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  • controversial interstim

    It has been a couple of months since my implant. The beginning was awesome...I felt as though the pain was gone and my trauma around urinating was no more. Shortly thereafter I got a blood infection..which I now know had nothing to do with the implant. Turns out I have some sort of inflammatory bowel thing. Some of my symptoms have returned and I am having difficulty again..urinating...with pain. I also have a uti that does not seem to want to go away. I don't regret anything. This is a bad disease and I am doing the best I know. I will continue to try and cope, and hopefully the bad stuff will go away. I just think people need to be careful about what they read, just because someone has a bad experience with the stim doe snot mean you will....don't let it scare you away. This is by far the best treatment for me....even though there may be some bugs... I would never self cath...and I would never ever have an instillation of any kind ever again. Interstim is not a monster, just a way to try and treat a bad disease ( even though it is not approved yet for IC)
    Carlye

  • #2
    I would give an adjustment a try--- try contacting your surgeon and you Medtronic representative.

    Amanda

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    • #3
      hELLO, i AMAN iNTERSTIM FAILURE. i HAD THE IMPLANT IN jAN. 1999 AND IMMEDIATELY STARTED HAVINGPAIN IN THE INCISION WHERE THE BOX WAS IMPLANTED. i COULD NOT EVEN TAKE A SHOWER IT hurt soo MUCH. i HAD THE DEVICE REMOVED IN mAY 1999 AFTER A THREE HOUR SURGERY OF "digging" in my back.
      Since then, I've been to NUMEROUS pain specialist with NO HELP! I have severe pain in my lower right groin and I fel the Interstim made tis much worse because it deals with the same nerves. I am havin a iilo-ingrional nerve exploration on November 6th. I just hope I'm making the rigth decision. I don't trust my instincts anymore. I am soo hurt by the betrayal of the company that I don't know who to trust. I'm on mega doses of pain meds. and am still in pain. I really hope this device helps other IC SUFFERS OUT THER BECAUSE AMYBE THAT WOULD MAKE ME FEEL THAT i DDN'T GO THROUGH THIS HELL FOR NOTHING. I wish you all the very best in watever treatment works for you. I need alot of help greiving this loss and I feel that the company should be held accountable but I can't find a lawyer willing to take them on Any suggestions would be greatly apprecated.

      Deb

      Debbie Hooper

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      • #4
        hi
        I guess I want to add my opinion. I feel like this option above all the other treatments I have tried is a gift from god. I know that sounds silly but I didn't find that all the pills, the diet, the dmso, nothing worked The interstim is working. I can go shopping I can go to church and I don't constantly obsess about where the bathroom is. I know that not everyone will be this lucky but I for one want to thank this company and my doctor for helping me.I wish you luck and pray you find a solution that works for you. With this disease thats all their is, small victories that work for each of us even if its a day at a time.
        Take care.
        Annette
        Annette.

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