[cussing]" /> <img src="graemlins/cussing.gif" border="0" alt="[cussing]" /> <img src="graemlins/cussing.gif" border="0" alt="[cussing]" />

Deborah, yes I too have cramping in my left foot & toes. and Sometimes it feel like someone is snapping a rubber band in perfect succession in my left a$$ cheek. ugh.

Thanks for the replies...I'll give awhirl again...I jsut don't know if I can really deal with it much higher.

y. [img]smile.gif[/img]

[Maureen Member Find all posts View Profile Close Maureen]

I have had my interstim two years this Tuesday. I have found that turning it up only makes me more uncomfortable and does not help the frequency etc. I am better at having it just at a level that I feel it only when I am sitting and not to the point it hurts.

[Teri Registered User Find all posts View Profile Close Teri]

As my uro and rep explained, they are learning that the 'window' in which the device will work is MUCH smalled than they had expected and hoped for so this actually makes sence. I know that with mine if I don't have it turned all the way down I go into complete retention. Sometimes to the point where I have to turn it off. I can actually feel it keeping my pelvic muscles in a spasm.

I think it will be years and years until they have all of the bug worked out of this device. I watched my father have his first quadrupal bypass surgery in 1986. Then, again 4 or 5 years ago another one and they gave him the aerota (sp) from a pig.... and it was completely a miracle what progress they had made in those years. Had they not made the progress my father would have died this time. Just more proof...........we can NEVER give up [img]wink.gif[/img]

[Dawn Marie Junior Member Find all posts View Profile Close Dawn Marie]

I had mine put in Feb.15th and I have been having my toes go into painful cramps or charlie horses ever since. They have tried all four leads and still when they turn it up my toes go down. They have set me up to have it redone on Sept. 25th. They say it must be too close to the nerve. I can't turn it up high enought to even feel any stimulation becuase my toes hurt so much.