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Think I'll get the implant

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  • Think I'll get the implant

    At this point I think I'll ask for the implant at tomorrow's meeting with the uso. My symptom improvement is minor (over when I was on my meds), but I'm hoping that if I add back in the meds they will add together. My sleep quality has not improved, so I'm bummed about that because that's the whole reason I even bothered trying. I want to get the implant & go back on meds, & then try to decide what to do next in terms of treatment.

    The Static Guard turned out to improve the behavior of my stimulator box a great deal, so I do believe that it was static electricity causing it to shut off. Go figure.
    IC & fibromyalgia since ~'77. Osteoarthritis since ~'88. Idiopathic Thrombocytopenia Purpura (autoimmune blood disease) since '96. IBS for who knows how long. Interstim implant 2/04, revised 6/06, replaced 11/12 & again in 9/17. Antibodies to thyroid since at least '92 (finally diagnosed & treated 1/06). Asthma & vocal cord dysfunction 12/06. Hypoglycemia '07. Perimenopausal at 37, menopause at 45. Pituitary & adrenal failure. Osteopenia. Grade 3 sacral fracture by S3-S4 at age 12, healed 14mm out of place.

  • #2
    wishing you luck and hope things work out great for you grouphug
    Medicine taken daily or as needed:
    1. Heaprin and Marcaine rescue installment 1 to 3x daily as needed.
    2. MS.Cotin 100mg 3x daily
    3. MSIR 30mg 1 or 2 every 4-6hrs as needed for breakthrew pain.
    4. Fentanyl 100 mg Change every 48hrs.
    5. Gentamicin 80mg install after each rescue treatment
    5 Leviquin 500mg self start as needed.
    6. Klonopin 1 or 2 daily as needed.
    7. Prosed/DS as 1 every 6hrs as needed.

    I have IC, but IC doesn't have me anymore!


    • #3
      Hope everything goes well for you, keep us posted as to how you are doing, hugs Iris. hi grouphug
      Today and every day you are loved, so don't be anxious about tomorrow, God will take care of you tomorrow; Live one day at a time.


      • #4
        Hi Ryjoon, I had no idea that static would make a difference and that static gaurd would help (who knew?)? Thanks for letting us know. That's why these boards are so great, someone always has something new to add to the conversation about how to make our lives better. Best of luck with the next phase. I hope that it helps with your sleep quality (and everything else too!). Best wishes, little bear


        • #5
          Maybe with the addition of meds again your sleep will improve some. Lots of luck. I never knew that about the static guard, either.
          Mommy to 2 crazy, wonderful kids and wife to the most amazing man in the world!


          • #6
            Ryoon---------I had the interstim implant in 9/02.
            Before that i had been on all the meds which hadn't worked. The implant itself didn't work either, BUT I have found wonderful results using Detrol LA with the implant. I hope it works for you. Give it a try!
            Kathy hi


            • #7
              rjoon, sending you hugs and please let us know when the implant is going to take place.
              'The will of God will never take you where the Grace of God will not protect you.'