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Oooops, doc forgot some wires!!!!!

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  • Oooops, doc forgot some wires!!!!!

    I went to the Nuero yesterday so they could test my nerves to see why I am still getting the shooting pains down my legs and up my side. These pains are horrible and driving me crazy. He said that he can tell that I am in a lot of pain, from the EMG, (that by the way hurt like hell) he could see that the pain is coming from S1. Well, after he was done running the tests he decided to take a look at my X-rays. Oh my, there are still wires in me. Alot of them. There is the interstim wire, looking like it is still attached to my spine. I called my doc, and he is going to florida for the week, so he will see me next wed. so for the meantime, I am going completely crazy. My legs and back hurt so bad, and now I know that there are wires floating around in there, and the nuero doesnt know if they can hurt me more or not. He said that they can migrate into my nerves further, and cause me more pain. I dont know what to do. I trusted my Uro with all my heart. Even after all with the interstim, I still trusted him, and he swore that there was a clean removal, and there were no complications. Now I know he lied to me. Was he in such a hurry that he missed them, or were they already migrated into my nerve so far that he couldnt move them, but he didnt want to tell me that. That is really not fair to me. I am so sick of doctors doing these types of things to me. I will never trust another doctor as long as I live. I have to find a whole new Uro now. I dont wanna do that!!!!! Anyone know what I should do????? [img]confused.gif[/img] [img]confused.gif[/img] [img]confused.gif[/img] [img]confused.gif[/img] [img]mad.gif[/img] [img]eek.gif[/img]
    Hope everyone is having good poddy days!!!!!!!


  • #2
    Did the neurologist have any suggestions? If not, I think you should call him and ask. It could be that seeing a neurosurgeon would be a good idea. I know you're in a really tough spot right now.

    Sending warm hugs,
    Stay safe

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    • #3
      Just something else to get my panties in a bunch about and start beating on my favorite drum [img]wink.gif[/img]

      When I had my re-do in October my uro ask if I wanted the old left in and I said ABSOLUATELY NOT!!!!!!! He contacted Medtronics and they said it was safe to 'snip and cap them' and I said NO WAY!!!!!!!!!! Well, I am sure that they were removed because of how long my surgery took, for how much pain I was in afterwards AND my uro told my husband that these wires that had only been inplace for 2 years were much harder to removed than he had imagained.....

      People can come here and choose to read these stories or they can come here and choose not to read these stories. BUT, if WE have a story to share, I believe with my whole heart that it's our responsibility to share.

      You have been thru complete hell with this Jasmine and I sure do hope the next professional you are talking to has atty. after his name.

      tons and tons of hugs~
      Courage does not always roar. Sometimes, it is the quiet voice at the end of the day saying, "I will try again tomorrow".


      • #4
        I called both my primary and my atty this morning, and they both said the same thing, nobody is going to touch me. I am a mess, and its because Doc J, and he is the one that is going to have to fix me, because if another doc tried to take it out, and messed me up worse, than he would be liable. So, I have to let the man that I despise, and have lost total confidence in, cut me up again, and hope that he doesnt parellize me. I dont know if I can do it. I dont ever want to see him again, let alone go into the operating room and let him have fun on my back again. I am so scared, and my back hurts so bad. Now I know why it feels like someone is poking me with a knife, I guess thats kindof what is going on in there, I am getting poked non stop. I really dont know where to go now. I have tried to stay on top of this, and not let this interstim break me, but I dont know what to do this time. I have never been this scared about something in my life, and the only person that can help me has did this to me. [img]confused.gif[/img]
        Hope everyone is having good poddy days!!!!!!!



        • #5
          I'm so sorry for you!!!!!, If I were you, I would go to a neurosurgeon as ICDONNA suggested. And if you don't trust your doc and are in so much pain, why will you wait for 1 more week!!!!!


          • #6
            (((((((jasmine))))))) that is so wrong! ugh. I can totally understand your not wating to trst another Doctor....yeeesh! Time for snapping some necks? OK so you can't really, my only suggestion find a uro throught other ICers. I wish you could find another neuro-surgeon. And even if it was in another state or not covered by your insurance...someone should really be paying for this, and not you. The onus should be placed with who screwed this up. Whether or not that's a possibilty....I'm not sure, but perhaps take a look.

            I hope you get soemthing resolved of this mess soon.
            Hugs and more Hugs to Jasmine!
            Somewhere there's a reason /Why things go like they do /Somewhere there's a reason /Why some things just fall through /We don't always see them /For what they really are /But I know there's a reason /Just can't see it from this far /Maybe I don't like it, /But I have no choice /I know that somewhere, /Someone hears my voice / I thought I knew it all /I thought I had it made /How could it end this way? /I thought I knew Somewhere there's a reason /Why things don't go my way /Somewhere there's a reason /That I cannot explain /Just like the change of season, /Just may not be my turn /But I know there's a reason, /The lesson's mine to learn


            • #7
              i wish one of you would help explain to me.first i will tell you i dont have my bladder. i have my stimulator for pain.everyone keeps telling me tey are the same. i dont have any wires to get changed,i have a 5 year battery.i hear stories of several women having sharp pains in their tailbone, legs .ect. cant you turn your remote onandoff and turn the voltage up and down.i am just wondering.thank you i go in 3 weeks and a neurosergeon is doing a surgery he says he can get to the nerves my pain dr cant after hearing all these stories i am getting so nervous.thanks again deedee
              dx'd i.c in 96,too many treatments and meds to remember before badder removed in 2000.pain returned..has since been on roller coster of narcs ad other things..3 suicial att..went into hosp to withdrawl from sooo many narcs and wt. got down to 85lbs....came out eating small amounts ad keeping them down..the only pain med was ultram 50mg q 6 hrs..and gabapintien sorry..can spell..600 mg q 6 2003..nowin 2006-ive had mesh pulled from myvaginal walls 3 timesso pain is severe again but also in rectum now..had to add hydro/app q 4 hrs.!!!but i still pray there is hope..i just need o find it.