Announcement

Collapse
No announcement yet.

Interstim Diary--Day Two with the Permanent -- Succinylcholine Sickness

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • topcop229
    replied
    Sorry about your rash, Jen. That's very strange. Hopefully it will go away quickly. Is it itching or painful?

    Leave a comment:


  • SrMaggie
    replied
    It does get easier to use the remote. I just put my fingers on the button I'm going to use - but I think I have an old version.
    Maggie

    Leave a comment:


  • Sarojini
    replied
    :woohoo: Girl power!!!

    I could sure use some right now. In addition to the sux sickness, I've got some kind of rash... it's mostly around areas where I sweat, under arms, under breasts, in the creases of my crotch... ugh. We remembered that I had it after the trial surgery too, but chalked it up to me not washing soap off well enough before I figured out how to bathe properly.... but now we're starting to think that I'm sweating out something they gave me in the hospital and I'm allergic to it. I can't even begin to imagine what it is... I guess one of the antibiotics is the most likely culprit.

    UGH UGH UGH!!!!

    Going to have to discuss all this with the doctor....

    Leave a comment:


  • mom_in_ma
    replied
    Jen,
    Sorry you're feeling a bit sore today. The great news is that your interstim is WORKING!!! Congrats.

    Leave a comment:


  • topcop229
    replied
    You are right Georgia, girl power!!!! LOL

    Leave a comment:


  • Georgia L
    replied
    Hi Claudia,
    I know what you mean by the % and husbands...
    when I had my pre op last week and they put the turnucet on my arm to draw blood the lady just starred at my arm then me and my husband chimed in and said "they have had to use those veins so much they are all used up LOL just try my healthy ones over here"
    I know he means well but it is frustrating that it really feels true... he has had one IV in his life! and I cannot remember them all to count how high I have had blood drawn and IVs!
    We will make it girls!
    God will make a way!
    Feel better Jen!
    GL

    Leave a comment:


  • kadi
    replied
    Oh, yeah. I hear you on the "small percentage" thing. That's me too!

    Leave a comment:


  • tigger_gal
    replied
    ((((((((((((((jen))))))))))))))

    Leave a comment:


  • kadi
    replied
    Glad the Interstim is helping & hoping you are better soon!
    Relax & rest, okay?

    Leave a comment:


  • ICNDonna
    replied
    I'm another one who doesn't deal well with general anesthesia. The next time I have a hydro, I am going to tell the anesthesiologist at the pre-op visit that if anyone mentions a general, I am leaving! I'm happy for you that the unit is working well. Hopefully you'll feel better very soon.

    Warm hugs,
    Donna

    Leave a comment:


  • topcop229
    replied
    Jen,
    So sorry you are sore and uncomfortable today. As if the surgery isn't enough soreness, you have to deal with this, too!! But, at least your implant is working as well as the trial so you don't have to deal with the crazy urgency and frequency on top of all this!

    I know what you mean about being in the "small percentage of people." Yesterday, when they started my IV, my arm turned really red and they were afraid something was wrong. But, I told them, no, my skin just turns super red even if you look at it wrong. LOL. Then they said that the antibiotic they were going to give me via IV usually would turn the arm red and my hubby said, well, whatever it does to most people, multiply it by five for her. And it's so true!!!

    Well, at least you know that this crappy soreness will only last a day. Well worth it for the relief you are feeling.

    Claudia

    Leave a comment:


  • Interstim Diary--Day Two with the Permanent -- Succinylcholine Sickness

    UGH.

    Why do I have to be in the "small percentage of people" half the time?

    Today I am suffering with succinylcholine sickness, which is horrible soreness all over the body due to the paralytic (succinylcholine) used during general anesthesia. It happens due to the biological mechanism of sux (an apt abbreviation for the stuff, IMHO) and how it works on the nerves and muscles to induce paralysis. They give medication in the OR to prevent the soreness, but in a small percentage of people, it doesn't work, and they end up sore as all heck, all over the body, including breathing muscles, the day after surgery.

    Luckily, it is better this time than the last time I had general anesthesia, probably because I told the anesthesiologist beforehand that this happens -- he said my fibromyalgia probably also contributes, and said he'd do all he could to ease the pain, but that it was likely he couldn't make it all go away. He did a good job though. This time, I am able to sit up, walk some, and eat -- last time I had to just lie there with my husband feeding me mush because even my jaw hurt.

    As for my Interstim, the incision hurts, but I've been taking my pain meds and it is not too too bad. I do feel some stinging, burny type pain back there, and when my meds start to wear off I feel like someone kicked me in the tailbone/lower back area. Still, I am pleased... the device is working as well as the trial so far.

    I have practiced using the remote. The remote can be used to turn the implant on or off, to change the level of the stimulation (and later, once my doc finishes programming it, to change the area of stimulation too). You can either put the remote itself directly on the implant, OR you can use the external antenna. I've been using the antenna, which you put over the implant -- it has a cord that allows the remote to come around front so I can see what I am doing. During the first few days, when I'm getting used to the buttons, I think I will do that. I'm sure later I'll get so used to it I'll be able to just stick the remote back there and manipulate the buttons blind, but for now, I'm not confident enough... plus, I really haven't had to mess with it all that much other than to turn it up some.

    So... I plan to stay in bed most of the day resting... From prior experience, I know the succinylcholine pain will be gone by tomorrow, but man, am I sore today!!!
Working...
X