Announcement

Collapse
No announcement yet.

Interstim Journal II- Day 4 with Trial

Collapse
X
 
  • Filter
  • Time
  • Show
Clear All
new posts

  • Interstim Journal II- Day 4 with Trial

    Well, I am still seeing an improvement in my voids. Not having to push, getting a much better volume, and the amount of bladder spasms, urgency, and urethral pain that I have post-void have all improved.

    My soreness and pain is a little better today, but I feel like I've hit a wall. I woke up this morning and when I stood up, I could barely walk. I went back to sleep until a bit after noon...so I slept almost 11 hours or so. I just feel completely zapped of all energy, completely exhausted. I am also starting to get very warm...so I am keeping track of my temperature religiously. I am normally in the low to mid 97 range, which is what I was yesterday, and I just checked it and I am 98.3. So, if I keep going up, I will definitely call the doc. I am just frightened of infection!!!

    But, despite my lack of energy, I do feel like there is significant improvement in my bladder function. I have been changing the lead settings every so often on the unit like Paul, the rep, told me to do, to try and find the best one. I am now back at the original setting, just a little lower on the dial setting, because I felt I had the best voids with this setting. But, in a couple days, I have to switch leads entirely and go to the one on the other side of my butt! I just can't wait till this trial is over!!!! I love Patrick, but he's definitely cumbersome and I am always frightened that I am going to knock him out of the pocket in my shirt or turn the dial way up by accident.

    I do find that certain ways of sitting still cause an uncomfortable feeling of pulsation, and Paul said that was normal, and typically sitting straight up is the worst. I have been trying to adjust the setting to reduce the uncomfortable feeling while still getting good results.

    Claudia

    ~Claudia

    "A heart is not judged by how much you love; but by how much you are loved by others."
    ~ The Wizard of Oz

    "If I ever go looking for my heart's desire again, I won't look any further than my own
    back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy



  • #2
    I'm glad that you're seeing some improvement. So happy for you ladies (you and Jen). I hope things continue to get better and better for you!!

    Hugs, Sandy
    *IC-- Summer 2004; PFD--October 2005
    *Fibro--Fall 2000; CFS-- Fall 2000
    *MPS--Fall 2000; Crohn's disease-- 1997*IBS,GERD, *Migraines, hypothyroidism, GYN problems *Degenerative Disc Disease/scoliosis

    Total Abdominal Hysterectomy--adenomyosis--9\08

    04/17/09 Crohn's disease almost killed me with a combo of extreme constipation from pain medications. My bowel ruptured, I almost died from peritonitis and spent several days in the ICU then more in a private room on the floor. If you have any questions about severe constipation from pain meds please don't hesitate to send me a message.

    Comment


    • #3
      Rest thru the pain Claudia it will be worth it all in the long run.
      I am counting the days till I get my trial stim.
      I have faith that the butt pain will be nothing compared to the bladder pain and peeing over 20 times a day!
      The butt pain will get better but this bladder pain has not!
      Keep telling yourself that!
      Prayers!
      Georgia
      Faith is not believing God can; Faith is believing God will!

      Comment


      • #4
        Thank you Georgia and Sandy! Georgia, I am really excited for you getting your trial...it's just a few days away, right? And you are right, I know that this soreness will go away and the success that I have already had is worth it. I have noticed that my BMs are better as well as my voids. That is something that I was really hoping would happen, as I have TERRIBLE constipation, but I've been able to go the last two days and I feel things percolating for today as well. LOL.

        Georgia, do keep us posted on your surgery. I really pray that you have the success that Jen and I have had recently!

        ~Claudia

        "A heart is not judged by how much you love; but by how much you are loved by others."
        ~ The Wizard of Oz

        "If I ever go looking for my heart's desire again, I won't look any further than my own
        back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


        Comment


        • #5
          Thanks Claudia
          I will keep you posted... this site is a God send... it is comforting to know that I am not alone!
          My trial is scheduled for 7:30 Friday morning. I am so ready. I am trying to not get nervous. I am keeping faith and have many praying for me!
          I will have to get up early to get to the hospital that is about an hour away... that is where the uro. specialist I have seen does the surgeries.
          I did a lot of house cleaning today ( you know the routine... clean a little, pee, rest a little, do more cleaning, pee, rest a little, pee again...) oh laugh not to cry!
          My husband is going to go grocery shopping with me in the morning (with having to pee all the time and fibromy. pain something I really cannot do alone anymore)(sniff ) to get stocked up on things he can cook easily for us.
          You continue to be in my prayers!
          Rest and take care!
          Hugs! Georgia
          Faith is not believing God can; Faith is believing God will!

          Comment


          • #6
            Hi Georgia! It sounds like you are really getting things in order for Friday...it's best to keep busy these last few days beforehand so you don't get as nervous.

            I am already ready to get this temp thing off of me!! The tape is itching me horribly on my back...I still have 6 more days till my post-op appointment and I'm not supposed to touch this stuff before then.

            Anyway, I am really hopeful that the surgery will be a success for you. You can add me on to the list of those praying for you! I truly do hope that this will help ease some of your symptoms and maybe help some of your pain.

            hugs,
            Claudia

            ~Claudia

            "A heart is not judged by how much you love; but by how much you are loved by others."
            ~ The Wizard of Oz

            "If I ever go looking for my heart's desire again, I won't look any further than my own
            back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


            Comment


            • #7
              Claudia, I'm glad you are feeling relief with Interstim. Keep track of that temp and keep a watch on the incision site.
              Your quote from the Wizard of Oz is one of my favorites. I love that movie. It has more to offer than first meets the eye.
              Let me know when you are ready to talk about the support group.
              I have an appointment with Dr. Evans on March 6. It's not until 4:00 if you have time to meet prior to that, let me know.
              At least, I hope I get to the appointment. I was called for federal jury duty and I'm hoping to get out of it.
              Maggie

              Comment


              • #8
                Thanks Maggie. I love the Wizard of Oz as well, it's always been my favorite movie!!
                My temp has stayed about the same, so I am hoping it will not go up anymore, but I take it several times a day just to be sure.

                I would LOVE to get together on the day of your appointment. I have my second stage surgery on the 2nd, but maybe by the 6th I will feel like getting up and meeting you for a bit. Let's talk a bit closer to time and see what we can work out.

                Claudia

                ~Claudia

                "A heart is not judged by how much you love; but by how much you are loved by others."
                ~ The Wizard of Oz

                "If I ever go looking for my heart's desire again, I won't look any further than my own
                back yard. Because if it isn't there, I never really lost it to begin with!" ~ Dorothy


                Comment

                Working...
                X