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Necessary cautions for Interstim Patients

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  • Necessary cautions for Interstim Patients

    What do you think of med alert bracelets stating that we have an interstim device and in case of an accident have the medtronics 800 # on it....I will be calling medtronic this week to see if we can get any help from them. I am quite sure that the longer the device is around for, there will be more testing that they will find that we shouldn't take part in and I think that if there is an 800# on the bracelet it could make all of us feel a little bit less concerned about what should and shouldn't be done while we have this device....do I have anyone behind me???
    teri
    ~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
    Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".

  • #2
    Anyone who has any type of device implanted in their bodies should wear a MedicAlert identification. The same is true if you are allergic to any medications.

    My husband and I both have bracelets --- he because he has an implanted heart valve, I because of my medication allergies.

    Basically, all you need to do is contact the Medic Alert folks and ask for application information.

    Warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

    Comment


    • #3
      Teri:
      As you typed this message........
      I have a med alert bracelet on order !!
      I was told my doctor along time ago to get a bracelet but never seem to get it, now I am glad I waited to include the diathermy therapy on it now.....

      I have the InterStim Implant listed on it and about the diathermy therapy and also what I am allergic to IVP and Aspirin ..
      Also I have asthma..........

      I guess I am ahead of you on this !!!!! :eek:

      It sure is a good idea..
      They have a web site at www.medicalert.cathis is the one in Canada, but it will give you a good idea of what kind of bracelet you would like to have or necklet...

      Hugs: Debbie
      Thinking positive has got me through to another day!!

      Comment


      • #4
        I too have thought of getting a Medic_alert bracelet re: the diathermy.

        BUT....I faxed over the letter from Medtronic regarding the Contraindiction to all of my doctors to keep with my medical records.....NO ONE KNOWS what diathermy is.

        This frightens me. Even with the bracelet stating "No Diathermy", If I ever am unable to speak for myself, then what?
        Somewhere there's a reason /Why things go like they do /Somewhere there's a reason /Why some things just fall through /We don't always see them /For what they really are /But I know there's a reason /Just can't see it from this far /Maybe I don't like it, /But I have no choice /I know that somewhere, /Someone hears my voice / I thought I knew it all /I thought I had it made /How could it end this way? /I thought I knew Somewhere there's a reason /Why things don't go my way /Somewhere there's a reason /That I cannot explain /Just like the change of season, /Just may not be my turn /But I know there's a reason, /The lesson's mine to learn

        Comment


        • #5
          One thing --- anyone who would be initiating a diathermy treatment knows exactly what it is.

          Hugs,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment


          • #6
            When I got this implant, one of the first things I asked my doctor is if I needed a medical bracelet and he said no. I thought considering I shouldn't have an MRI and now with the diathermy, I thought about it more and more each day. Scary that my own doctor didn't think I needed one. Why in the world wouldn't it be mandatory?

            Dana

            Comment


            • #7
              Yvette,

              Go to www.interstim.com and there is a section called 'important safety information' and you will find the information you are looking for.

              Amanda
              ([email protected])

              Comment


              • #8
                Thanks Amanda, I actaully have the letter from Medtronic (it's the same as the website info). That's what I faxed to all my doctor's...they still have no clue. Again, thanks anyways.
                Somewhere there's a reason /Why things go like they do /Somewhere there's a reason /Why some things just fall through /We don't always see them /For what they really are /But I know there's a reason /Just can't see it from this far /Maybe I don't like it, /But I have no choice /I know that somewhere, /Someone hears my voice / I thought I knew it all /I thought I had it made /How could it end this way? /I thought I knew Somewhere there's a reason /Why things don't go my way /Somewhere there's a reason /That I cannot explain /Just like the change of season, /Just may not be my turn /But I know there's a reason, /The lesson's mine to learn

                Comment


                • #9
                  Funny you should mention this Teri
                  Just last week my Interstim friend in NC decided to order herself one. I have the website for anyone who wants it.
                  I think Medtronic should give us all one for our devices.
                  Dede
                  dont know how to put it on here but this is it www.meical-id.com

                  Comment


                  • #10
                    Medtronics gives you a card to keep in your wallet and wallets are usually checked for emergency info in the ER. I recently got a medicalert necklace after my rheumatologist said I should have one because I am on steroids. That is what prompted me to get one but I also put down that I have the implant and can't have MRI's. To add the diathermy caution you just need to call medicalert. The tag doesn't need to change. The hospital calls medicalert and gets all your info from them. But thanks for reminding me to have them add no diathermy to my record.

                    Comment

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