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wondering if lead could be migrating

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  • wondering if lead could be migrating

    Ok my frequency is getting back up and my retention is also and while I don't have cramping in my foot I do have it in my left calf. Could this mean that my lead could be migrating?

  • #2
    Misea,
    That does not necessarily mean your lead has migrated. Call your doctor and rule out any other problems. Sometimes I had retention and could only void by self cath. Sometimes I could void on my own. I do not know how long you have had the interstim,how many programings and so on. Is there something else making you think your lead moved? Are your stimulations in the same area? Are you feeling any sensations that you did not in areas that you did not before? It may not be your lead it could be something else. What about a bladder or UTI infection? Give the doc a call and see what he has to say also.
    Take care please,
    Chady

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    • #3
      Misea did you have any tingley in your feet at all? I've been having cramping in my feet, legs and toes plus the tingley. I doctor finally looked at my x-ray that I had taken last week and told me that the lead is still in place. I know that there is something going on there. I have apt with doctor in Pittsburgh for a second oppion next Tue. My doctor recommend for me to see another doctor. My doctor office called me back this afternoon and told my Mom I would have to come up and get the x-rays. But I am calling them and telling them they will have to mail my x-rays because it it a 4 hour drive for me to get the x-rays plus I would have to get someone to take care of my MOm. But I do not feeling like driving 4 hours. I'm getting so upset with him and his office staff about this. It just like when you have problems they don't want to talk with you about it. I talked with a girl tonight on the phone that is having problems with her doctor and office staff to return her phone calls.
      She is have major problems with her interstim.

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      • #4
        Misea,

        You may want to call your doc and let he/she know what is happening. It could be an infection so you may want to drop off a urine sample to be cultured. If it's not an infection ask your doc if you could go in for X-Rays to see if the lead migrated.

        Good Luck to you!

        I hope it works out either way!

        Kara
        <img src="graemlins/blink.gif" border="0" alt="[blink]" />
        "Never take, I don't know how to help you as an answer."

        [email protected]

        Kara

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        • #5
          The leads do not always have to move to create a problem,but an exray will show if they have. I was exrayed and mine were in place and still had serious problems. See if they have moved when these problems start and then if not insist on some answers to all your questions from your doctor and Medtronic...this failure to answer questions,take phone calls or whatever when you are dealing with such a device as this..being it is neurological is totally as.......nine. These doctors need to start answering your questions and give you honest and direct feed back on what could be going on instead of the run around so many of you are getting. There are those of us who are working to try and improve that nonsense with these doctors and with Medtronic. This interstim is not something that you play around with as it is NEUROLOGICAL and can and does effect the body.
          Please insist on getting your questions answered.
          Take care of yourselves and take no chances with this interstim.
          Chady

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          • #6
            Misea,

            I had mine put in in Feb. and ever since I have been having cramping in my toes. They have tried all settings and all four leads. The X-ray showed the lead was in the right place. Now I am going in for a revision next Wed., Sept. 25th. I have heard of others who have had revisions for this same reason. I hope yours can be fixed with an adjustment.

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            • #7
              Please see my old post to you in prayer request thatks Katherine
              Life is what you Make It .By being kind to every one and all creatures your life will be more pleasant. Live your life for GOD and if it were the last day you were alive becausse it maybe.

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