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  • Botox or interstim

    My URL gave me the choice of trying Botox or the interstim. Not sure which way to go. He did am ultrasound at my last visit and I am having a little retention. So self cathing may be a drawback of Botox. I know there are succes and horror stories with both. I have a lot of urgency/frequency. Not sure which way to go. I go back on Aug 4.

  • #2
    Re: Botox or interstim

    Originally posted by lindao76021 View Post
    My URL gave me the choice of trying Botox or the interstim. Not sure which way to go. He did am ultrasound at my last visit and I am having a little retention. So self cathing may be a drawback of Botox. I know there are succes and horror stories with both. I have a lot of urgency/frequency. Not sure which way to go. I go back on Aug 4.
    I can't really give you advice on this, but will try to note some of the positives and negatives on this:

    If you choose Botox it might help and there is one positive that comes to mind: If it doesn't help or if it has a negative effect, I have read that it's not permanent.

    The interstim can have some negatives: The interstim is implanted into the body so it involves some surgery; if there are negative results, it might mean you will need more surgery to remove the unit.

    I know it's difficult to make a decision; you might want to get a second opinion before taking this step.

    Sending healing thoughts,
    Donna
    Stay safe


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    • #3
      Re: Botox or interstim

      Hi,
      During my 5 year journey to a correct diagnosis, I have had both the Interstim implant and the Botox bladder injections. For the Interstim, I got excited because the trial (temporary) implant improved my frequency, urgency, and nocturia. So I went ahead and got the Interstim implant. It worked well for about 4-6 weeks. Then, not so much. The symptoms returned. I went back in many times to have it reprogrammed, and I tried every setting on the unit itself. It just wasn't working. I had it removed after about 2 years. Shortly after, I tried the Botox. I was one of those that lost the ability to pass urine for about 2 months and had to self-cath. I regained the ability slowly, and it seemed for a couple of weeks it was going to work. But unfortunately my symptoms returned. So by the end of the third month after Botox, I was back to experiencing my symptoms. On a positive note, I tried. I had to I guess. And my doctor hung in there with me. Even though they didn't work for me, I'll not have to wonder because I tried. Also, I tend to agree with what Donna alluded to in her post. If you choose Botox first, it's the less "invasive" of the two options and it wears off. But I f it works, then that's less stress on your body than the Interstim implant procedure. If you get the Interstim, you may never be able to have an MRI unless you have a head trauma. I needed an MRI of my wrist, and the ortho even asked them to just send me thru the MRI with my arm extended so only my wrist entered the "donut" imaging area. The radiologist flatly refused, and so did another that we asked. They said there's a special imaging apparatus for head trauma, and that's the only way they'd let someone with an Interstim implant get an MRI. I hope your answer becomes clear.
      Cheers,
      John
      • Incorrectly diagnosed with BPH in 2009
      • Incorrectly diagnosed with OAB in 2011
      • Correctly diagnosed with IC via cytoscope/distension July 26, 2014
      • Diet has helped some with pain and burning, but not so much with uncomfortable ejaculation, urgency, frequency and nocturia
      • Tried every major bladder/prostate med with little improvement
      • Interstim implanted, then removed after 2 years and many reprogrammings
      • Botox bladder injection in Mar. 2014, lost ability to pass urine for 6 weeks, IC symptoms returned soon after worse than before
      • Diazepam 5 mg at bedtime as needed
      • Tried 6 weekly bladder instillations of Marcaine/Sodium Bicarb/Kenalog/Heparin from Sep. - Oct. 2014, had to self-cath once or twice after every instillation, pelvic area sore for 2 to 3 days after each instillation, no overall improvement
      • Trying Elmiron oral next

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