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  • interstim device

    I had the interstim device removed on march 21, 2016 and all was under control with Ditropan medicine. Since the removal I have urgency most of the time and spasms of the pelvis. I also have fibromyalgia. my doctor tried to give me uroxotrol to control the urgency, but that made it worse. his nurse suggested that I see a neurologist for the spasms. also the spasms started with the interstim implant which never worked well and I thought they would go away when I removed the device. I don't know why the urgency became worse with the removal. all was ok even when the interstim was in even though it was shut off. aside from the neuro, the doctor does not know what to do with my case. I tried physical therapy in the past, I've tried it all.

  • #2
    Re: interstim device

    to the IC Network.

    Have you seen the AUA Guidelines For Treatment? There's a link in my signature below. You may find some options there to discuss with your doctor.

    Warm hugs,
    Donna
    Stay safe


    Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
    Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

    Have you checked the ICN Shop?
    Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

    Patient Help: http://www.ic-network.com/patientlinks.html

    Sub-types https://www.ic-network.com/five-pote...markably-well/

    Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

    AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

    I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
    [3MG]

    Anyone who says something is foolproof hasn't met a determined fool

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    • #3
      Re: interstim device

      Originally posted by ICNDonna View Post
      to the IC Network.

      Have you seen the AUA Guidelines For Treatment? There's a link in my signature below. You may find some options there to discuss with your doctor.

      Warm hugs,
      Donna
      Thank you Donna. I am 65 yrs. old and do not have the advanced computer skills. I will see the nurse practitioner who is in my doctor's office (Moldwin) on July 6 and have made an appointment with a Neurologist at the end of July and will mention this to her. I will ask her to give my an instillation which I have done in the past but I do not know if the DMSO will work this time around. I never had severe IC. Now with the spasms it is pretty bad, not the frequency but the urgency. The doctor is reluctant to give me Botox shots because I am unable to catherize and I am so sensitive due to fibromyalgia . He is afraid that I will be stuck with the outcome of the procedure for six months if it not a good one. This is where I stand right now. Much anxiety with these spasms.

      Comment


      • #4
        Re: interstim device

        brooklynevelyn: What Donna was telling you was to look at her signature which is at the bottom of each of her posts. She has some helpful links there that you can click on for some great information, including the AUA Guidelines. AUA stands for American Urological Association. To help you out, I'll post the link separately so that all you have to do is just click on it:

        http://www.ic-network.com/conditions...ua-guidelines/

        "When you gotta go, you gotta go!"

        Comment


        • #5
          Re: interstim device

          Originally posted by Bladderella View Post
          brooklynevelyn: What Donna was telling you was to look at her signature which is at the bottom of each of her posts. She has some helpful links there that you can click on for some great information, including the AUA Guidelines. AUA stands for American Urological Association. To help you out, I'll post the link separately so that all you have to do is just click on it:

          http://www.ic-network.com/conditions...ua-guidelines/
          Thank you; I was just going to post the direct link.


          Hugs,
          Donna
          Stay safe


          Elmiron Eye Disease Information Center - https://www.ic-network.com/elmiron-p...mation-center/
          Elmiron Eye Disease Fact Sheet (Downloadable) - https://www.ic-network.com/wp-conten...nFactSheet.pdf

          Have you checked the ICN Shop?
          Click on ICN Shop at the top of this page. You'll find Bladder Builder and Bladder Rest, both of which we are finding have excellent results.

          Patient Help: http://www.ic-network.com/patientlinks.html

          Sub-types https://www.ic-network.com/five-pote...markably-well/

          Diet list: https://www.ic-network.com/interstitial-cystitis-diet/

          AUA Guidelines: https://www.ic-network.com/aua-guide...tial-cystitis/

          I am not a medical authority nor do I offer medical advice. In all cases, I strongly encourage you to discuss your medical treatment with your personal medical care provider. Only they can, and should, give medical recommendations to you.
          [3MG]

          Anyone who says something is foolproof hasn't met a determined fool

          Comment

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